Hazel,sorry to hear about the new lumps,fingers crossed your onc/rads can sort you out.
Dot
xxx
Also sorry about the new lumps Hayz and hope the discomfort can be sorted out for you soon. Thinking of you too Scaryfox and hope the Xeloda works some wonders for you.
xxx
Hey
Well that’s my rads postponed for a few months & as soon as I can get my dodgey wisdom tooth out I’ll be starting Xeloda.
Not sure why I’m so upset, cause I’ve been expecting it & I’m relieved that they’re finally doing something…but I think knowing that that’s me on chemo for life is gonna take some getting used to.
Fingers crossed ladies that chemo kills the nasties!!
Love to all
Hxxx
Sorry to hear this Hayz… I was thinking of you today, know what you mean re chemo for life… I feel kind of a grief for my old (fully functional body). I’m only 37 and it just feels too young to have to accept this.
Fingers crossed indeed. There seem to be lots of positive stories re Xeloda… let’s hope we’re two more! I’m too afraid to research the negatives, just gonna put my faith in it and do all the complementary stuff I can as well. Was feeling very rough last couple of days but just had my weekly accupuncture which seems to work wonders for side effects & my autoimmune symptoms, wish i could afford it every day!
Thank you for your kind words Twinmummy - how are things going your end?
xx
I’m the same Scaryfox!
I’m only just 36 & can’t even get myself up off the couch let alone keep a house & 3 kids going right now.
I’m so hoping that the pains ease once the treatment starts!
Have you had any nausea with the xeloda? That’s my biggest fear…feeling as bad as I did with FEC!
Hxxx
Well I’ve only done one cycle (2 weeks) so far, but absolutely no nausea or tummy probs (yet!) I was very worried about that too…
I do have sore tingly hands but am slapping on the cream and using cotton gloves to protect them from housework stuff etc… will let you know how it goes! Blood tests tomorrow to see if I’m able to start 2nd cycle on Sat.
3 kids must be hard! I can’t even look after my one (though that’s more from the dermamyositis than the chemo/cancer), but hubby, friends, health visitor, macmillan etc all chipping in and helping thankfully…
When’s the tooth coming out? x
Good Luck with the bloods tomorrow…I’d say I’ll be thinking of you, but to be perfectly honest I’ll be trying to scrape myself off the ceiling & into the dentists chair to have this damned tooth out!
…and my Mum chose today to tell me about the nightmare time my Granny had getting her wisdom tooth out…had to slit her gum apparantly & they still couldn’t get it to budge!! OMG!! I could hear my Dad dunting her in the background & telling her to shut up!! LOL…not quite the pep talk someone with a fear of all things dental needs!! I had her on speakerphone & my 10 year old couldn’t move for laughing!!
Anyway, I’ll nip back on tomorrow…if I’m conscious…to see how you get on.
…you need to set yourself up with a facebook so we can get in touch on there. That’s much easier on my iPhone to type on…I find this difficult!..blame the chemo brain! ;o)
Take Care
Hxx
PS - Twinmummy & Smiley275 How are things with you? Hope your treatment is being kind to you! xx
Hi Hayz, Scaryfox and all
Had 2nd docetaxel last Monday and feeling pretty tired and rough. The worst thing is actually the disgusting taste in mouth - am eating and drinking more to try and get rid of it but that doesn’t help and just means am gaining weight…Left knee also quite sore if I walk too far -onc says its referred pain from the secondaries in the pelvis. On the whole though still grateful that am not nauseous and am trying to make sure I do rest when my body tells me.
On the positive note, am really proud of the kids right now. I had feared that the whole business might affect their behaviour at school but they are doing great and are being really thoughtful. The youngest (by 2 minutes!) even dashed out and got the washing off the line yesterday, completely unbidden, when it had begun to pour. He has just learnt to make a cup of tea (with me hovering over watching like a hawk) and just loves doing it so I am forever being asked if I would like a cup of tea - just a shame I can’t stand the stuff at the moment!!
Anyway hope you ladies are all having a good day.
xx
Hey Twinmummy
Great to hear from you!
I don’t use the forums so much now…I keep up to date with scaryfox on facebook…saves me reading stuff on here that scares the life out of me!!
I’ve prob said before, but I had 4 Tax for my primary & the furry gooey mouth is just horrible! I was the same…eat, eat, eating to try & get rid of the yeuch & to try to find something I could actually taste!! I pretty much stayed in bed around day 3 & 4 & slept thru most of the SE’s…I was relatively lucky with it all & just really had fatigue & some palpatations. Gabapentin seemed to take care of any bone pains.
I put on such a lot of weight during my 8 cycles of chemo tho, but it’s all gone now thanks to my pnemonia, wisdom tooth removal & the lack of appetite SE from Cabecitabine!..not ideal…but it’s worked! lol
Isn’t fantastic how resilient our kids can be? My 6 year old has given me his fav toy to cuddle in bed…it makes him sleep well & if he’s ill it makes him feel better…he said it should work for me too! Bless him…he did make me cry! :o)
My little girl just wishes I wouldn’t cry so much (she’s 3)…I’m trying really hard, but she’s just such a caring wee soul & she says the sweetest things & just sets me off!..my 10 year old on the other hand does worry me a bit. I’m never too sure how he’s coping with the whole thing. I see the worry in his wee eyes when I’m in pain & when he’s out with his friends he calls me a lot to check I’m ok…should it not be me checking up on him?? lol
Hxxx
Hi twinmummy!
Sorry to hear about the grim tax side effects… But lovely the kids are being great - my little one has had his moments too, opening envelopes and bringing me water, my fingers are knackered from the xeloda and my other condition, so he is coming in very handy!
Are you on Facebook too?
Hayz, Sorry to hear you’ve been crying lots, I’ve done my fair share as well but think it’s good to let it out. I am reading a good book at the mo, ‘Love, Medicine and Miracles’ by Bernie Siegel (a surgeon) - I am only halfway through but it’s excellent, has helped me have more hope for the future! Was recommended by a bc survivor…
Take care both x