Straight to stage 4

Living with secondary breast cancer Supporting each other and sharing experiences
21

Thanks Mohan, I will ask Inc about it at next visit.

Bad day today. Just finishing the worst menstruation of my life which has left me utterly exhausted today. Spoke to BC nurse who is happy that it has now subsided but I’m thinking of pushing for my ovaries to be shut down at next once meeting. It will bring its own challenges but I can’t be housebound like this every month. Now laid out on the sofa while husband is doing everything - without complaint - but I feel useless. Sorry for the pity party, just need to get it out x

22

Oh Juma what a nightmare. Glad you are getting to rest and your husband sounds like a good one.
Glad your menstration is finished for this Month and hoping you feel better tomorrow.

I am at my parents just now, I have awful bone pain from the bone marrow injections. I have taken some gapapentin but need to drive tomorrow so don’t want to take to much.
I really just want my own bed, I know it’s not too late in the night yet but I think it’s going to be a long one and it always seems worse in the middle of the night.
X

23

I also had a first diagnosis of stage 4 BC with 9cm tumour in 2010. It does leave you feelinv that life is not only quite precarious but also very precious. I have recently been diagnosed with secondary BC in liver and bones and have just started chemo again after being on letrozole and a fulvestrant trial. Once again i wonder what this means for me. First time around I could not have guessed that I would still be enjoying life now 7 years later. So must hope there is still time to enjoy some more.

24

Hi. Ladies, 

good to hear from you…yes…we must expect more time xx

 

my primary was 2001, with 12/13 lymph nodes…bc affected…bc returned in 2013…liver and bones.

 

i know it’s hard not to feel that trickle of fear at the back of the mind…but there is so much more in our favour these days. Moijan xxx

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25

Hi Juma
I am quite new to this site but I find it really helpful. I initially presented with back pain and by the time any Dr took me seriously (I ended up going to A+E) it was already spread from breast to spine and ribs… I had back surgery and they put me on tamoxifen… I am now on TDM-1 + Denosumab xx

26

I am also relatively new to this. Bone mets found after breast lump in March. I’m on Ibrance Anisrozole Calcium and bone injections. All a bit of a shock. I had two weeks off work but am back now around appointments. They are being very understanding. I won’t offer advice but I will tell you that so far it’s doable and I feel okay. The ladies here are very experienced and helpful. There’s also a lovely little video somewhere on the site of a nice lady talking about her life with secondary breast cancer. She’s five years down the track and living normally. Best wishes