I had my pre assessment for my WLE today - i’m first on the list next tuesday and suddenly feel very nervous.
I’ve also been shocked at how people react - i’ve only told close friends and family and feel i’m getting little support (apart from a couple of really close friends). A couple of friends i’ve emailed to say whats happening haven’t even replied (and i know they are on email all the time); my poor hubby doesn’t really know what to say but tries his best - i’m very lucky. Luckily my boss has been wonderful so thats one worry i don’t have.
Sorry to winge - just needed to get that out!!!
Lucy xxx
Hi lucy,
I hope i might be able to help u as im in a simular situation, as ive had surgery and treatment and now im booked to have my recon in Sept. Like u im feeling nervous and starting to panic, its quite isolating as people cant understand what is going through ur mind, thats why I find myself on here when I need advice.
I hope this helps and plz dont feel alone as we are all in this together and we will keep on fighting.
Take care and if u need to chat im here
Samina xxx
Hello Lucy,
So sorry you have had to join us here, but you have come to a very good place for support and will find lots of it here from all of the ladies on this site. You will probably find that lots of people will not know just what to say to you when they find out your dx. Being on here is good because we have all been at the stage you are at now, we have all been told we have bc at some stage, everyone has different types of dx but we all have bc in common and all support eachother. You can ask advice from people who have already been through the stage you are at now and when you feel like it you can have a good old moan if thats how you feel. We often have a laugh together about silly things and we are also a shoulder to cry on if that’s how you sometimes feel.
Keep in touch, I’m sure that you will soon make some friends on here who know just what your going through, as we have all been there.
Best Wishes
Isabelle xxx
Hi Lucy,
I had a WLE in early June and am now waiting for further surgery, RT and Tamoxifen.
I think that this whole experience is very isolating. When I was first diagnosed I said to a friend that I felt as though suddenly I was on the other side of the road from everyone I knew, even people I was really close to. Over the next few weeks I sometimes felt as though the other side of the road had become an island that was rapidly floating away, and that I didn’t know how to get back.
That feeling has eased a bit recently, partly I think because I have been having some counselling and also because I have forced the issue with some people and told them how I’d like them to engage with me (or in some cases not engage). Often I think people just don’t know what to say (even though, of course, just acknowledging that is better than nothing).
I have also found it really helpful to come on here.
I wish you all the best for next Tuesday.
x
Hi i had my WLE last week and removal of lymph nodes from under auxilla. if there are any questions that you need to ask please feel free as the information and the actual procedure are fresh in my mind.
Louise
Good luck with the surgery (I found it much easier than I had thought it would be). It is strange how some people react to your diagnosis- a lot don’t know what to say, or sometimes say things that can be quite cruel (like “is it because you had your children so late in life”). I think others just don’t mention it for fear of upsetting you, but are quite happy to talk about it if you bring the subject up. My husband took it far worse than me at first, but has got over the shock now, and has been a real rock for the most part.I have found that over time I’ve got more comfortable about talking about it (I used to start crying as soon as I mentioned it), and I know who listens well. I can even laugh about it now. This site is good too if you feel you want to get things off your chest without boring your friends with it.
Hiya, sorry to hear about your diagnosis. Waiting for your operation and then the results is a really hard time and it’s hard to feel as though people understand what you are going through. But on this forum we all honestly do know how you are feeling and you have done the right thing by reaching out for that support. You are not alone, sadly there are many of us, and we can all help each other. I have found that there are people I would always have thought would be there for me who have totally disappeared, but for all of those people there are also angel people who I didn’t really know before who have given me all sorts of emotional and practical support. I didn’t tell loads of people at first as it felt too private but when I started telling peolpe like school mums I was so surprised at where and when kindness strikes. Some people don’t know how to cope and there will be time to reflect on that but for now maybe just concentrate on those good people who are there for you whilst getting you through the hardest few weeks of your life. It’s their problem, not yours. Keep posting, vickiexxx
Thankyou so much for all your kind words - I’m quite overwhelmed by the support from you all and have made me feel so much better and less alone.
This time next week my op will be over! The consultant said either the Friday or Monday for the results so fingers crossed!!
Wishing all of you all the best with your treatments xxx