Storm Riders/A Town Called Determination

Morning all

Best of luck today Theresa, positive vibes flowing your way. :slight_smile:

Rose, I know you won’t see this till you’re back, but a flood of positive vibes your way too for today. We’re right there. Listen for them thar boots clumping along beside you. No bad guys can get this Storm Rider! See you at the other side of your lightning strike. :slight_smile:

Ros, the first one is managed on sheer strength, the second on hope, and the half is when I get half way up then land straight back down on my nose! lol. Glad to see you’ve got the strength to do any planting at all and let one off at the same time. :smiley:

Must admit I much prefer crying on my own. I can look like a total mad woman if I get a big cry going, rocking back and forward hugging myself, and that old silent scream bit. Wowza! Don’t want anybody seeing that! :smiley:

Di, best of luck with bloods. It’s rubbish when you already feel weak, but you could be surprised at your levels. I’m not sure the levels are always related to how we feel. I felt fine for my last dose, but my levels were only just the right side. And getting the doses in and over with is what these Tiggers want. :slight_smile:

Oops, just crossed with you there Linda.

Have a lovely anniversary day. You deserve it. And your youngest will be having a great time. Bet you’ll smother him with hugs on Friday and he’ll be like, Muuuum, Gerroff! as they do. Lol!

How far from your last dose are you? It’ll take a while for your body to recover, but it will. I’m expecting a good two months before I feel fit again, although that’ll coincide with rads I suppose. Forgotten - are you moving on to rads or just the drugs?

Keep smiling, and keep your eyes half shut when looking in mirrors. But most of all, be kind to yourself. I am most definitely vain, and I have to keep telling myself to look at my reflection and see a strong, beautiful woman looking back (ahem - that is me boosting myself of course!), and not tell myself how bad I look. I’m not very good at it, but I must admit I feel better and more confident if I don’t keep harping on at myself about how ugly, or in my case mannish I am. We’re very good us women at being hard on ourselves about our looks, our body image. We need to stand up straight and tall, throw those chests out, no matter how they look, :), and see the beauty.

Right, I’m going to go practise what I preach, preferably without the mirrors. Lol.

Happy Anniversary Linda and hubby, enjoy your meal tonight.

Forgot to wish you well for yur MRI today Theresa, what time are you off?

I too am having issues with my appearance and am fighting hard not to get hung up on it,but it has affected my confidence re going out - I don’t get on with my wig (yes we argue a lot!) and I feel like I have a big arrow above me saying Chemo Patient. So, I will follow your advice Carole and before I leave today give myself a good talking to :wink: I feel very shallow worrying about all the wrong things when there are people so much worse off, I am a Storm Rider after all! Di xxx

Good morning all, it’s monsoon time in Wales today, hope you don’t have that for your school trip Linda.Happy anniversary!
My eldest is off to old London town for a school trip tomorrow for a few days,am sure she will have a ball, they are going to see ā€œhairsprayā€ am fair jealous!

Glad to hear that your ability to multitask hasn’t left you Ros,way to go, planting and farting, there’s something to be said for that…

Good luck to you Theresa and Di and Rose and everyone else with treatment,work, exams and anything else I have forgotten.

Carole there is no way you could be mistaken for a man…get a grip, you are all woman,I’m with you on the lone crying, had a big boo hoo after diagnosis and scared myself stupid at my reflection,don’t want me seeing me look like that never mind anyone else !

Right off to brave the school run in the wind and rain…

Sandra x

I’m back…LGFB was really good - great to meet up with Rosie too!! The goodies were full sized thingies too, not samples like I thought they would be, even a full sized bottle of smelly ā€œLovelyā€ by sarah parker somebody…all in all worth Ā£200 or so they say!
LAst one tomorrow - just hope all is ok, my hickman feels odd so hope its not turning into anything as that would no doubt delay things - gggrrrrrrrr…thinking of you all with scans, ops, appts, decisions etc etc …mary x

Morning all…congratulations on 20yrs Linda…enjoy your meal tonight…and your trip today. Thats hard work for you…a trip! Kids are hard when you’re feeling 100% so here’s some strong vibes heading your way to help you out >>>>>>>>>> er strong vibes!!

Theresa thinking of you today…{{hugs}}

Rose…stormriders, stormdogs, stormcats are all there with you…
Di its the overlap isn’t it…this’ll be your 3rd, so some of the ā€˜stuff’ will be hanging about from last chemo. But you will be halfway though…threaten your wig with a scarf wearing…that’ll sort it…good luck with the bloods.

What is this gift day thingy…is it for chemo treatment patients only…because it sounds a real kind of treat not a token one!!!
Mary last one tomorrow…what a celebration that will be…well when you are feeling more like that is!! go girl go!

Sandra don’t get swept away by the monsoon, don’t want to see you sailing by like Mary Poppins… except you would be in a car heheehe

Ros…understand about the quiet crying thing…I had a cry after DX but it manifested itself as we were walking out the hospital…and this little old woman couldn’t move fast enough on her zimmer to avoid me…well that one wasn’t so quiet eh…

I’m beginning to think that this ā€˜audible indescretion’ we stormriders appear to all have, should be harnessed and used for fuel of some sort…might make a pretty penny or two as we go!!! :wink: hehehe

Carole good luck with your press ups, or downs …when is your next chemo? Do you ever go to the Edinburgh Festival? My son knows of someone who lives in your neck of the woods…

Moring Lizzie…hugs to you…

good luck and vibes to all chemo babes, recovering or otherwise…and to you rads chicks who are gathering your strength back.
Helenxx

Helen - have a look at lookgoodfeelbetter.co.uk there’s one in Sheffield…its a charity ā€œthe cancer support charity that helps women manage the visible side effects of cancer treatment.ā€ so not just for chemo patients…the one me and rosie went to was a make-up one, they do nail workshops and scarf tying etc…mary x

Thanks everyone…

At the moment i am sitting around waiting to leave… my appointment is not until 12.50pm… just hoping it does not run late as i am concerned about getting home in time for David… unfortunatly Nigel is down in London today…

I’m getting a lift off one of my neighbours…

Theresa

Thanks Mary…sounds good!! Fingers crossed Theresa!

((((hugs)))) theresa

Wow, Mary, that is definitely a good treat. SJP perfume and everything. Wonder if they’d still take me if my hair is growing back? Must keep milking the system. :smiley:

Chuckle! Maybe we should invent a wee carry around system. Let me think… A bottle (wide brim of course), with an air tight lid, attached at the bottom (of the bottle…) to a wee bag. Small pump thing like a syringe at bottom of bag. Fill bottle, snap down lid, let things ā€˜settle’, ensure contents have moved to bag by pulling out syringe thingy, quickly and neatly pull seal at top of bag thereby closing bag and removing from bottle. Insert new bag. Take filled bag to fuel processing plant. Ah hah. We could make a smell fortune here. Lol

Thinking of you today Rose and Theresa and Gennie (is it your chemo today?) and anyone else being interfered with. Happy anniversary Linda and enjoy your curry. We’re going for a meal tonight too with a couple of friends - great, no cooking, no clearing up.

That’s quite a school trip, Sandra. Is Hairspray educational then? In my day school trips were Shakespeare or nothing. lol Send some of that rain this way would you? The garden could do with a drenching.

Pleased to see you sounding chipper Ros. It’ll be strange going back to work, but I’m sure you’ll manage. I’ve forgotten, how long have you worked for your company? Maybe global warming isn’t anything to do with vehicle emissions, maybe it’s all you chemo babes. lol

Last chemo tomorrow Mary - yabber dabber doo! I was talking to someone yesterday about the LGFB workshops, but felt that I didn’t qualify, not having gone through chemo. Is is geared towards those of you who’ve lost your hair?

no sal - its for anyone with cancer - I was beside a lady who’d had a brain tumour and radiotherapy to head - some had obvious real hair as it looked to be in the recovery stage, some were wigs - hard to tell though and some with what looked like healthy normal hair…there was a booklet Living & Working with Cancer - so seemed to be aimed at recovery etc etc…mary x
Gen - hope you’re doing ok today…

Afternoon all

Day 1 of 2nd cycle in and doing its thang. There was a slight delay because my neuts only just squeaked into acceptable levels at 1.2 where the cut-off for my Onc is 1 so the nurse had to check she was happy to go ahead before we got going. That’s the lowest they’ve ever been, so I’m not entirely comfortable with starting off from such a low point but hey ho.

Oodles of positive vibes for you today Theresa, and also thinking of you Rose in your absence. Happy Anniversary to you as well Linda, hope you have a lovely day.

I’m a private cryer too. I really wail when I go for it, and it’s not something I want to do in front of people. While I was having my pre-op stuff done at the hospital the day after I was diagnosed I kept bursting into tears and apologising to everyone at the same time, I was mortified. And on the looks front - my hair is now coming in fast but I still look appalling. I look like a very ugly man and I hate what I see in the mirror. I thought I wouldn’t care about it, but I do. I keep dreaming I have proper hair, I’m running my fingers through it etc, and then I wake up and I’m hideous. So that’s me - Vain and unashamed lol.

Finally - thanks for the pep talk Carole. I’ve pulled myself together and think I’m back on track. The rage has run it’s course for now, but no doubt it will be back again at some point! Bring on the gunfight!!! :smiley:

Hope the se run more smoothly for you Gen…

Hello everyone…:smiley:

Well that was an interesting experience… lol

Crikey did it hurt my arm…:o I think a couple of you have had an MRI when you were first diagnosed…

That was so much harder and more painful than my arm for rads…:frowning: mind you rads was before i got the lymphodema…

Still all done now and they said they would try and get the results to my consultant asap…

Theresa

Oooh I thought an MRI was just a case of lying there and being scanned - I didn’t realise it could hurt?! Glad it’s over anyway and hope you get the results (good ones!) quick smart!!

A friend has just been round and brought me a bunch of flowers and a huge bar of galaxy because the mate I went out with last night told her I was feeling crappy. How lovely is that? I’m lucky to have good friends. :slight_smile:

Glad Riviera’s up and dancing again! I’m scoffing my way through a bar of Green & Blacks Almond at the mo. Celebrating having lost a whole 1lb. It’s the same one I keep losing. One day I’ll join it to a second and then a third, but not if the G&B keeps leaping, unbidden, into my mouth. lol.

Glad the MRI’s out the road Theresa. I take it they made you lift your arm or something? I thought you just lay there too.

Gen - I keep dreaming I have proper hair too, one day and then the next I’ve gone out bald and forgotten but nobody seems to notice - seems to have replaced the one where I’m out then realise I’m naked but again nobody notices…haha…the joy of it all…theresa, get your feet up…ooohhhh just fancy some galaxy…I wonder… mary x

Still on the ā€œindiscretionā€ tack, glad I raised a titter.( Terrible pun sorry )
Someone complimented me the other day on being able to do a single-handed impression of a pig-farm - perhaps we could harness this stuff as ā€œessence de merde de cochonā€ and use it as a personal attack spray like mace or pepper ?
Sorry to hear your MRI was painful Theresa - did they make you hold your arms out of the way then ?
Did I mention that I fell out with one of my acquaintances last week because she said she could never have done chemo because she couldn’t have stood losing her hair or having damaged nails ? I told her that there were greater priorities in life ( like staying alive )and she took huff, and I haven’t heard from her since. If she was young, I could see her argument, but she is 83 and thinks she’s Hyacinth Bucket.