Thanks Michelle.
Just messaged you.
Xx
Aagh Just Lost a long post but to précis- So sorry to hear the reaction or should that be non-reaction, of some of the people in your choir. I’ve been saddened by some peoples reactions too. Out of my ‘gang’ of 5 who have known each other since school only one has really kept in contact and I really enjoy meeting up with her. Another wrote ‘always here for you’ in a Christmas card and I had to laugh as I thought ‘No you’re b****y well not.’ Most recently one did message the group on Whatss Ap to say she knew last year hadn’t been a particularly good one for some of us (total understatement on my part) but hers had been great!!! I’m just really trying to focus on those who do make an effort- I’m intending to throw a big bash when all the treatments over for the people who really have been there for me- OH and I want to hire out the entire hotel where we stayed recently so we can treat everyone to a meal, some dancing and a night away. When we finally got around to getting married in 2015 the only guests were his two older kids and our daughter so I’ve wanted to have a bit of a bash for a few years now - maybe we could combine anniversary celebrations/renewal of vows with a thank you party!!! ? ? Good to have something to look forward to.
Sending hugs
PS your daughter’s essay must be an interesting read!!!
Wow CDC that sounds like quite the celebration! X
Thankfully the hotel rooms are surprisingly good value Michele! It’s still only an idea but would be good to celebrate!!
On a completely different matter- could have done without the 4 hour trip to A&E this evening with my daughter! She jumped off some equipment at playtime and landed badly then bashed her knee! No broken bones thank goodness but sprained each of the ligaments from her toes and ankle so is now strapped up and on crutches for the next couple of days as she can hardly walk!! I don’t think OH was relishing the idea of having two invalids to look after! Hopefully she’ll be feeling much better by the weekend x
Oh your poor daughter, luckily kids recover quickly from these things so hopefully she will soon be jumping around again! I’m sure ‘another’ hospital trip was just what you wanted, youbreally cant get enough of them at the moment can you Claire?!
I think the party sounds like a wonderful idea and really gives you something to plan for and focus on. We all certainly deserve to celebrate getting through all of this! X
Oh dear Clare, your poor girl, hope she’s feeling ok today and not in too much pain. Your party celebration sounds like a fabulous idea. My OH and I have been invited to a wedding in York in February so decided to take up the offer and go for a couple of days (just the two of us), so found us a nice hotel and really looking forward to just spending some time away from everything.
Going back to Michelle’s post about what to say to people… I just bumped into a lady in our village, she’s very nice etc but always comes up with a sheepish look and says "well how are you…is everything (long pause)…ok? So I always say “oh yes everything fine” and then she goes merrily on her way… when I really want to say “yes I feel ok, I ache from head to toe, have hot sweats that wake me up everynight and spend the good part of the day wondering will it come back” but you don’t say those things do you… you just smile, and let them go on their way. Perhaps next time I will say it… just for the look on her face! She also always says “love your hair bet your pleased its grown now”… also want to say “no not really much preferred being a mousy blonde with locks passed my shoulders instead of a grey Philip Schofield lookalike” but I don’t. Bless em!!!
Enough of my moaning… its day 4 of my healthy eating plan and going ok, did some more hula hooping this morning, didn’t help with the hot flush I had at the same time but hey ho. Determined to shed some of this blubber and feel a bit fitter ready for the summer… oh and have to squeeze into something suitable for a wedding in Feb… eek!!
Kip
xx
CDC - just wanted to tell you, just had a message from my friend, she had her tummy DIEP procedure yesterday and is sooo happy with the results already… feeling bit tired and woozy from morphine and a little bit sore but otherwise she’s fine and so happy to have a flat tummy and 2 boobies again!
Kip
xx
Kip I’m pleased your healthy eating plan is going well, I really need to get into ‘the zone’ I didn’t put any weight on in chemo and was really pleased but after surgery it crept up and December the Cadbury’s Hero’s just got the better of me! I would like to lose a stone, I will keep trying!
Cdc your daughters Leige sounds painful. My daughter tore lots of her ligaments in her ankle a couple of years ago when doing hurdles in athletics training. I’ve never seen so much swelling, it’s horrible to see them in pain isn’t it? I hope she feels a bit better now, it’s good school are helping out too.
Afternoon tea sounds lovely and worth putting healthy eating on hold for! I’m pleased your party sounds doable, how nice of the hotel to say you can postpone if need be. I find now it’s little things like that that really mean something to me. I also think you should get excited about it! Start a list of who to invite! I’m getting excited for you, in fact it has made me think maybe I’d like a party in the summer although we’d probably just have it at home! But still something to look forward to!
Jean how are you doing? Hope all is well and the lists are serving their purpose! X
Hi, I want a party too… look what you’ve started Clare :smileywink: We all deserve a party I think… Michelle… a summer party sounds fab… probably be in my garden too but something to think about.
Your poor little one Clare, makes my aches and pains fade into the distance just thinking about it. No doubt she’ll get lots of attention at school and make her feel special, I remember always wanting a go on crutches when I was little… am sure I wouldn’t once I had them though. I always wanted to have a plastercast too… crazy child.
Had another restless night with the achy joints… tried to explain exactly how they feel to my OH this morning but he couldn’t understand, its difficult to explain. He did say that he wishes he could experience it for 10 minutes to fully understand… only 10 minutes mind!! I think I need to sleep standing up as its so much better then… not sure that would work though :smileylol:
Kip
xx
Hello clare,. Oh what a shame for your daughter, hopefully she’ll get to Wales and perhaps get given some special responsibilities on the activities which will help her feel involved. I hadnt realised your op was Monday either, that came round quickky didnt it. Your poor OH will feel torn between being there for you and yiur little girl but good your mum can be there for you. Ill be thinking of you and looking forward to hearung its all done. Hope you get a restful weekend.
kip
Clare forgot to say no other ideas yet re a holiday in sun. A friend is in Hurghada atm as its easy to get there from here as we can fly from Bristol. Hurghada isn’t that nice but hot in Feb.
Not sure if you saw my FB message on the post re dense breasts but anyway hope all goes well tomorrow! Everywhere else is expensive atm although it’s only money! xxx
Ps Christine Rim had a diep at the Marsden.
A quick note to wish you all the best for tomorrow Claire. I am sure all will go well, let us know how you are when you are up tonit. I will be thinking of you. X
Glad you are back on line Jean, thought you were a bit quiet! Pleased your ribs are feeling better. Going to see your OH’s family sounds really exciting? Where do they live? I assume you have been before?
Training is going well but tough! Did a 9.6 mile yesterday and 8.5 today so sheltered now! Time for a roast and an evening in front of the fire! Tomorrow I need to do several lists on what to buy/pack etc. Busy busy xx
Wow Michelle I’m. Impressed with your training… I. Ant manage 2 mile walk without aches n pains playing up. Mighr have to bite the bullet and ring onc tomorrow for advice as getting myself. In state worrying about bones… Worry. Gremlin doing overtime…
Clare… All. The best for tomorrow… Will be thinking of you
KIP
Kip I hope I haven’t made you more worried. I was lucky in chemo that I didn’t get any aches but I know it is a common side effect. Also I am 2 months on from you where chemo is concerned. I know a few of them on my chemo thread had a lot of aches and I think still do. Speak to your onc but I’m sure this is just your body healing x
Wow India Jean! I’ve never been but it’s on my list! Everyone who I know that has been have lsaidnit is amazing. My in laws went last year and I think my parents are going this year (or maybe next) I can’t remember!
Forgot to say Claire I hope your daughter is doing ok too!
Hi Ladies,
Don’t worry Michelle you didn’t worry me more, I was just impressed with how well you are doing. I have tried ot call my Onc Nurse but she is away on holiday until Monday, not sure who to call now. Its so weird because I think I am thinking about the pain so much and poking around that its making it worse, I need to chill a bit and stop thinking about it and see what happens. I am sure chemo and Tamoixfen don’t help matters.
Feenix - meant to reply about the bras you got, at least you like the George one, its difficult isn’t it. I still have to arrange to be fitted for my prosthetic but am waiting until I feel up to it as quite happy with the KK at the moment. When are you going to India? That is exciting and something nice to look forward to. We’ve still got to arrange a summer holiday, I am finding it hard to book things in advance, another of the gremlins I’m dealign with at the moment, almost don’t want to jinx things. I have booked onto the Hope course but can’t get on until Feb so hoping that will help with things. Also have the lymph clinic on Friday so might ask some questions there to… .anyone who will listen!!
Oh well another day, but nice and sunny here, going to walk the dog this afternoon and see how the legs fair then!
Kip
xx
I hope you enjoyed your dog walk Kip, I’m sorry you are struggling with worries at the moment. I find it comes and goes, although never goes completely. I said a couple of days ago about believing my own hype and I think there is something to that. A friend of mine has rcommended a mindfulness book, I’ve never done it before but apparently there is scientific proof that you can change the neuro pathways by practicing it and therefore making your thoughts more positive. I’ve always thought of it as ‘the new in thing’ but it seems like it might actually help if done properly. I know the main problem is the fear of its return and no one can give us the guarantee we crave but if we can find ways of coping with that fear rather than it taking over our thoughts it has to be worth trying! Hope you are ok, big hug coming your way xx
Thanks Feenix and Michelle you are fab at cheering me on. I have heard of mindful Ness, there are aps aren’t there? Might give that a go. I agree that the demons come in waves, I was very happy n positive and then bamm. It takes over, but I think that seems par for the course. Just need to ride it out and believe my own hype.
India will be great Feenix flat or otherwise and I bet they wouldn’t even notice
Thanks ladies
Meant to say yes I think that’s the Hope course it’s over 6 weeks and split into different parts, mo ING forward, fears, etc
We are all here to help each each other as you have me many times x. I stupidly forgot to give you the name of the book that came highly recommended it’s called ‘Mindfulness a practical guide to finding peace in a frantic world.’ But I think you have to make the time for it, I heard a good analogy today for mindulfulness ‘you don’t get the 6 pack without the exercise!’
I haven’t heard of the Hope course, maybe we don’t have it in Wales? I am going to give the moving forward course a go. It’s tough isnt it? But plenty beforenus have got through it and I’m sure we will too.
I imagine when you stay with family you see more of real life and culture rather than all the tourist routes Jean. I’m sure it is very interesting and 5 weeks, not far off. We go in 4 weeks and yes I am getting nervous!
Have a good day, I’m just heading in to the physio got an ongoing hip injury from running! X
Bloomin ’ love you ladies…