Oh heck fairy dust. Dickens??? Should say sickness. ?
Hope you’re feeling better Fairydust, ladies.
I actually found a bra I can wear…woooooo and it’s from Primark of all places. Seam free bralet with a cross straps at the back, only a fiver. Bought one to try and it’s so comfortable. Stuck a knitted knocker in and looks completely natural under a t shirt. They do various different colours so I’ll have to go back and get some more.
Has another wound check today where again debris had to be taken from the wound, cleaned and packed. I’m to remove the dressing and packing tomorrow and start using medihoney. Also have meeting tomorrow to find out what the treatment plan from here is. It’ll be nice, after months, to finally find out what’s what.
Gill - sorry day not a great one today, hoping it got better. Went for a walk with my eldest after school and managed to see the sea- good endorphins.
Sally- comfy bra ??. What time is your appt tomorrow? Thinking of you and hoping goes OK.
I’ve developed an allergy to the plastic surgery taping - so itchy and looking like bad sunburn?will need to ring tomorrow if I can put anything on it.
Big hugs xx
Hi Jem. Days been ok didn’t get any worse think maybe a bit tired as didn’t sleep to well but feel I have had enough sleep which is good. My body clock has had a bit change from working 05:00 up and travelling full day then hour back to being at home 24/7 and working at a slower pace. I am missing the office environment but not ready for the hour drive to work just yet and will have phased back to work when I do go back. Like you say the sea is a brilliant endorphin. We went to wedding in Anglesey the other weekend and it was lovely. Live 2 hours from the coast so no sea for me but I do live right next to the river which is beautiful but not the same as the sea. Anyway 1 more week to go . Hope you get your itching sorted tomorrow and carry on recovering. Send some sea air my way please. Have a good evening.
Sally. Can’t beat primarni and glad you found a comfy bra. Happy days. Hope you soon heal and can move on to next bit.
Jem,
Sea - good endorphins, I read as you saw some sea God dolphins and I was quite jealous for a minute 
like you I developed an allergy to the dressings so ended up taking them off and just covering my wound with gauze inside a tight vest. I put oilatum on the itchy bits and it helped. My appointment tomorrow is 3pm so probably at least 4 by the time I get seen. They’re always late.
Gill, Primarni is a must especially for the 4 quid pyjamas!
Good morning ladies. Not to many of us left in here of late as all the good results last week mean our team mates are moving forward and now I see the May thread has started. That’s April gone and suppose it has gone by pretty quick and a lot has happened to us in that time, and this forum has been amazing with some wonderful and amazing ladies. Looking forward to a sunny weekend and my grand daughters 5th birthday - 30 excitable children so will be kept busy I am sure. Hope you all have a good day Take care all. X
Good morning everyone
Thank you all during our April month, it has been a real help.
I will hopefully get my HER2 results tomorrow which will determine which thread I next go to… hopefully the radiotherapy and tamoxifen threads and not the chemo route.
Good luck with your next steps everyone and no doubt will ‘meet’ some of you in one of the other threads.
Have a lovely weekend and enjoy what should be a good weather bank holiday.
Take care and hugs all round xx
Good luck with your results daisiemoo and dcb. And agree that hopefully the next move will be rads and not chemo definitely with you on that one as I am waiting oncotype resutls
So my next step is chemo. When I asked the oncologist how much he replied ‘lots’.
They’re going to start after my holiday at the beginning of June, 4 rounds of EC (epirubicin and cyclophosphamide) - every two weeks followed by 12 weeks of weekly taxol. No radiotherapy (which is what I was dreading least cos I’ve done that before and it was a doddle). Letrozole for five years after chemo. They are going to try to get it sorted that I have chemo on a Friday so that hopefully I can work at least half the time.
Hi all, hope the sun has been shining where you are around the country.
Sally - sounds like a punishing schedule! I’ve got my appt wth oncologist on 14th May - can I ask about your appt as trying to be calm. The letter says discussion to make decision about benefit of chemo- I’ve read somewhere about an online tool to look at benefit- did they use this? Any suggestions on questions to ask?
I know this thread is nearly done. I thank you all for all your support and smiles. Could I ask that you post your results-
DCB- hope you’re ok about tomorrow.
Gill- I have everything crossed for your oncotype results next week.
Daisiemoo- hope you get your results tomorrow- I’m guessing HER negative is what you want to hear.
Fairy Dust- hope you are feeling more comfortable - 1 day at a time.
Hubbies 50th later this month so trying to focus on this- chn and I decided 50 presents- a little tricky as not able to drive- 5 bought locally today, 45 to go! Internet shopping here I come .
Enjoy long weekend, weather looking good here- first sign of sunshine and chn want to go the beach.
Hugs to all xx
Hi Jem,
We were in there ages cos basically oncologist went thru all the information and possible side effects plus my full history. He’d just come from MDT meeting where treatment had been discussed. As I can’t have radiotherapy on account of having it with my first cancer 12 years ago chemo is the only option especially as my cancer qas pretty large and there was quite a bit of lymph node and skin involvement. The recent scans were cleat but obviously because of the lymph nodes they need to kill off any cells floating around. He didn’t use a tool (unless it was done prior) but he did say I had a 40% less chance of getting cancer again with chemo. As I’ve already had two different cancers and don’t fancy a third it seems silly not to. He was also quite interesting in the weird sensation of it raining on my left shoulder and it going to try and sort me out physio for that and the cording I have (despite faithfully doing my exercises).
It was a good appointment because I never felt at all rushed. He also didn’t poo poo the idea when I said I felt I’d had the cancer two years ago when I initially got referred only to be told it was scar tissue from my previous surgery and admitted it was very possible that it was there then.
Some good news - had a call from the BCN this afternoon and the Herceptin is negative so yeh no chemo. The relief I felt was so good, so rads and Tamoxifen it is.
Concidering at at my first biopsy I was told it would probably be nothing or something and the worse case scenario DCIS, it would have been just a little gutting to get yet another not good result. So now I feel I have hit the bottom of my slope and now the climb back up to the top.
Good luck everyone and see some of you on the other threads xx
???
Hi gals
Best of luck with appointments tomorrow Dcb and Daisiemoo, Gill next week and Jem 14th. My results weren’t ready for MDT so still waiting.
Sally … see you got your answers and starting ct June … have a great holiday beforehand.
Hope you’re recovery well Fairy Dust.
xx
Hi Sally thank you for your info- sounds like he is on your side and although it’s not going to be nice going through it long term worth it. I had a look at the Dec chemo thread as was a bit panicky - only read 1st few pages but some really helpful bits- breaking it down to small steps. Are you cold capping? If I need chemo then this will be for me.
Take a breath today to try and begin to get your head round it. Holiday before sounds a good plan, when I spoke to dr secretary she gave the impression if needed would all be v quick to start- terrified.
Big hugs xx
Ladies
I just wanted to send you all hugs, we are all here for you
Helena xxx
I’m undecided about cold capping Jem because of the time it adds and I’d rather get in, get it done and get out. I also really suffer from brain freeze when I have really cold stuff so it may not be for me anyway. I will probably get my hair cut really short before I start, try it once and see how it goes.
Morning ladies. Sally you will get through I am sure. Your threads do inspire me and really put better thoughts in my mind along with lots of other ladies on here of course. You are so on it if you don’t mind me saying and sure you know what I mean. Your amazing. And we both shop at primark lol so gotta be good. If I do have to have chemo then so be it bit terrifies me even though I know it’s doable. I have read on cold capping but like you suffer with brain freeze just looking at ice cream but … can feel my anxiety slowly building and still got 5 days to go. Not sure if I am doing the right thing by preparing for the worse scenario or not as sure don’t help the stress levels and thoughts and stomach doing multiple somersaults. As so many have said the waiting is worse than the surgery. Have a lovely day and good weekend all. Another week almost complete. Xx.
Gill, the sun is shining, it’s getting warmer so sit out and have a beer or two. I’m sure you will be fine whatever comes your way.
Great news dcb. Have a great weekend.
DCB fantastoc news - a few months ago the prospect of Tamoxifen and radiotherapy sent me in a huge anxiety spin, as you say how strange it feels that you are pleased at this!! We have all been through a lot in the past few months. I am so so pleased for you. I am not saying that this is going to be an easy road for you BUT keep telling yourself cancer free and margins ?.
I hope you are going to enjoy the weekend.
Feenix - how frustrating not to have your results - the emotional roller coaster - when is your appt now?
Gill- how are you dear? The waiting is terrible- do try and think positively this weekend- fully understanding your anxiety though. I’m now waking during the night with ‘that’ sense of horridness.
FairyDust - how are you doing?
Have I forgotten any one? Sorry sorry
The sun shining here and done 5km walk today- this really helps to regroups me.
Enjoy long weekend, big hugs
Xx