Hi
just wondered if any of my fellow tact2ers are still on this site and how you are? I have often searched to see if any results have been published on our trial and found nothing. Suddenly this week the research trial nurse rang me for some final details and said the report should be out at the end of the year and they just need final details. They wanted to know if my periods restarted after the chemo.
I was on arm one the 28 week chemo of e/cmf or the marathon as I used to call it.
Anyone else had any news?
Lily
Hi Lily,
Another fellow tact2er here! i havent heard any news yet re any results of the Tact2 Trial,but like you am waiting anxiously to get an update,i dont see my trial nurse again untill Sept so hopefully they may know something more by then.
I was on arm 4 of the trial, Accelerated (2 Weekly Chemo)4 x Epi + 4 x Xeloda, i found the 2 weekly hard going as didnt seem to get a good week,But… if it works will be worth it!
Il let you know if i hear any news,if you could do likewise that would be great.
All the best
Linda x
I was on the tact 2 trial and was on arm 4. Epi every 2 weeks was awful but xeloda not so bad. No recurrence after 3 years - so far. i saw the research trial nurse in January at my last check up.
Rachy xx
Hi Lily
Another Tact 2 girl here.
Like you I am waiting for the update. When I spoke to my research nurse last September, he said that the interim report would be with the hospital in six months but also said that we wouldn’t have the data for quite a while.
I’m doing well and trying to wean myself off these boards (obviously not doing a very good job).
The sword is still dangling though.
Mal
Hi,
thanks for responding and I wish you all the best of luck for the future. I just got clear 3 year mammos too, which is always a relief when the results come in. I am wondering how I will feel if the results come down strongly in favour of one of the groups. I got the standard control group and it was a bit of a decision whether to take that or have FEC as is standard in my area. In fact no-one I know had e/cmf thats why I came online and found some great friends here and they still are.The research nurse convinced me by telling me that there was a very high epi dose on the trial and how important that drug seemed to be. Oh well, all over to fate and the computer that chose my chemo I guess!!! Hoping we all hear some good news
Lily
Hi I was on the tact 2 trial but can’t remember which leg - I had FEC then Xeloda I think. Have been filling in the forms etc and the trials nurse catches up with me regularly (sometimes even when I go to the hospital for checks on my kidneys - they found I had a totally unrelated kidney disease whilst scanning me for the cancer) but I haven’t heard anything about findings yet.I am very well and will be having my 3 year check shortly. Glad to hear that you are all well too. x
Hi
I too was on the Tact 2 trial at southend in essex. Dr T Oncologist. 2 x weekly Epi then CMF. with the injection. cannot remember what arm I was on. Still here NAD although have a small lump on reconstruction and back to breast clinic on 3rd Jan 2012!!
Still taking Aromasin daily. Hope everyone is doing well would love to hear from others on the same trial.
Love to all you Ladies and Gents
Take care
Tracey xx
Hi
I was on arm 3 of the trial, starting in Nov 2006. I was on Epirubicin 3 weekly then Xeloda on a 3 weekly cycle. I was triple negative so did not take hormone therapy, so my treatment finished 4 1/2 years ago. At my 5 year checkup in November, the research nurse said she had all the information she needed from me, but that the results would be a while yet as I was recruited near the beginning and there are ladies who have not yet reached their 5 year mark. I do hope that there is some continuation of the data collection to 10 years or beyond as I am sure that if there are differences in efficacy, that it will become clearer as time progresses.
Lets hope the trial progresses knowledge about treatments for the ladies who follow us
Liz
Hi,
I was signed up towards then end so will not reach 5 years until April 2013, so I guess I am one of the stragglers Liz 
Holly it sounds like you were right at the end then. Tracey arm one and 2 were e/cmf but arm 1 was 28 weeks (my marathon treatment!) and arm was part accelerated so ended slightly quicker, if that helps.I hope you get on ok with your appointment next week, fingers crossed for you.
I had epi every 3 weeks and cmf twice in every 4 weeks. I was told I would be trcaked for life and this would keep informing them on chemos.It is a stage 3 trial so looking into much finer detail at trying to up survival rates and also at the effect of living with side effects.
Keep in touch if you hear anything
Lily x
Hi Sasha great to see message from someone who had been there a few year ago. I live in West Country and was not aware of any trial for Triple Negative. I am over 60. Diagnosed Grade 3 Stage 3 in May 2010 Treatment finished 22 Dec. Since I can’t take any hormone treatment what is the best advice to get to 5years. I have not met anyone middle aged with TNBC. I had lumpectomy, chemo FECx6 then radio for 3 weeks.
Good luck
B x
Hi B
The Tact2 trial was open to both hormone positive and negative ladies with ‘early’ breast cancer. It did feel hard ending treatment after chemo (I didnt have radiotherapy as I had a mastectomy and my nodes were all clear) when friends I had met along the way still had 5 years of hormone therapy to go. I was 51 when my treatment finished and I guess I hope that I have reached the 5 year mark by trying to live a healthy life and trusting in the medical team looking after me. I hope your treatment proves to be effective for you.
Liz
Hi
Went back early January with lump on recon left side. Nothing important or so I am led to believe. Scar tissue. Was thrilled as you can imagine. So Back to Onc in March and Mammogram in May still on 6 monthly checkups and although nearly six years on apparently hormone therapy normally stop after five years they have decided in their wisdom to continue with it. I don’t mind as I feel its like my comfort blanket in a way, will update you in march as they may decide to stop Aromasin.
Have any others past five years still take their hormone therapy daily??? would be interested to hear.
Take Care
Tracey xx