Fab news for you Clare, that must be a huge weight off your shoulders. Sounds like your rads are swimming along nicely Carole, I’m viewing them as a bit of an inconvenience at the moment rather than anything to worry about so am v encouraged that you are ticking along nicely with it all.
Just a quickie tonight as I’m madly packing for our camping trip tomorrow. Just about ready to throttle my FOUL children, who have whined, squabbled and fought their way through the day including a delightful hour in Asda shopping for provisions for the trip. They really have been just vile today, the prospect of the next 5 days camping with them fills me with dread. DH not appearing on the trip until Saturday night and only staying til Monday because of work. Ah well, as we’re going with my bro and his family I’m rather hoping they will disappear with their cousins and leave me in peace. I can but hope…
Right, I must eat and then more packing. Hope everyone has a fabby bank holiday. Back Tuesday if I don’t end up certifiably insane before then.
Gennie, you are echoing my sentiments with my two. They seem to have fought non stop for the last few days. They were so bad Monday, i was taking them swimming and turned around and went straight home because i was so embarrassed. I really wanted to go to the gym but couldnt so i read them the riot act. I suppose they have been thrown together for five weeks and havent seen much of their friends so they are getting on each others nerves.
I couldnt go running tonight because the bite on my leg got worse and i had to go to my GP’s. I saw a nurse who prescribed some anti histamine. My leg is red, angry and swollen. I had to cancel the pedicure i had booked as well, nails really need painting.
Sal, i am not able to go far without stopping and starting again but the running club is really good and lets me go my own pace. I am a bit wheezy but hope that will pass once the rads are finished.
Carole, Samantha tee hee wish i had her figure!! Thats whats a bit rich about SATC is that they are all supposed to be party girls and they are always eating and drinking yet they have skinny athletic builds.
Anyway have a good evening everyone, see you tomorrow.
Ah, the paperwork involved with employment. What joys eh Sal.
Have a good flight back Val. Sounds like an exhausting but groovy holiday.
Linda, I’m prone to insect bites anyway, but this year they’ve been really bad when I get them. Lingering, twice as itchy, ewwww just yucky! Bet it’s the chemo sensitising our skin. Rub on the ointment and put your hands in mittens. You are so right about the SATC gals. And what about SJP - what a body she has in the series! Pity she got too thin for the film.
Gen - you have my sympathies on the kiddie front. You could always use them as tent pegs and hammer them into the ground head first. Have a great weekend - hopefully kiddie free!
Rads is exactly that, an inconvenience. That’s three blasts so far and not a bit of difference except in the petrol tank. It’s a dawdle.
Best of luck at the 6 month check up Sal. My next one isn’t till 6 weeks after rads.
Well I have EPI 3 in now and doing its job. Got the usual wierd steroid feeling. Found myself scrubbing the sink this afternoon. No call for that sort of behaviour!
School term starts next week and I really want to go in at least for the first week before I go through the low immunity period. My chemo won’t finish till January and I think I will go completely mad if I have to stay home the whole time. So I will get in while I can and before all the usual coughs, colds, sore throats start (and that’s just the staff!)
So much been going on and I haven’t really been keeping up with things over the last couple of weeks.
I know there are mixed fortunes just now but send love and good wishes to all. I’ll catch up shortly.
Nearly through the EPI Sheila! Time flies when you’re having fun.
That’s a good idea going in next week. It does get tedious sitting around doesn’t it.
Well I think Autumn has come early here. Sheesh, non stop wind and rain. I’ve got a lovely crop of plums, all green! No sun to ripen them. Anybody know what you can do with green plums?
Hi All
Those insect bites are really nasty this year - with or without chemo, babes.
Two of the women I teach at the yard have had ? mosquito bites on their ankles this year - with swelling +++, really bad. Both have needed antibiotics. And several GPs and nurses that I have been talking to have said they are seeing loads more extreme reactions to bites at the moment.
Take care - it’s a jungle out there!!
Thanks for the email replies…s’all a bit of a b*g*er, int’it?
Going to a wedding “down south” on Sunday, my niece. Should be fun, the family are quite crackers! When her parents married (my sister in law and hubby) - “their song” - to kick off the dancing, was that well known romantic classic “The lunatics are taking over the asylum” - they were both nurses working in Mental Health at the time!
Hope the BH weekend is kind to all - especially all the very special SRs
Hi loves…thank you for your messages. I’ll explain as briefly as I can what has been happening.
Thanks for passing on my news Lizzie. I am very, very tired but I wanted to explain.
Lots of waiting about yesterday. Eventually after 3hrs a doctor chatted with Steve, me and Paul. Said it was a tumour, more than likely benign but could also have cancerous cells too. The thing is it doesn’t matter either way, because it will be all taken out anyway…if they find c. cells then it will mean some rads treatment afterwards. I talked with loads of different doctors all telling me lots of info. Can’t repeat all here cos, its too much.
One thing though they have been ‘looking’ at the MRI and other evidence for 10 days and haven’t got a reason for the trigger. Well its my body and I asked lots of my own questions. The nice irish neuro surgeon…another charmer…was straight down the line and answered honestly. Not going to bore you with his humourous analogy.
He told me I asked some intelligent questions …and he wasn’t being patronising.
Right I didn’t know I was stopping in…poor comunication. But believe it or not I did get some stuff ready for overnight…thought they might ask…sixth sense…but left the stuff at home. Anyway they more or less told me that the op wouldn’t happen today, then it would, then it wouldn’t and that is how I’ve spent this morning not knowing if it was going to happen…dressed in my theatre gown.
As you will realise, I’m home so it didn’t happen. We waited till 4 to recieve tabs to bring home. I now have to go in on Monday evening and have it Tuesday, or Wednesday, but it will definitely happen next week.
My other symptoms have increased somewhat this week, mostly the headaches, so I’m glad it is happening now. I also had a cognitive test, memory, investigative etc and I did well. I will have to do another one the day after my op to compare the findings. she was pleased about what I did, I just didn’t remember an address she asked me. when she was going I said I’ve just one more question…
er whats your name? (she’d told me several times).wasn’t joking though!
So much has happened and so much info to take in that I’ve been ordered by my son to not do anything this weekend and he is going to molly coddle me. Not going to the caravan, need to organise things.
Sorry for going on. will try and sneak on here without son knowing…sure he won’t mind heheheeh only joking.
Got to ring my head up too. Was told it may take months to completely recover and not weeks. Hey bloody ho here we go again. but its doable. then I am officially writing off this year…it doesn’t exist accept for the good things in it …like this thread.
AND NOVEMBER…
So go stormriders go…
catch ya whenever
Helenxxx
Oh Helen - that was such a surprise then to see a post from you… {{{hugs}}} sending you all my love and positive vibes for next week… did they say how long the op is likely to take and how long for the path results after…?
Have a great day at the wedding Lizzie. Your relatives sound fun!
Sheila, I can’t believe you’re on to you 3rd EPI. Sounds like you’re coping really well. My husband used to teach and I never ceased to wonder at the fact that 2 weeks into every term he got a cold. Amazing.
Macmillan sent me a load of stuff today, including a guide to how they award points for Employment and Support Allowance. If anyone needs to fill in the assessment form, it’s well worth ringing Macmillan, as they give you loads of help with it.
My clinic appointment went well today. My surgeon was happy with everything and I have to go back in another 6 months. Another milestone.
I’m still feeling really tired and I’m wondering again if I can do this hormone therapy thing. I feel like I’m living in somebody else’s body - a 90-year old’s!!
Hi Helen. Don’t apologise for going on - you know we all want to know everything! I was shocked to receive the news from Lizzie yesterday, but you’re sounding very calm about it all. I’m glad you don’t have to wait too long. Wish I could be there to give you a real hug, but a cyber one will have to do ((((((hug)))))). And I now feel pathetic about feeling knackered when you’ve got so much more to deal with.
Helen, you are so damn right about the Storm Riders riding. And we’re going to ride till hell burns out, with Yorkie in the lead.
Rest easy, and just think of all the grits you’re going to have to eat till we’re all satisfied you’ve got your strength back. Heheh, you didn’t think you’d get out of that just 'cos you’ve found another bad guy in front of you now, did you! Wait till the Old One gets back. She’ll have you held down and force feed you. Ooops, better make sure the horse linament isn’t near the tonic bottle!
Just read your news Helen, You are right to write this year off. I am sure your family will take care of you well so i think you should enjoy the molly coddling. I hope that the operation is not too much of an ordeal. My best wishes for a speedy recovery.
Sal, i find that if i stay still for very long, i cannot get up easily. I am ok when i keep moving. When i get up from a chair, i am like an old lady and it takes a few minutes before i get back to normal.
You are right about the insects this year, Lizzy and Carole. I have taken an anti histamine tablet but leg is still swollen and itchy. My ankle is all puffed up. Difficult to know if this is to do with the cancer or not. I do always react a bit to insect bites but not quite as bad as this. I will have to remember to put the autan on before i go out in future. Enjoy your wedding.
What a weird day, one minute sun, next rain, next gale force winds.
Kids still playing up, cant get on at moment. Roll on school for them.
Hubby is sneaking off to Wembley for Rugby tomorrow leaving me alone with them for yet another day. However, next weekend he is taking them up to his mum and dads. i am not going because it will be my first full week at school and i need to prepare. I love my children but a couple of days apart from them will reinforce it…
Ooh Helen, how lovely to see a post from you. Please look after yourself and follow family instructions… Thinking of you and looking forward to hearing good news sometime soon.
Time for me to hit my bunk. Love to all, have a lovely BH. I have 3 young nieces invading…
So pleased to read your post Helen, and the main thing is that they can take out all the tumour.
I know what you mean about tiredness Sal - I am still feeling fatigued, but told it was likely to be the after effects of rads which apparently like chemo go on working for several months.
I have been at work all day and then went to a friend’s house for supper. Actually met Jane at my clinic and she has just finished treatment for lobular bc and hopes to go back to work in September as a social worker.
Going to spend the weekend at my parents - they live outside London in a small village and I love the quietness there.
I noticed my elbow is slightly itchy tonight - hoping this isn’t an early sign of lymphodema.
Have a great weekend - hopefully kiddie free!