France V Argentina was the best match at a world cup since the Germans stiffed Brazil.
Tomorrow we should win but Columbia can never be ruled out.
After my first cancer I’d had the nipped removed but could still go braless because it was such a small neat scar, not any more. If I was just flat I’d consider not bothering my I’ve been left completely concave so which makes my just about b cup thats left look massive. With a normal bra there’s a lot of riding up still and the knitted knocker keeps working it’s way out so I have to delve down my top and reposition it. A proper prosthetic might work better (when it’s not so hot) but I’ve not been measured for one yet. I might ask because no one has mentioned it to me despite the fact my mastectomy was in February.
Side effect still pretty non existant. Had my first near meltdown at work today because thw printer was playing silly wotsits (or a my phone says, wetsuits) and I couldn’t get done what I needed to. I came very close to smashing the lid but managed to stop myself and sat and cried in frustration. I think that’s the first time I’ve cried since I was diagnosed. Maybe it’s been a long time coming.
Oh dear printer meltdown ! I have had that too… almost did a basil fawlty on it as hit it with a stick. I wonder if we have to chase up for a silicone one, I’d like the option of one. Chemo 2 is done and now just waiting for any side effects… muzzy head starting but otherwsise ok, i now have jabs to administer too… just one more joy. Take care enjoy the football xx
Well, as I’m 4 and 3 months past surgeries it knocks the 6 week theory.
It’s not just the Kk though, everything rides up on the mx side because there’s absolutely nothing to stop it. I’ve tried normal bras, stretchy sports type and mastectomy bras. They all do it.
Sally, definitely speak to Bcn, I migh5 chase up my fitting too. Definitely look at Knitted Ks website they may more tips, my mx surgery left almost a lip at the bottom where boob would havebeen and my ribs are quite prominent so maybe that helps my bra… crikey I sound gorgeous don’t I ? :catmad:
I can’t be sticking stuff on my skin! It’s all I can do to wear clothing when it’s hot. I was wearing a white under dress/slip like thing around the house last night. Completely see through looking like a victorian Street urchin!
Kip, I get what you mean, the only way to describe my scar is like a shark bite.
Aww Feenix sending a huge hug to you. Sorry you’re having a tough time right now. Hope you managed to get some housework done- bizarrely I’ve been enjoying hanging out the washing!!! I hope you can also do something relaxing today too. My appetite is so much better. Thank you. I’m very anxious about Cycle 2 but trying to keep the worry gremlins away as this is my’good week’. Thinking of you xxx
Sorry to hear you are having such an up and down time at the mo Feenix. Do you think your OH being away makes it tougher? My OH is in London tonight, overnight for an awards ceremony sounds more glam than it is he’s in Insurance! Usually my day is punctuated by him coming home and the routine definitely helps me get through the day. Trying to busy myself but feeling tired so having a break. This is also the first time I have been home alone for a while in the daytime. One daughter has started a 12 week work placement and the younger one is on a well deserved holiday. They have both been so great going through this but it doesn’t stop me feeling guilty. I know, I know.
We can’t help how we feel can we? I think we are supposed to acknowledge and accept but if you feel cr@p then you feel cr@p! I have noticed being home on my own that I start to dwell on the fact that my friends don’t understand what I am going through. I get quite angry and fed up with them. Although not actually to them. When I’m being rational I think how could anyone understand? But this is life now, treatment, surgery, scans and blood tests. It is quite a lot to take on isn’t it? Sorry I’m full of doom and gloom. I started typing to cheer you up but probably had the opposite effect. I guess I just wanted you to know you aren’t alone with the emotions. When do you have your next surgery? Has a date been set?
Going back to the family history discussion, some interesting stories. I really enjoyed my search but yes it is very consuming. I found some long lost relatives in their 90’s living in Derby. I went with my mum to meet them and they had a couple of photo’s of my great grandmother who had given up my grandmother. They also had lots of great stories to tell.
I hope your emotions stabilise and you manage a good day x
Glad you are feeling more yourself, a good nights sleep can make a big difference. When is your OH home? Although you must miss him it must be lovely for him to see his family. Technology is great for closing the distance isn’t it? My daughter is sending videos and messages from her holiday and it is great. So wonderful to see and hear her so happy.
I have to say I am really impressed with your ability to remember where everyone is in their cycles. I’ve got a memory like a goldfish! Yes no. 5 done. The first week is always the worst for se’s but by day 10 I feel completely ok. So far I think I have been very lucky with se’s and am not suffering much. I hope that continues! I found out the other day that my white bloods are very high before my chemo sessions too which is good to hear. With each annoying se I’ve had this time I’m thinking only one more time to get through! I can’t wait for this leg of the treatment to be over but not sure that surgery will be any easier. After your surgery will you need further treatment?
I hope you have a good evening too x
Hi Feenix - sorry to hear you have been feeling a bit low, and glad the sherry helped… if it helped you sleep then have another one, lack of sleep is dreadful. I expect the worrying about which operation to have is playing heavily on your mind at the moment, its a big thing to deal with. Once I had made my decision I felt so much better and could move on to the next hurdle, you’ll get there in the end and it will be the right decision for you.
I’ve just had cycle 2 of FEC and feeling pretty ok (day 4), minimal SEs so far. 4 more to go, counting the days although then I have the decision of whether to have nodes removed… thinking I will at present, just want everything out that I can… but I’m sure that will change backwards and forwards nearer the time. Then I am having radiotherapy and then hormones, but I am sure if I can manage chemo anything else will be a doddle!
Michelle - glad to hear you are post cycle 5 and doing well still, thats a big boost to us who are still in the early days, don’t worry about the moans and groans, we all have them on here, its the one place we all “get it”…friends/family try to help but you can’t ever imagine what this feels like unless you are living it… not sure I would be much good if it was someone else either I suppose.
Thanks Feenix and Kip. It’s so true you can’t get it unless you have been here and I wouldn’t have been any better than my friends are being. I guess it’s a bit of the anger of ‘why do I have to go through this…’ even though I hate that attitude because why should anyone go through this!
I am having the works! Chemo, surgery, rads and a year of herceptin. Better safe than sorry I suppose. Are you expecting a full node clearance Kip? I’ve been told I will have axillary clearance even though the tumours have shrunk with chemo. Obviously I don’t want to take any risks but don’t really get why I’m having it and it is the part that worries me because of lymphodema. Hopefully I will learn more when I eventually meet a surgeon.
I’m pleased to hear you are coping well with chemo too Kip, I remember how nervous you were and probably in shock too. I know I was when I started chemo. You are already on the 2nd cycle, that’s great. I found once I got to the end of cycle 3 I really felt like there was an end.
I walked 7 miles this morning really trying hard not to let fatigue and se’s get a grip! X
Thanks Feenix, yes decisions are difficult. I have now spoken to 2 ladies who had the same options, both had lymphs clearance. One has lymphodeam, one doesn’t but both were glad to get rid of them… doens’t help with the choice much but its something to think about. I need to do some more information finding before i can decide.
Its so hot down here in Suffolk and not helping sleeping either, but don’t feel too bad, have been back at work since Thursday so that feels like normality for me for a while. CDC your tutoring sounds wonderful!
I am impressed with you ladies who are managing 5-7 mile walks, good for you, it does do you good to get out and about doesn’t it, although I haven’t managed that far yet but I’m still hula hooping!!
It’s been sooooo hot in London. Going to avoid the sun today in case it exacerbating my cold sore. Really want it to clear up before Tuesday when I’m supposed to have my 2nd cycle of chemo. Don’t want it delayed. Have to wait till next Saturday for my MRI- not ideal as I’ll still have SEs from the drugs. Oh well I really want to get it out of the way. I’m amazed to see how quickly you can get the results in India!!!
How have you been feeling? I know you have decisions to make and that’s always tough. Thinking of you.
Hi all, It definately is greenhouse conditions here in Suffolk, unbearable at the moment, not condusive to a good night sleep is it and that’s without mentioned a wig or a head wrap… even the bald head is hot!
The SEs were fine until Friday night, then wham bam, sickness, headache, tiredness and now upset tummy. The taste buds are missing today too but I think they are slowly returning, water tastes odd though, who’d have thought! I’m hoping that the next day or too see’s the return of the normal me. I had the weepy post steroid day yesterday, hated everything taking over my life and threw every, hat, wig and scarf across the room in despair… told my daughter I looked like a pirate in my scarf… made her laugh anyway.
Clare - your Get Well Cafe sounds wonderful… my cafe seems to be manned by me!! I hope your coldsore is improving and you get the chemo tomorrow.
Feenix - my garden is looking awful at the moment, its so dry but also I haven’t really got on top of the weeding since all this happened. I too have an elderly neighbour who is out in the garden 24/7 and his looks amazing… mind you he lost his wife to cancer last year and doesn’t mind telling me all about her struggles even though he knows about me… he keeps trying to pass me her old things too, used suncream, PICC line cover (even though I haven’t got a PICC) etc… I know he’s trying to help but sometimes I could shout at him…BTW she didn’t have BC so don’t panic…
I’ve just washed my wig for the first time, its looking like a drowned cat at present… hope it drys up ok :smileywink: or it could be the pirate look for me for the next few months.
Thanks J, don’t know what chemo is doing to me, just ate a whole large bag of cheese n onion crisps… its the only flavour I can taste at present! Eeek…
Hello all
I have been reading your posts but haven’t commented as been feeling quite low. I’ve come to the conclusion it is a se of the steroids. I’m feeling back to my normal self now which is a relief. It’s good to hear those on chemo seem to be coping well and already on the 2nd cycle. You seem to be coping well too Jean. Your walk of 5 miles with hills is impressive, I must confess my walk is completely flat. Unusual for Wales!
Hopefully my next 10 days should pass quite quickly and then I will have my final chemo. I can’t wait. It’s not something I thought I would ever hear myself saying “I can’t wait for chemo” but there we go, that’s life now isn’t it?!
Glad everyone is keeping well, have a good day xx
Jean we were going to do a walk near the Captains wife last weekend but stayed home and did gardening instead! Even though I’ve lived in and around Cardiff for 25 years I’ve never been there! Maybe next weekend! The walk I did was along the Taff, out and back, I promise totally flat! I wonder if the caves you went were Dan yr Ogof? I went there once a few years ago when the girls were small, a good day out.
I’ve been in the garden reading this afternoon and something in my book made me realise I’d told a lie on here! I said my long lost relative was ordained in Lincoln Cathedral which is completely untrue it was Lichfield! I’ve never been to Lincoln! I can only blame it on chemo brain as I’ve noticed I’ve come out with some rubbish the last few weeks!
I am Starting to think about and worry about surgery. It seems those with lymph nodes removed have a more difficult recovery, does anyone here have a view on that? I know I will go with whatever is recommended by the medics which at the moment appears to be a mastectomy and axillary clearance. Wouldn’t all of this be so much easier if we knew that this treatment would 100% resolve the problem. I realise I am asking for the impossible.
Quiet at home at the moment with eldest on a placement and youngest away but that’ll change at the end of the week when the youngest is back and will be asking for lifts everywhere. It’ll be nice to have the company though. I expect you are looking forward to you OH back next week. X
Hi Kop I thought I was reading all of the posts but just read your post from this morning. I really am losing the plot! I totally get your steroid downer, they are hard aren’t they? Are you on FEC at the moment ? I don’t want to depress you but on docetaxol the steroid dose goes up. I have found this the hardest thing to deal with. It gives me bad reflux, bad sleep and bad moods! And I’ll have had 4 doses of docetaxol when I’m done. Having said all of this from day 10 I generally feel ok so that’s 10 good days!
I’m sure you don’t look like a pirate at all! And I’ve just eaten a bag of Roast Ox crisps, I’m not even that keen on crisps! I’m really going to need to get back into healthy eating after chemo! X
