Still feeling soooooo tired :-(

Haha delly thats pure and simple fatigue for my spelling mistakes.!!! Dont know about you ladies but after a full days work i have to have an afternoon siesta!!! Xxxx

Dizzy I have to have an afternoon siesta and I don’t work full time! Just getting myself and the kids ready and off to school, followed by dog walk and may be a couple of hours work and/or yoga and that sees me done for the day! So frustrating

Hey - don’t knock yourself. You all sound bloomin wonderful to me. TRUELY

xxxx and some more xxxxx

I’m currently looking into Match.com dating site. And I’m NOT matching ANY of you to at all - . . . .

xxxx 

Good on yer Scarf Lady - and a warm WELCOME.

I’d like to know WHO owns this MILL?? It needs some serious work and alterations - don’t ya think !!

Hope you’re all doing okay

Doolally xxxx

To all you lovely ladies,
The fatigue is a bit crap but it does get better. Besides which remember girls we are fantabulous!!! If we can survive BC we can do anything!!! Albeit after a good nap!!! But what I say is if its good enough for Winston Churhill its good enough for us. During WW2 campaign he regularly took an afternoon snooze!!! Hugs xxxxx

Hey again Dizzy,

I believe “Maggie” did too. Yes Thatcher!! But I don’t wanna get into a political debate. Dizzy - You keep romancing with your romance woman. Long may it continue. Must be serious to take/make such a massive geographical move. Whoohoo for you darlin.

Dellywelly xxx

Hi Ladies,

My nemisis is also the fatigue aches and pains/flu like symptoms and have recently discovered the idea of trigger point pilates following a visit to a physio and it’s really helping and wanted to share. It’s basically self massage using balls and rollers to apply pressure. There are lots of videos online to get the idea, but swap the knobbly rollers and balls for smooth ones to reduce the intensity so it’s not painful and you’re well away. I use a childs rubber ball and focus on my thighs and bum. Simply lying length ways on the roller with it running down your spine is glorious. It releases tension in the neck, shoulders and chest without straining. 

It’s making a huge difference, I’m not waking up in as much pain and I’m finding it easier to move around. It’d be great if I could afford a regular massage, but this is a close second, I can do it whenever and makes me feel like I’m doing somthing to help myself to recover. Definiately worth a look.

Best wishes x

Thank you so much Swirly for sharing that. I’m dego going to give that a go ?

Hi everyone,

First of all thank you. I was beginning to think that I was going mad. I was diagnosed in Jan 2015, had chemo and surgery in August 2015, with 3 weeks of rads in Oct, 2015 and then three weekly Herceptin until May 2016. I went back to work in Oct 2015 and had a pretty good year- sure I was tired but overall did ok. Now, since September, 2016 I seem to be permanantly exhausted, catch any sniff of a germ and at the moment am feeling nauseus and dizzy. GP says ‘vertigo’, though I had this in Sept- more tablets but surely this doesn’t address the cause. I feel so frustrated and like the GP isn’t really hearing me- or that I have turned into some sort of raving hyperchondriac… Is there anyone else out there with similar??? If this is me post cancer…well, it just isn’t me! I thought i had it, dealt with it and then my merry little life would continue??? Any advice? 

Hi Everybody,

Hope you’re all doing well and bursting with energy? !!!

 

Blueash - you might find these suppliers a better/cheaper alternative to those of yours. Also, you can buy larger quantities of 120 x 250mg(Acetyl L Carn)/200mg(Alpha Lipic Acid combination. With the added advantage that they’re supplied in “letterbox friendly” containers - removing the need to be at home for, or missing deliveries and having to pick up from the postal depot - www.health4all-uk.co.uk.

Hope that’s helpful.

 

Also, I introduced these tabs to a good friend of mine, who’s suffered with M.E. for years. The results for her have been quite astounding !! She’s bouncing around like a Spring lamb, and not suffered any relapses or flare ups since starting them.

 

Lotsa love to everybody here

Dellywellydingdong xxxx

Hi, I’ve been looking into the Acetyl Carnitine & Alpha Lipoic Acid supplements that have been suggested on this thread, and wondered if anyone knows if they are ok to take while taking Tamoxifen? I’d really like to give them a go to see if they improve my energy levels, but am cautious about taking anything while on Tamoxifen. Will probably call my GP next week, but figured if anyone on here knows the answer it’ll save me a bit of time and I can order them more quickly! Thanks in advance!

Hi Christine,

 

Just to echo LadyB’s reply, it’s early days at the moment so just listen to your body and rest, relax and sleep when you feel the need. Remember to be kind to yourself. This will help you with your follow up treatment too.

 

Love & light

Donna.xx

Saphire - how lovely on your card. Yerrrrrrrr, nice.

I’m presuming you’ve just had a mastectomy, from the sounds of it?? I had two, and recovered really well from both, in the healing respect. But, yeh, remember it’s huge, massive surgery for your body to undergo. Plus, as Lady H Bowler said, takes a while to just recover from the general anaesthetic effects on your body. You’ ll feel so much better in the next week, but please DO your exercises -  religiously!! At least 3-4 x a day. Honestly can’t tell ya how much difference they make. Also, keep a watch out for a seroma developing. Despite having drains, I developed a seroma with both. Had to have my first mast drained twice - isn’t unusual. But important, if you do develop, to get back to your ward doctor and have drained, as they can prevent/slow the healing if you leave them.

Not nice to see, scars and nothing, ref no nipple, is it. Huge shock. I’m so sorry you’ve had to have it done. But sounds like you still have a remaining boob of your own?, which actually makes a huge difference. I know, only too well.

Much love to you

Delly xxxxx

Hi, Just an update on my earlier post on this thread regarding Aceytil L-Carnitine & Alpha Lipoic Acid supplements. I saw my surgeon for a follow up appointment today and she confirmed that they can be taken alongside Tamoxifen. Hope this proves helpful to others!

 

I also experienced this constant feeling of tiredness and fatigue.
The remedy was unexpected. I took Calmax, it’s a natural anti-depressant. Looks like the fatigue was caused by depression.