After five years on tamoxifen, during which I really struggled, I have developed four tumours. I had two and a half years off, then four tumours, 27, 20, 10 & 6mm. After double mx, SNE, all I am being offered as treatment is more tamoxifen. Tumours are grade2 ER+ PR+. Some tumours occult, didn’t image. I have had five years on already and was refused longer as it was dangerous to stay on it, now it seems all there is to offer me. Anyone out there on it longer than 5 years…?
Hi Post,
While you are waiting for replies from your fellow forum users, could I suggest you give our helpline team here a ring. Calls are free 0808 800 6000, lines open Mon-Fri 9-5 and Sat 10-2.
Take care,
Jo, Facilitator