Thanks for replying Katy…can’t be doing with waking at 4 it’s doing my head in!..
I’ve just been given Revlon. Not sure what previous ones were, have only been taking them for 6 weeks! Also getting Zoladex injections. so far I’ve not had any obvious side effects I was wondering if they tend to increase with time? Also I’m taking them presurgery to try and shrink my tumours, has anyone else had this, how long for and did it work?! Sorry to divert a bit from the original comment but any thoughts appreciated.
I have been on tamoxifen for 2years. Was on BP brand, not too many side effects,though I do have a lot of aches and pains that my doctor says is nothing to do with what tablets I`m on.Just got a new prescription and have been given Relon.
Will be interesting to see how everyone gets on with them.I have only had them for a couple of days.I dont sleep all through the night anyway.
Hi All,
Ive been on Relon for nealy 3 months now - I can’t remember the last time I slept all night! Usually wake at 3am for couple of hours. Also am suffering from joint pain - the worst places are my elbows and knees - really struggled to walk up and down the stairs today. I’m 51 and have always been fit but am struggling to play my sport at the moment due to my knee pain. Hot flushes at night too, but I can cope ok with them at the moment. I’ve not been on any other brand but will see if I can swap as walking like a 90 year old (no offence to 90 year olds) doesnt appeal to me just yet!!
KazzyK
I’ve been settled on APS/Teva Tamoxifen for several months, and the side effects have settled down, but now I’m being told that there’s a supply problem with that brand and they can only offer me Wockhardt. I had a lot more side effects with that brand, so I’ve been phoning round to find Teva brand instead. Previously I’ve fairly easily been able to track it down, but this time it was difficult. I finally found a pharmacy with some packs that had been ordered in specially for someone else who then moved.
Has anyone else been having this problem with getting Teva Tamoxifen? I really don’t want to take the Wockhardt version again.
My pharmacist told me that there is a nationwide shortage of Teva and that no one can get hold of it!! Hence after three months on Teva and little side effects I’ve now been put on Relon. After 10 days I am so depressed it’s unbelievable. I am sure it must be the tablets as I’ve never been depressed before in my life!
I am seriously considering whether to stop them (to make sure it IS them) before taking any further steps/brands.
Oh god don’t say that!? I cand take w at all I was bed ridden with it
when they stopped my aps and gave me the teva I asked them if I was going to go through side effects and then they would stop teva! They said that teva took over aps and there would be no supply problem!!!
Oh no, this doesn’t sound good! I’m dreading having to switch to another brand after I’ve finally got used to the Teva/APS version. I was even starting to sleep OK most nights on it. It took me a while on the Wockhardt stuff to realise what was wrong - major hot flushes, day and night when I previously only got them at night, and serious mood swings and getting tearful. I don’t want to go down that road again.
Can anyone tell us what the problem is with the supply of Teva Tamoxifen?
How do you know what brand you are taking as mine come in a plain white box??
I had very few SEs on APS, got swapped to Teva for the past 3 months - again no probs with SEs. Went to pick up my new lot yesterday and was told they couldn’t get Teva.
I’ve now got Wrockhart and and comtemplating them with trepidation…
I have not stopped the tablets and am now feeling my normal self again, so maybe I was too quick to blame the change in brand for my mood. Or, maybe I’ve just got used to them. Who knows?? But anyway I’m ok now.
Cathy - my tablets have always come in a coloured box with the brand name clearly visible. If you are getting a plain white box I suggest you ask your pharmacist which brand they are.
At last! Supplies of Teva/APS branded Tamoxifen have started trickling through. Couldn’t get the 20mg Teva stuff, but the pharmacist managed to track down some 10mg APS (which I noticed was manufactured 05/2011). Don’t know what the problem has been but I’m hoping this is a return to normal supplies available.
Cathy - my tablets have always come in a coloured box with the brand name clearly visible. If you are getting a plain white box I suggest you ask your pharmacist which brand they are.
ok will do Foxyferret - thank you 
x
Hi Everyone
I have had the same problem, my local chemist can’t get it and Boots advised that both their suppliers are being advised that there is a long term shortage from Teva. I was mortified by the prospect of taking W****t brand as the side effects were much more severe & OH had been advised that he is likely to get a screaming nutcase who may spontaneously combust for Christmas!
Anyway, my prescription says I must have a lactose free brand rather than Teva/APS (W****t has lactose in it) as this was the only way I could persuade my GP to avoid being given W****t. I took my latest prescription to S***brys and have been given RelonChem brand. This has far fewer extra ingredients than either of the others plus two that they don’t have.
I will keep you all posted on how I get on!
Happy Christmas everyone!
DaisyGirl xx
I can’t stand Wockhardt either. I end up with hot flushes constantly and sweat dripping down my face (not a good look). I had a repeat prescription arrangement with Boots and they had it on file that I had to have APS / Teva. However, last time I went in they could only get Wockhardt so they gave me the prescription to try elsewhere. Having tried 9 chemists on foot, I got on the phone and found one with Relon. The second day of taking it I had hot flushes (but these might have been related to the fact I’d had a diep reconstruction the day before) but after that no flushes and no problems.
Same here, I have allergic reaction with Wockhardt, get terrible hot flushes, all my veins get swollen and hard, you can see all of them on my legs as wells, I’m bleeding when I have bowels movements, all my muscles and joints are aching like mad I can hardly walk – I’m only 46!!! I hate that brand and can’t believe it’s still on the market. When are they going to do something about it??? It’s disgraceful not to recognise the issues with different brands of Tamoxifen
SwissAnnie, I get the same symptoms as you so maybe I should try a different brand? I am going to speak to my doctor x
merry Christmas to all x
Strange isn’t it, I was fine with Wockhardt and worse with several of the others which give me aches. Currently I’m off all of them because they gave me endometrial thickening which they are having to investigate. And believe it or not, SEs or not, as I’ve been on them two years of my planned 5, if it turns out to be nothing sinister, I’ll be back on them like a flash. It feels very scary “flying solo” without any treatment when I’m e+ 8/8 and p+ 8/8. The brands are bulked up with different things which agree or s disagree with different people, so I’d experimneil between the 4 or so different brands until you find the one which has least SEs for you xx
BTW, when I raised the matter of aching joints etc. being caused by Tam with my Specialist, they advised that this was probably down to the Menopause and not Tam as this was not a know SE and to go back to my GP for tests to see what else might be causing it. I think there are a lot of Ladies on here who would agree to differ but as our experiences are “anicdotal” no one recognises the reality.
DGxx
I agree Swiss Annie, it makes me really angry that they are happy to supply us with drugs that cause completely avoidable SEs and it is down to the few of us who are in the know to ask for something else. From what I can gather W***t is the cheapest on the market and so that is what is always dispensed. The number of E numbers in them is shocking!
I think it would be great if BCC was able to take this up on our behalf?
DGxx