tamoxifen and digestive problems

Thank you all who have posted on this forum. It has helped me understand what may be going on with my stomach. I have been on Tamoxifen for over 5 years after having Stage 3 B.C. and just recently quit when I started experiencing bloating and gas thinking it may be a sign of Uterine cancer which runs in my family and is a risk of Tamoxifen. I have had an ultrasound and nothing is showing up but that did not ease my worry. And my symptoms seem to have gotten worse since going off Tamoxifen so now I wonder if I should try going back on because they suggested I stay on it for 10 years. I have no answers yet but thought I needed to post and add to the growing list of people who have this same complaint in hopes of educating the medical community and of course others who suffer. I’m definitely going to start with trying to get my gut healthy again using strong probiotics. Thank you again everyone!

YES! Very bad indigestion. The acid was coming up into my throat and it was bloody red. I am only taking 5mg now a day and feel better. 

Hi, I am on Tamoxifen and found that if taken before bed side effects are less severe . Less hot flashes, stomach problems etc. I hope this helps you. I also started taking a probiotic daily. Hugs  

I’ve suffered with IBS since I was 18 and it’s been under control for the last 15 years. I started Tamoxifen in March. I had loss of appetite, stomach cramps and diarrhoea. It got so bad I was dashing to the bathroom constantly. This came 8 weeks after swelling everywhere, oedema, joint pain, weight gain and headaches and meant I had no life and was scared to go out just in case… I’m now on a flush for 10 weeks. So I stopped taking it and 90% of my symptoms disappeared in 48 - 72 hours. I’m already on Ompeprazole following a cholecystectomy - I’m wondering if I can’t break it down the same because I have no gallbladder now or is it the bulking agents or is just the tamoxifen and the fact it’s exaggerating my menopause symptoms (my IBS is hormone linked). Waiting for options following bloods to see if I’m menopausal? 

I’m like you too. I had indigestion and it’s the same symptom. I feel so embarrassed and I suffer a lot. I have already consulted a doctor but nothing has changed. My cousin suggested I use this plant. I would like to try but I ask for your knowledge on this thing. is it true? THANKS

Honestly I thought I was going mad- have had terrible flare up of my up to now well managed IBS now I’m on month 4 of 5mgs Tamoxifen. Really bad and noxious gas later afternoon and evening, no matter what I’ve eaten, and irregular bowel movements with no feeling of relief. I literally take so much fibre already, have lost weight, workout and walk, bit I’m going to try acidophilus now as well as my regular probiotic. I’m lost and embarrassed- and my oncologist just suggested OTC Gas-X.