Surgery pathology result today. I can’t process this

[Jill1998]

Welcome to the forum @newtotheclub . Sounds like you are having a really tough time . As you can see other people on the forum have had similar experiences and hopefully they will be along soon to offer some advice and support . There’s always someone to talk to and off load to here so please post whenever you feel like you need to get stuff off your chest or need some support . Lots of us here who understand how scary this cancer is ,best wishes Jill x

[tinkerbell4]

Just wanted to say im in same boat as you and sending love, hugs and solidarity. I had surgery for a 28mm HR+ HER2- grade 2 mixed ductal and lobular lump with completely normal scans of axilla. The surgery histology was a huge 92mm mainly lobular, apparently they get big as they are like a web rather than a lump so go unnoticed and hard to see on scans. And 3 sentinel nodes all unexpectedly positive with macromets (though only just at 2.1, 2.3 and 2.5mm). I was absolutely devastated Had CT on Friday last week and still waiting for results but im petrified it will have already spread. I’ve really struggled with my mental health and had to start on anti anxiety medication as couldn’t eat or sleep. That has helped a little but I just feel like im stuck in an absolute living nightmare

[newtotheclub]

Bless you sending love - I know exactly how you are feeling Sleep has been non existent so feeling tired has reached a whole new level I think il get some help to sleep like you as anxiety and lack of sleep are no good at the best of times let alone going through this. I’m petrified of having a PET/CT scan (adding to my worry I know HER2+ is known to be aggressive ….though I’m told one of most responsive to new targeted treatment so I’m holding onto that ) but trying to tell myself at least they are covering all angles which is what you want. I’m praying that your scan comes back fine and I’m sure once you get a plan in place you’ll start to feel a bit better xx

[naughty_boob]

Welcome to the forum, a place you didn’t want to join but when you are here you will be supported.

I can understand how you are feeling as I am also HER2+ aswell as ER+ and had two tumours, on in each naughty boob at the same time. I am on a very friendly and supportive thread called HER2+ and need some buddies as our treatment can be long. There are others on there that are HEr2+ with lymph node involvement. Here is the thread if you wish to join.

HER2+ and need some buddies

I’m very envious of your Iceland trips @salbert and @carrie5 as I was planning to go there this year or early next year but had to rethink as husband decided he didn’t want to go, said it was too expensive and since then he has been unwell so perhaps not a bad thing and travel insurance might be a problem. So I thought perhaps an easy trip to Devon would be a good idea, still he doesn’t want to go! Well I’m not sitting around waiting so I’ve booked a solo trip to Avignon and Aix an Provence in…

If you are having chemo, you may want to join the monthly chemo threads. I joined two as I was having chemo first, then that changed to surgery first. It was really supportive having others tarting chemo at the same time, sharing side effects and experiences. Supporting each other when things were going awry and our mental health wasn’t good.

This is the link for September starters

September 2026 chemo starters

This topic is for anyone starting chemo in September to share thoughts and feelings in a supportive environment. You can find more info on chemo on our pages: Chemotherapy for breast cancer | Breast Cancer Now

• Someone Like Me: Will match you with a trained volunteer who’s had a similar experience to you. They’ll be a phone call or email away to answer your questions, offer support, or simply listen. Call on 0800 138 6551 or contact our email volunteers

You might also find it helpful to connect with Someone Like Me service. @tinkerbell4 you might also find this helpful linking to someone else with lobular cancer.

BCN Nurses are fabulous, here is their contact info.

• Helpline: 0808 800 6000 (Mon-Fri 9am-4pm; Sat 9am-1pm). Speak to our trained helpline team. No questions are too big or too small.

• Ask Our Nurses: You can message our nurses here on the forum, or confidentially. Whatever you prefer.

Take care and please keep sharing.

[derry1]

I am just reading/re-reading the many supportive and kind replies here and it’s helping all over again in these quiet moments when I have too much time to ruminate.

I had my CT on Monday. MDT was yesterday. For anyone who has had findings that were suspicious or needed further investigation following CT - how quickly were you told if this? I simply don’t have the nerve to call my BCN to ask about the report. I don’t think I could cope with a vague/ominous response!

My initial oncology appointment is next week. It seems very drawn out if further tests are needed but this wouldn’t be arranged until I have seen them

[titch1]

@derry1 hi this group of people are amazing I only joined in July after finding out stage 3 HER2 like yourself had the extra scans my BCN phoned as soon as she had updates don’t be afraid to ring them no matter what your question they are really helpful and will find out if they can’t. And as I say this group is so helpful I had a scare at my first chemo and the support and messages have really helped hearing from people who have gone through similar xxxx

[derry1]

I am just coming back to update. I saw my oncologist yesterday and the scan was clear! Feeling so relieved and that I can now focus on getting through the next step - Chemotherapy. Thank you again for the huge hand hold during this phase.

[linz1314]

Ah amazing news what a relief! Onwards we go things will be moving now you have a plan in action. You have any questions or concerns just reach out x

[titch1]

@derry1 really made up for you next step xx

[naughty_boob]

Great news