Oh the waiting Feenix is awful- really feeling for you.
Thanks for your kind thought for tomorrow- dreading it once again- I almost wish that the consultant would turn up unexpected at my door now and tell me- the prolonging is not good this evening.
Will be thinking of you tomorrow Jem. X. Take care
Hi Jem. All with you in the big pant pockets. Just be careful when you sit down! Don’t sit on my booby. Stay strong mrs x. Hugs
Thank you Gill and DCB -big pants on, you’re in my pocket , I’ll try not to sit on you… Insomnia terrible -3 hours last night and now shaking again. Armed with questions. Hoping there is no additional news to share- gremlins having a field day here. At least the sun is shining☀️.
Good luck for today Jem
Thank you kind ladies for your messages and thoughts- hope I didn’t squash any of you when I sat down in the big pants!
Sally are you still away? Weather fab for you.
Well here goes- I had fully understood all the results and there was no more bad news on this front - had dreaded this.
Due to my age and the multifocal nature of the tumours there was no option of way forward - the odds were too high not to have chemo, rads and hormone tablets. The odds with all 3 are very good.
I asked if it could all start after half term - no, now awaiting call from nurse about picc line either this Thursday or Monday. Everything to be kicked off v quickly, oncologists comment - why wait when we can get going. She agreed cold capping would be good idea for me and they have excellent results and nurses who are pedantic about good fit.
My emotions are all over the place - need to get organised this week but feeling terrible. The roller coaster of breast cancer just took another turn, on a positive it’s not in the dark anymore as a plan for the next 5 months. New turn is it going to be a worse ride than the base to y and reconstruction? When and how to tell Chn?
I think I just need to be today, sleep and then in my usual way make a plan and in control if what I can .
Xx
I’m not away till Friday Jem.
Sorry you’ve to do the chemo as well. You won’t even be on the same monthly thread as me if they are making you start soon. I assume you’ll be on May whereas I’ll be June. Do you know what you are getting and how often?
Sally
Hi Sally thought you were away this week- fingers crossed for good weather.
I’m have 6 x FEC-T. Picc line to be fitted either Thursday or on Monday- all going too fast.
Looks like we will be on different months but will keep up with you.
Have you got your head round it all or is that not possible. Feel all over the place.
Xx
I’m thankfully getting a bit of a break from it. But it’ll be 5 months worth of chemo after. I’ve got my meeting with the nurses on 5th June and first chemo on the 8th. I’m not going to have a picc line. They don’t know but I’ve decided I’m not having one. My left arm has been screwed up enough so I’m damned if I’m going to have anything with the potential to screw up the other. I intend to work as much as I can through chemo so don’t need the added aggravation of having to have it flushed every so often either.
Tbh I am still really angry I’m having to do this at all because I was sent away two years ago when I initially felt something. I’d maybe not be needing chemo or have had to have the node clearance with hugely limits my options because it means I only have one available arm.
Sally
Sending big hugs to you Jem.
Sally I’m so sad you’re feeling angry, totally understandable. Chemo is feeling an awfully long climb- the oncologist was really helpful today, I’m sure I will just get on with it. Had a phone call from nurse this afternoon - picc line and assessment on Monday. She was so kind, after assessment and talk through I’ll have picc line in then said that we’ll have a cup of tea, check everything ok and relax- really. I know what you mean about picc line- wasn’t really given an option and I have a phobia of needles- not great.
We will both get through this and as many ladies who have trodden the path have said - it’s not great but doable. If they can do it so can we.
Enjoy your holiday, relax, drink g and t.
Xx
Thanks for asking, Feenix. I’m doing well post surgery. Just dropped in to keep an eye in everyone else on here and got s bit upset about Jem’s results. Trying to keep my positive happy feelings going until I get my results appointment. Really don’t want to come down off the high I’m on at the moment, but fearing another slap in the face on results day. Helena’s big girl pants are at the ready. I’ll post when I get my date, so I can take you with me. Love and hugs to everyone. xxx
Pleased you’re doing ok Fairy Dust.
The wait for results can be trying as I’m finding … my results (along with others) are delayed. I’m nearly 4weeks post wle/snb. My surgeon and nurse have both been ‘on the case’ but at least I now know my specimens are definitely in histopathology as I was worried they’d gone walkabout !!! I’m more relaxed now I know they are in the pipeline being processed… weird.
Big hugs to Sally and Jem.
Not long and you’ll be away on your jollies Sally.
xx
Hi All
FairyDust - I’m so sorry I made you cry- it was my biggest fear too. The gremlins are not in any of the info they give you at the hospital!! They are awful- squash them with the big pants !
Feenix - the waiting is awful, so sorry your going throu this?
Just thought I would quickly update - I’m doing surprisingly ok and trying to be positive - this is for my benefit and therefore need to be thankful for these drugs. Once I decided this had really helped. I’m ‘weller’ (Is that even a word???) than I have been since Feb- no cancer and recovered so well from ops- walking 10km now. So I’m not going to be ill with chemo but rather the medication to help me has horrid side effects that I may or not get- turning it this way is making it bearable. Breaking it down into small steps - each cycle, each week and then each day.
I’ll keep piping back to see how you are doing. Take care xx
Hi Fairy Dust how are you doing? Making good recovery I hope. When is results day- you have been on my mind for a few days now. Big hugs ? to you. Xx
Sounds like you are doing well - keep going.
I start chemo tomorrow- staff were absolutely amazing at the hospital, really helped me today. Anxious but trying to be very positive. Helena’s big girl pants washed and ready for tomorrow. It feels surreal and almost like it is happening to someone else! Keep in touch and I’ll pop back to check up on you Fairy Dust and Feenix.
Sally - how’s the holiday going??
Hi ladies,
Holiday going well, being careful not to burn my arm but managed to burn my feet despite repeated applications of factor 30. Going to brave a sea swim later, sans wetsuit. Brave or stupid, not quite sure which.
Good luck for chemo Jem, let me know how it goes. Good luck for results Fairydust and Feenix
Salky
Hi fairy dust. My oncotype took 3 weeks to come back if that is a guide for you. Hoping it come back low but the waiting is just dreadful.
Feenix hope all has gone on with your results and the next prt of your plan is in place.
Jem. I will pop over to your thread to see how it’s going and hope all goes good for you
Sally. Glad you are enjoying your hols. Fab weather you have had. Need a kick up the bum from you over the weekend as had 3 poopy days for some reason and thought a couple of tunes I know who would out me back on track!! Speak soon all and will keep track of us few that are left in here. I will be in the June rads thread no doubt. Have a lovely evening all.
Ohhhh good ole predictive text again. I am sure you can work it out Sally.
Times perchance?
I get the poppy days. I’m getting more and more hacked off with not being able to wear hardly any tops. None, and I mean mean none of the bras I have bought are comfortable. The post surgery ones are a nightmare and rub, so I have tried cropped tops types which ride up constantly where I had so much removed and am completely concave on my left hand side. I have to constantly adjust myself every couple of minutes or end up with one tit about 4 inches higher than the real one. I really wish I’d asked for the other one to be taken off at the same time just for uniformity.
And despite the medihoney my wound is still not fully healed. After 3 months I’m sick of doing dressings too. I’m half tempted to tell them where to stick their chemo rather than have it just to have an end to the whole bloody thing. I’ll take my chances and get on with it.