HI, I have been taking tamoxifen for 1 month and feel awful reading everyone’s comments has made me feel like it’s not me it is the tablets.
Thank you kindly
Take care
Not used tp bones popping with no effort.
Hi ladies
Rosielea I can relate to yr symptoms. Flushes, joint pain n stiffness but particularly the numb hands at night. I’ve been on tamoxifen for 2 years but for a few months now I have been waking in the morning with numbness in hands I also have a sore stiff neck.
I wonder how common this symptom is cos you are the first person I have heard of having it.
X
I had breast cancer surgery in 10/2014 and started Tamoxifen 1/ 2015. Due to severe hot flashes, leg, feet and hand cramps, I am attempting to stop taking it before it causes any long term damage. Does anyone have any information on natural pathe remedies that helps with the cramping?
I’m new to this forum - have tried to find out how to pm you , I’m from Woodlaithes near wickersley charlotte
Hi not posted in this forum before but looking for some help.
i started on tamoxifen in January this year and I can cope with the weight gain but I’m struggling with the muscle and joint pain. I’m like a 90 year old who has run a marathon and it seems to be getting worse. My knees and hands seem to be the worst but even pain killers don’t seem to help. Im taking gabapentin and also try dyhydrocodeine but nothing seems to help. Im OK if I’m on my feet and keep moving but as soon as I sit down the pain is really bad. I would appreciate hearing other people’s story and any advice X
Hi Lambo,have you tried different brands of Tamoxifen?Some people find the side effects are a lot worse on some than others .
I am the same can’t climb stairs keep falling over cant hold anything and to top it after me thinking I had gone through the change early as not had a period since last June when I had my second chemo I’ve now started to bleed and am so much pain I just want to cry I’m 41 with three young children and I feel like 90 plus the heart beat seems to go really high at times
Hi A, sorry you are having such a miserable time.you really should get checked out by Onc re bleed in particular , re the other symptoms there,may be something they can do to helpJill.
Thank you Jill I’m of to doc about bleeding and seeing my consultant next week I just want to feel me again I’m really struggling X
Hope you get it sorted,they may suggest you take a break from it for a few weeks to see how you feel.Have you tried experimenting with different brands ?
Thank goodness I have found this thread. My oncologist said that toxic em doesn’t cause joint pain but I’m in agony nearly all of the time. My feet hands and knees are the worse but also have problems with shoulders which feel like they have popped out sockets. I was a marathon runner before cancer, a keen hill walker and I can’t do any of this anymore. I’m miserable and really feel like stop taking the treatment and take my chances. I think back to the day I was diagnosed when the consultant said the treatment would have little impact on my life. 18 months later and my life has changed completely. Am forever I’ll with various infections and whilst I am not sitting around moping and trying to carry on as normal I hate that nothing is normal. Sorry for the moan - sounds like I am far from the only one
You too xx
Is being on tamoxifen hideous for you 24/7? I’m supposed to start soon but this puts me off. Is everything awful all the time? I thought chemo was hideous but the thought of tamoxifen feeling like on chemo for 5-10 years beginning to wonder if worth my bother at 38 if no quality of life til I’m around 50!! Are you able to work and go out the house at all?
I have been on tamoxifen for almost 3 yrs. Reading some of these stories of side effects are scary. But I am one of the few that has done gd on it so fa . Other than hot flashes,no major issues. Don’t go by what you hear, it may be different for you .
I have had major joint and feer pain and stiffness getting out of a chair. I hve been seeing a counseller who looks at the whole body and mind. She told me to drink 3 to 4 pints of water . First thing in the morning i have half a pint of water and then half an hour later another glass with lemon juice. After 2 -3 weeks I am pain free. No painful feet or getting out of bed like a 90 year old. I am honestly amazed at the difference it has made so i felt that I needed to share it. Xx
Rosieflower
Ditto everything ladybowler says except my brand is mylan.
Not quite mastered the constipation part yet without the help of lactulose but hope now rads finished and more hydrated things will improve. 
Hi Ladies,
I’m from US and I have a few questions about the side effects of Tamoxifen. I’m hoping that you will be able to help ease my crazy mind.
I’ve been on Tamoxifen for 3 1/2 years and the first side effect was thinning hair. My doctor told me that it wasn’t related to the meds. I have done a lot of reading and everything I’ve read supports hair loss. But, I also color my hair every 4 to 5 weeks, (I went gray very young). The thinning, although, I take 10,000 mg of Biotin daily and still apparent and now the texture of my hair has changed. I thought that it was from the color, but after talking with my hair stylist, I’m not sure. She said that the color will help to soften my hair, but that the more gray we cover and the meds will change the texture. She advised me to try a forum and ask my question(s). Do any of you professionally color your hair and have you experienced a change in the texture?
My hair loss is bothering me and my husband and I are thinking wigs…perhaps.
I also have Fibromyalgia and I experience body aches on a daily bases, so not sure which one is creating the pain. I took myself off those meds BC I have been on them for about 15 years and I’m not realy feeling any hep from them at this point. Just uncomfortable everyday.
Any insight, thoughts, suggestions will be greatly appreciated.
Thank You
MemaTerry
Hi Mema lots of conversations on this site about Tamoxifen and hair thinning ,if you search those key words you will bring them up .I have been on meds for 20 months and hair thinning has been quite noticeable and also my hair has become very coarse ,I have tried various shampoos but nothing helps significantly I’m afraid .Some ladies have been prescribed Regaine by GP may be worth looking into .
Also known as MINOXIDIL