Stats

Maybe I shouldn’t have quoted that stat so flippantly, I was just going off the studies I have read and what I’ve discussed with my surgeon etc. Certainly don’t want to scare anyone and as we all know prognosis is made on a very individual basis.

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It worth pointing out and I only mention this in case they are being thrown together …… recurrence and still being alive are two different things. Some stats/studies give recurrence rates, some survival.

If someone has a 10% risk of recurrence at 15 years, it does not mean the recurrence can not be treated or might lead to shorter life span.

On Predict I have a 85% chance survival for 10 years, 75% for 15 years. Yes I do/have worried about it, but I’m trying to look at things differently. The majority will not have a recurrence, and new research and treatments are progressing rapidly.

But hopefully knowing this will help me live today, but also make me vigilant for the future. X

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Thank you for responding. I appreciate what you’re saying but my response is in an email. Although that removes expression it was definitely written.
I would much rather an explanation like yours than just not talk about it.
Take care x

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Glad it not just me. So many contradictions. There is so much happening so quickly. I had to google the abbreviations just to understand the posts.

Spoke to a very helpful nurse yesterday, answers in my review on the 10th Jan.

I wish you well x

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I agree. Some don’t want to know, others do. It’s our bodies. All our DNA is different so I suppose they can’t say anything concrete.
I remember my consultants face when he told me I had cancer. I felt so sorry for him, can’t imagine delivering that news on a regular basis.
Hope you get the answers, take care xx

I love this answer. It’s a matter of wrapping your head around the fact that we are in a shitty situation through no fault of our own. It’s anxiety provoking and the “not knowing” can drive some of us a bit wack. I can’t recall how I felt the first time I had breast cancer, but I know after treatment I did my mammos each year and sort of forgot about it. If I heard someone talking about breast cancer I would think, “Oh ya, I had that” however it was all a distant memory. Perhaps that comes with age too. This time it more like a death in the family. I had to go through the stages of grief and then realize I have little control over what is to come next. Of course since my surgery is coming up on 12/24 I may feel different later.

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@rockym
So sorry your cancer has recurred. Really hope your surgery goes well. :pray:t2::pray:t2: will be thinking of you x

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I found this book really helpful and he does look at a lot of studies that have been done on women who’ve previously had breast cancer. I managed to get a copy out of the library. He’s an oncologist as well as a cancer surgeon and his wife and daughter both had BC.

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I also came across this study if it’s of interest, although the study goes back over quite a number of years

Molecular data can predict breast cancer recurrence.

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I also had an estrogen progesterone positive breast cancer. It was exactly one year ago this january that I started my chemotherapy. I had sixteen weeks of intensive drugs followed by thirty treatments of radiation. I lost all my hair. I have been on versenio and keyring for 6 months. I pray a lot actually every minute of my consciousness is spent in prayer that it does not recur. The only thing that is in my power is to take the best care of myself which I am not always spot on. I actually just had two months of eating very poorly and stuffing myself with Carbohydrates. About 1 week ago I slapped myself off the side of the head and asked myself.“What are you doing?” So I immediately started to eat.Better.I stopped all sweets and white stuff like pasta and white bread. I know I don’t have to do that forever but I had to do something immediately to turn things around. I started.
To increase my proteins by way of legumes and vegetables. I also started to eat salmon again of which I got a little sick of. That keeping my weight reasonable and not smoking or drinking which I don’t do anyway is all that is in my power. The breast cancer forum is really all that I read. I am a retired registered nurse and spent a lot of time in medical surgical nursing. In some respects I wish I didn’t know what I know. I do know to keep off the websites that are inaccurate. I also made a promise to myself to not forget that everybody’s story is different. I do believe we all share the fear. I pray for anybody reading this entry note.

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Oh thank you, I will definitely get a copy. Much appreciated x

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Hi beyond,
Yes I have been looking at my diet. Whilst not bad I did enjoy a glass or two of wine over a weekend. Now I am scared to have it. My BCN told me to read the labels of food so currently trying to educate myself on that.
We can but try. Take care x

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Thank you x

I found this article to calculate the risk of cancer coming back. The article is from 2018 so not sure still accurate : Online Calculator Helps Predict Risk of Hormone-Receptor-Positive Breast Cancer Returning Elsewhere in the Body

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Thank you Marie, will have a look, take care x