Surgery is done!

Good morning all, so I had my mastectomy with diep flap reconstruction on Saturday and wanted to share my experience in hope that it helps someone who was as scared as I was.

Let’s start pre- ask for a pre sedative, it’s not given as standard now but really made me feel calm and ready. I was petrified before hand but floaty after the drugs.

Surgery took 7 hours and as my surgeon said, was uneventful. I woke up very thirsty and feeling very sick. I was in good spirits though and was singing to everyone!!

I’m not going to lie, there were quite a few tubes and drains coming out of me, so be ready for that. They don’t hurt, they are just there to help you. I had 3 drains a catheter and two cannulas. I had a compression device on my legs that compressed every 30 seconds and a heart monitor and BP. I was Buckaroo in human form!!! Pain wasn’t too bad. I used the morphine button once but made me feel to ill so decided to just go with the paracetamol.

I felt elated for being alive and hopefully cancer free. I’ll get my results on the 21st to see if the latter is true!

Night one I didn’t really sleep as they had to check my boob every 30 minutes. That was hard! I couldn’t sleep and every time I dropped off someone was there with a Doppler. They were a bit concerned with my urine output but after some apple juice and toast and 2 am things perked up.

Sunday I woke up feeling sick but feeling good. I met my physio and had a bed bath. My surgeon popped to say hello and my husband was told he could come after lunch. I was allowed home!!! After a major surgery I went home 24 hours later. Home was where I wanted to be so was very glad.

Having my drains out was weird. Not painful, just feels really odd… you won’t like it but it won’t hurt.

Since coming home it has been tough. I’ve had the blues a bit and my stomach really hurts. I’m allergic to most pain relief so it was just paracetamol and ibuprofen. The ibuprofen was making me sick so I have stopped those.

I’m now 6 days post op. Every day it gets a teeny bit easier and I can stand a tiny bit straighter.

This is not an easy surgery but my goodness I feel like a warrior for choosing to fight this aggressively.

If you’re scared please pleas know how scared I was and how it will be ok. We can do this xxx

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@motherducky thank you for sharing this experience,I had finished 6 months of chemo this week and I will meet the surgeon on Sept 1, so my anxiety is quite high at the moment.

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Any questions you have at all please feel free to message me. Even if you think it’s a silly one.

I think meeting the surgeon helps as once you see how calm and how confident they are and how good they are, you know you are in good hands.

Mine said he would be very suprised if I wasn’t scared and that it’s totally normal and expected.

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So pleased your surgery went well and youre at home recovering! Times have changed so much since my b, LD reconstruction in 2004. I was in for 7 days! So nice you can recover at home with all the home comforts around you. Just dont be tempted to do too much!
Surprised your drains came out so soon. Is that the norm now? Thake care and good luck with your results. Xx

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They weren’t producing anything and my surgeon is very keen on keeping infection risk low. So drains out as soon as they could, home as soon as I was ready and then omg compression garments that are making me regret all my life choices in this heat!

I get my sites all checked on Thursday so hopefully all is healing as should be xxx

Everything has moved on so far my nurse was saying. She said the ones who get out earlier now seem to repair better. I think because you’re in your home and with your things etc.

Hope you’re enjoying this summer sun! Wishing it was a bit cooler at the moment!

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Know what you mean about the compression garments! Weathers gorgeous albeit a tad too hot! Take care and i hope your recovery continues to go well x

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Hi @motherducky thanks for sharing such a detailed overview. @jaa2019 I have had 6 months of chemo and had my double mastectomy and reconstruction with implants two weeks ago, I went into surgery feeling not 100% fit due to the chemo but I was so well looked after and the pain gets better each day good luck to you xx

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@motherducky @suzy72 thank you for giving me hope. Tomorrow will be my MRI then Aug 26 will be the MDT, and To see the surgeon Sept 1, they scheduled me SEPT 29 for the surgery but the oncologist wants the date to be move much earlier.
So many uncertainties leading to the surgery is giving me the anxiety. And the side effects of the chemo still lingering in my body, it’s been 10 days since my last chemo, but I’m still homebound and only managing to attend appts in the hospital.

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Dear jaa20119,

Thinking of you, so much to take in when so much is going on, however there are times when we surprise ourselves how well we cope. Be kind to yourself one day at a time at the moment.

Wishing you well going forward, with lots of happiness, keep posting when you feel up to it to let us know how your getting on.

Hugs Tili :pray::rainbow::pray::rainbow:

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One day at a time. One achievement each day. I was lucky not to have chemo but a good friend is going through hers at the moment. But the surgery is another step on the road.

Just focus on tiny steps. A next appointment, getting your hospital bag together, buying yourself some nice bits to go in it.

We are all here so reach out whenever you need a virtual hug, have any questions or just need to be safe and have your feelings x

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I know it’s so tough right now your job / this is how i saw it/ is to control what you can and right now that is your recovery from chemo take it hour by hour listen to your body and do what you can rest - eating what you can little and often - fluids and movement when and if you can xx so you are as strong as you can be for surgery - ask me anything and sending love xx

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Hey I just read your post . You are so brave! I’m praying for you .

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Thanks for this. I am 5 weeks post double MX and immediate reconstruction with DIEP. I like you woke up elated. Happy to be alive. My first drain came out Day 2, the remainder Day 3 (I had 4 in total) and home after 3 nights. Very tired first week but fine from Day 10. Heatwave and TED stockings/Compression garment not a good mix but you cope.

Yes it is scary and the choices and the situation we are in is beyond rubbish. Think carefully about what option is right for you but I am so happy with my boobs and flat tum.

Radiotherapy next for me. Step by step treatment after treatment we will get there.

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Glad to hear you are doing well. It’s a mega recovery isn’t it. I sneezed unprepared yesterday and thought I was going to split in half!

I get my results on Thursday and then will know next steps.

I hope your road to recovery is manageable and you keep as positive as you can. Sounds like you are being a warrior!!

Good luck and all the love xxx

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Oh no! Hopefully no harm done… I still press my hand on my tummy to sneeze or cough but if you are caught out there us nothing you can do. Your post will give encouragement to many… wishing you a long, happy and healthy life.

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And to you. We’ve had enough trauma, onwards and upwards for both of us. And back to never sneezing in fear! Xx

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Thank you so much for sharing!
I’ve got my surgery on Friday, the nerves are starting to kick in now but your post has helped calm me.
Hope your recovery is still going well x

Glad your surgery went well and you are home. The heat has been terrible and I have found that a kiddie’s paddling pool filled with water is very cooling to sit relaxing with your feet in. It looks a bit strange but that’s no problem to any of us right!

That’s such a great idea. Straight on Amazon tomorrow it is!!!

Glad to be of help :slight_smile: I also bought during chemo and found it great all through surgery and radiotherapy a triangular pillow from that store whose boss has recently got married. It’s a block of firm foam and comes with its own pillowcase. You can use it to support you sitting up, and then later you can turn it round to keep your legs elevated. Not to be confused with the triangular pillow for reading in bed which is has 3 parts to it. Also, don’t bother to buy those VERY expensive seat belt supports. An ordinary pillow is fine to take the seat belt away from your boob but still keep you legal. Mind when I went home from hospital I had a toy daschund under my seat belt which my best friend had given me as a hospital gift as I really like dogs but can’t have one. She loved the photo! Remember you are not having cancer treatment to support the cancer industry’s retail therapy - unless you really like something. There is always a non-cancer option - even on headwear!