Hi. I wonder if those of you have who have had S/Es from tamoxifen would mind telling me how long it was before they started please? Many thanks.
hi Strudel,
I’m not much help on this really, as being peri-menopausal, I was getting symtoms of hot flushes anyway & have not noticed any other undue symptoms.
One thing that has changed is that I dont get any cyclical breast tenderness any more, that ended when starting tamox, so hopefully it’s working!
ann x
Hi strudel
i started tamoxifen about a year ago and for the first two months was fine. I now have terrible hot flushes, fatigue, sleep problems and joint pain. I’ve tried taking it in the morning and taking it at night but it didn’t help. I’ve tried the lady magnet but it didn’t work.
I had reconstruction in November 2016 and had yo stop taking tamoxifen a week before the op, didn’t take it the week I was in hospital or the week after when I was home. I didn’t have a single hot flush or any joint pain, sleeping issues for those 3 weeks. Once I started taking it again they all came back within days. My hot flushes are awful, I can swing from freezing to red hot and back to freezing within 10 mins. At night I can’t sleep as too hot, then too cold it’s getting unbearable as I am so tired.
Any suggestions of what other people have tried, I would be glad to try x
Hi strudel
i started taking tamoxifen a year ago and was ok for first few months then started with hot flushes, joint pain, disturbed sleep, fatigue. It’s unbearable, I’ve tried taking it in the morning and the evening and there is no change for me. I’ve tried the lady magnet too but it didn’t work.
Istopped taking tamoxifen for 3 weeks be ause I had reconstruction and in those three weeks I had no problems, slept great and no flushes.
if anyone has any suggestions of what they have tried I will gladly give it a go xx
Hi Strudel, I believe I was on tamox for about two years as part of a double blind trial with letro…I used to get bleeding pv, which stopped when I came off it…apparently it can thicken the uterous lining, so they gave me regular ultrasounds whilst I was on it…am post meno and had no other symptoms.
hope that helps,
Moijanxx
Oh, and strudel, it didnt happen all the time and was only a kind of spotting…,but they like to monitor that if it happens.
Mx
Hi Strufel
ive been taking Tamoxifen for two weeks - and have had the “personal summers” (whoopi Golberg’s terminology!) for the last couple of nights. I’m in the middle of radiotherapy and had my review today. Was told that T settles down after 3 months and some people have min SEs - fingers crossed I’m one of them!
Arly x