still in shock

Hi looks like I should have looked at this forum first before. Newly diagnosed with BC. Already been in hospital had my lumpectomy left breast and lymph nodes removed under arm, nodes were clear and my cancer was 2.5cm stage 3. Very frightened throughout and tearful and asking why me all the time. Realise I am not on my own having read comments on this forum.

Been told will be having chemo x 6 followed by radiation.
My husband is very supportive can anyone tell me if he can be with me during chemo administration please?

Also I have good movement in my arm but have what I think is unpleasant looking cording on the inner forearm. I am doing my stretching exercises, does anyone know if this appearance will go it looks bumpy.

Thanks

Dear Cazzanne

Welcome to the forums where I am sure you will receive valuable support and advice from your fellow users. In addition, Breast Cancer Care have published a Resources Pack specifically for anyone newly diagnosed with breast cancer which can be ordered on line, it is filled with information to help you better understand your diagnosis, test results and the various treatments available, you can order it via the following link:

breastcancercare.org.uk//content.php?page_id=7514

You are also welcome to contact our freephone confidential helpline on 0808 800 6000 for further support, advice and information from our team of specialist nurses. The helpline is open Monday to Friday 9am-5pm and Saturday 9am-2pm.

I do hope you find this information useful.

Kind regards

Sam
Moderator
Breast Cancer Care

Hi Cazzanne,

I got diagnosed 3 weeks ago and am waiting for my op on 3rd september (WLE and a ‘couple’ of lymph nodes out.) Did you hurt much afterwards? I am more worried about the lymph node removal thing than the WLE. I’ll have to make sure i do the exercises. How big is your wound? I’ve been told I am having radiotherapy then tamoxifen but don’t expect chemo unless histology is bad news. I have supportive family and friends too. Good luck with everything. These forums really help!

Take care,

Ruith

Hi Cazzanne

I was dx with bc 16 July and then told it had spread to my liver on 26 July. I started chemo on 8 August and it was not as bad as I expected and not painful. I was terrified about it and very emotional and cried heaps, but I just had to sit in an armchair, while the antisickness and chemo drugs were done intraveneously. Had cup of tea and sandwich too while it was going on. My husband came with me, although I sent him away to sort out my prescription which the needle was being put in as he is not very good with needles or hospitals (passed our nearly both times with our children and not much had been happening). He could stay with me the whole time and even got a cup of tea too, but sarnies were only for the patients!!!

Can’t comment about your arm as have no idea.

But please try to stay strong and positive. You will get so much support on this forum and it will help you get through this, it has me, and I have had some really low days I promise, but now my treatment has started, I do feel more positive.

Take care and let us know how you go.

Love
Dawn
x

H Ruith
I had my operation on 17th July. When I came around I wasn’t in pain but I did have a morphene drip and they gave me painkillers, I slept most of day 2 and to be honest it went pretty smoothly. I had a drain and when they took it out it was not a painful sensation but a weird one. For me what I struggled with was the sensation in my arm as though an ice cube was on it not painful but weird then pins and needles I kept massaging it and did the exercises and these are really important and may hurt so take the painkillers. I did this religiously as I know someone who didn’t and she has restricted movement. Under my arm it felt like I had a ball under it but really it was just a little fluid and the nerves playing tricks, oh and my fat! Also I felt like my shoulder had been really pulled or I had been hit. Don’t worry too much Ruith now I can move my arm around just this slight problem with nerves and one stretch exercise and what I think is cording but very happy with how this has all gone. Hope this helps.

My wound is less than 3 inches and the surgeon has done a wonderful job.
Support from family and friends and this forum are essential, wish I had used this weeks ago.

Wish you all the luck.

Cazzanne

Hi Cazzanne
the hospital where I go allow you to have someone with you - they are brilliant there. My husband normally goes with me and stays the whole time that I have treatment. On a couple of times my daughter has gone with me,last time she mentioned she is a student nurse and although the nurse was highly busy she talked my daughter through the whole process getting her to feel the good and the bad veins and telling her exactly what she was looking for and what problems can arise- my daughter learned stacks and thought it was brilliant.
I had cording but with the exercises it has gone - think it went after about 2 to 3 months although the numbness is still there - I’m coming up to my last cylce of chemo - just keep on doing the excercises - good luck

Hi Cazzanne,

I’m so sorry you’ve had to join us here but ‘welcome’ to this wonderful site. Rest assured, you are in good company. I was diagnosed in March, age 34. I had a right mastectomy and total axillary clearance a week after diagnosis. I started chemo in May, I’m on E-CMF.

My boyfriend has come to every chemo session with me, and I am sooo grateful for that. Its just lovely having him there to hold my hand. The nurses at the chemo day centre where I go always make a bit of a fuss of him and I think he actually likes taking me. I never really fancied driving myself as its quite far so its ideal really as he ferries me around and carries my bag!

I have no experience on ‘cording’ I’m afraid but perhaps you could speak to your bc nurse?

I wish you well as you start out on this ‘journey’. Take care and be sure to let us know how you are doing,

Kelly
-x-

Hi Ruith

Same as Cazanne I had lumpectomy/lumph nodes removal 3 weeks ago. The worst pain for me was as the numbness goes off in certain areas then the pain starts. Not constant pain as such but my skin felt (still does) as if I had mega sunburn plus 50- so ruddy sore, couldn’t bear to touch, but nothing to see. Until yesterday had to sleep on my back with a soft pillow under my arm. It does get better though even though it makes you miserable and mine fading each day . My lump was about 1 inch above my nipple to the left so I have just one incision for that and lymph nodes , about 6inches long I think ( have’t really looked). I still have district nurse who said yesterday scab is not quite ready to come off in places, but thankfully can now shower and put clean dressing on ( not me, the OH has volunteered). Can’t beleive that really cos he is usually quite squeamish but he’s been great.
Doesn’t mean you will have the same but as all the girls say it does get better so try not to worry. I had good result, no spread and will also have hormeone and radiology. Good luck to you and keep positive!

Norma X