Well my new nipple is still bleeding and weeping even though I’ve had a dressing on it for the last week. My consultant didn’t seem too concerned and didn’t think it was infected but has given me some antibiotics just to be sure. I’m back at hospital on Friday for a check up.
Hope everyone is recovering well!
Jane - how did you get on with your first drive?
It sounds like you’re doing well Jane. I think I will have to get myself in my car and have a go at driving. I will also be taking a cushion with me for my back as this is what I’ve been doing when I’ve been in the passenger seat. I’m sorry to hear that you have to start taking Tamoxifen - do you know how long you will have to take it?
I asked my consultant about physio yesterday and she said that they only refer people if they are struggling and she obviously didn’t think I was. I might look into it later on if I don’t think I’m improving well enough because I can get it for free as I work for the NHS.
Hi Jane and Linda. When I started driving again I found a small cushion or a folded up scarf under the seatbelt next to my boob was really helpful at first.
??
My new nipple has finally stopped bleeding and looks a lot better than it did on Tuesday, it is scabbing over nicely. I think it might be the antibiotics that did it. My BCN put on another dressing and I have to go back next Friday for it to be checked out again.
Hope everyone is doing ok xx
Hello everyone
Really good to see you are all making progress and grabbing the chance to get back into normsl, everyday activities. It’s been such glorious weather recently, it seems a shame to be indoors…
I spoke too soon 2 weeks ago about starting radiotherapy! IVe been 3 times to Guys since then for them to pump c200ml Sedona fluid out of my foob to try to stabilise it for radiotherapy, all of which is extremely boring and time consuming. Last week I even got as far as lying half dressed on the scanner before they decided no! I’m now 2.5 months post surgery (full Mx, implant and aux clearance - 11 of 20 lymph nodes infected) so am a bit concerned at the delay - I understand they normally want to get cracking on rads within 3 months. Anyone else had a seroma get in the way of rads and have any suggestions for getting the fluid creation to stop?
I’m also taking Letrozole - a few night flushes for the first few days and then all fine.
Meanwhile, let’s love the sunshine - we went out for a 15 mile bike ride yesterday to soak up lots of vitamin D! Look after yourselves, ladies - and keep smiling???
Hello everyone
Really good to see you are all making progress and grabbing the chance to get back into normsl, everyday activities. It’s been such glorious weather recently, it seems a shame to be indoors…
I spoke too soon 2 weeks ago about starting radiotherapy! IVe been 3 times to Guys since then for them to pump c200ml Sedona fluid out of my foob to try to stabilise it for radiotherapy, all of which is extremely boring and time consuming. Last week I even got as far as lying half dressed on the scanner before they decided no! I’m now 2.5 months post surgery (full Mx, implant and aux clearance - 11 of 20 lymph nodes infected) so am a bit concerned at the delay - I understand they normally want to get cracking on rads within 3 months. Anyone else had a seroma get in the way of rads and have any suggestions for getting the fluid creation to stop?
I’m also taking Letrozole - a few night flushes for the first few days and then all fine.
Meanwhile, let’s love the sunshine - we went out for a 15 mile bike ride yesterday to soak up lots of vitamin D! Look after yourselves, ladies - and keep smiling???
BRxx
Just got back from the breast care clinic and my new nipple is healing nicely and I don’t need to have a dressing on it anymore. I am quite relieved as at one point I thought I might end up losing it altogether! I am slowly getting back to normal after my surgery although my BCN said that I could still have some slight discomfort for up to a year!!
Jane - I am driving now and thinking about going back to work soon. Please let me know how you are doing.
Hope everyone else is recovering well xx
Hi Quaggie- fingers crossed it is just an itch !!!
Tears are healing and meltdowns make you feel better …
?&?
Hi Jane
Good to hear from you. I’m glad you’re trying to get back to normal and I know what you mean about not knowing what normal is. At the minute I don’t think I’ll ever feel 100% normal - it is such a slow process.
I feel fine driving, albeit still with a cushion behind my back and I have to be careful when I’m turning sharply to the left. I’m driving like I did when I was learning and wasn’t allowed to cross my hands on the steering wheel! I still feel like I have a really tight bra on even when I have nothing on. Do you feel like that? As for how I am emotionally, most of the time I feel OK but I do sometimes find myself wondering if I’m going to get it in my other breast as a lot of women on here seem to be on their second round.
It does seem to be all about appointments doesn’t it, although as long as my nipple behaves itself I haven’t got any further appointments now until March 2019! I’m seeing my boss next week to discuss my phased return to work and I will probably go back the week after. I’m pretty sure I will get some backache as I spend most of my day sat at a computer but I’m going to take my cushion with me.
Lots of hugs to you and everyone else on the August thread (you’ve all been very quiet recently, hopefully it’s because you are all doing well) xxx
Hi all, good to see that you are beginning to think about ‘normal’ after 2-3 months… we are moving at such speed, ladies!
I am due to start radio this week, although as my foob is still suffering recurring seroma (feels like sleeping on a tennis ball!) and has definitely grown since they did the laser mapping, I won’t be surprised if it gets put off yet again… groan.
Don’t know about you but I am beginning to feel really weary of treatment now as I was diagnosed last December and have been going into Guys for sessions since early January. Hoping to be done with the main treatment by the end of this year, but am being considered for the MonarchE trial for abemaciclib as apparently my cancer’s more than 50% likely to return. Is anyone else considering this? Would be glad to see what you think about it…
Look after yourself, ladies - and keep cheerful. I couldn’t believe the sunshine today - and it’s nearly November 
!
Big hugs BRx
I’ve just come back from a meeting with my boss to discuss my return to work - I will be going back next week on a phased return! I will be 10 weeks post op by then but I can’t quite believe that it’s time to go back already. I do feel well enough to go back and I work in an office so I won’t be doing anything too physical although I am expecting to get a bit of backache (I’m going to take my cushion with me).
Hope everyone else is healing well xxx
Hi Belmont Rose, I’m not surprised you are weary of treatment if you were diagnosed in December. I was diagnosed in March and have had chemo, surgery and currently doing rads with herceptin thrown in every 3 weeks and I have. Really had enough of treatment. The problem I find with rads is that you are there every day so it is a constant reminder of what you have been through.
I am curious how/why they say you have a 50% chance of it coming back. I’ve not heard of the trial so can’t offer up any advice there apart from do what you feel you can cope with.
Hope rads is going ok for you and that your seroma is healing. X
Hi
Is there anyone still coming on the forum from the August Surgery thread? I would love to know how you’re all getting on.
I’ve been back at work for a month now, trying to get back to normal. Please let me know if any of you are still out there.
Linda x
Hi Linda
I am here though to be honest work seems to have taken over. I am doing well and beginning to feel the whirlwind has slowed a little Still getting tired easily but I guess it being wintee doesn’t help with that.
I too would really like to hear how everyone is getting on…
???
It’s good to hear from you Wombat Woo and I’m glad you are doing well.
You’re absolutely right Karen, it has been a long road although probably longer for you than me as once I had had my surgery in August I didn’t need any other treatment. I think the recovery time for a Diep is about the same as LD flap which is what I had and I still feel some discomfort even now after 3 months. It does improve, just very slowly. Don’t try to do too much before you are able.
Sending hugs to you both x