Argghhhhh looked at all the other threads about this problem, but still don’t know what to do. Wish they just said ‘take this’. I have been feeling so positive up to this point because I have not had to contribute anything, just been told to ‘go here, have this done’ and I have been fine. Now feeling a bit uncertain.
Hi Nenya
Whilst you are waiting for the other users to reply with their knowledge you might find it helpful to talk things through with a member of staff on the BCC helpline. Here you are able to share your concerns with someone who will offer you a listening ear as well as emotional support and practical information. The number to call is 0808 800 6000 and lines are open weekdays 9 to 5pm and Saturday 10 to 2pm.
Best wishes Sam, BCC Facilitator
Hi.
I see onc tomorrow so my be asked to make a decision on what treatment too.
I’m 51 and post menopause so not expecting tamoxifen to be in the mix but any hormone treatment will be a whole new world to me.
(Having had bc 22 years ago much of this new one seems like deja vu… Though things are done very very differently now).
Sorry I can’t help.
J
Hi
Been reading through these threads as I am going to be starting hormone treatment soon, and like others I am already confused!
I was pre-menopausal before chemo, but no periods after first couple of cycles. I am 47 so not sure when menopause would have started normally - does anyone know whether that comes into the treatment equation?
I’m very worried about Tamoxifen - I’m already very overweight and have an axilliary blood clot that I am currently prescribed Fragmin for.
Emxx
Well they stuck me on tamoxifen. I did wonder why, but didn’t ask! Then thought it may well be cheaper.
Onc mentioned blood clots and asked if I am an active person. I replied that I need my rad treatment times arranged around pre booked Fri/Mon train travel to London to run the marathon on 26th April. She decided I was active.
I’m a little concerned about possible side effects on my running but can only give it a go for a while. BCN said not to start taking tamoxifen until radio starts (expecting that to be 20th April), I wonder if that was so side effects haven’t had change to kick in before the 26 miles??
4 weeks of normality then it’s back on the bc treadmill.
Hi. Don’t think its always the cost. I started with Arimidex,had Dexa scan to check bone density. I had osteoporosis in lower spine. I was changed to Tamoxifen because it is supposed to be kinder to the bones. I am post-menopausal too.
Hi M
Thank you for the info - I didn’t know they could do a bloodtest. Since I posted I have seen onc and she said she understood my concerns and I could go on Tamoxifen or Letrozole, although if I go on Letrozole I either have to have monthly injections to chemically induce menopause or have my ovaries removed. She seemed to think that was a fair enough option but it seems a bit drastic to me! Plus from what I have read Letrozole can be less effective when you are very overweight.
I’m still undecided, but leaning towards Tamoxifen I think.
Emxx