Hi I will post here and under my April monthly thread.
I will have my third fec next week and I then start tax in three weeks after that.
I have started to read up on the side effects of tax. I’m also concerned over the overall way I will feel on the changeover week. Seeing what advice anyone who has gone through this can help with. Also for those like me who will go through this what advice if anything they have been advised by BCN or oncologist
I am generally fairing well on fec although the cumulative affects such as ongoing tiredness and yuck mouth now seem to hang around. I am working 1 week in 3. Wondering if I will still manage this on tax.
Hi Books
I have had my 3rd FEC and like you will be chaning to Tax and herceptin on the 21st May…feeling anxious. Lets hope the jpurney isn’t too tough for us xx I will be slightly ahead of you so will post…
Books and Donna I too am wondering how Tax treatment will affect me. FEC 3 is next Monday and I think tiredness is increasing. Hope to exchange info about impact of Tax as we get into it.
Hi ladies, just popped over from december angels to share my experience on tax. I had 4 treatments after 2 fec and had the following se’s
joint and muscle pain in lower back,legs and sternum - i had lots of hot baths took paracetamol and used hot water bottles to ease this.
Constipation followed by tax trots (lol)- get lactulose from gp for constipation - it works
slimy mouth with no taste- i was told by chemo nurse to rinse 4 times a day with dilution of bicarbonate of soda and i also used mouthwash regularly.
I had also heard to use dark nail polish but chemo nurses to me not to as that could mask any infections growing under nail so i didnt bother and just moisturised. My last treatment finished on 21st march and I have not lost any nails although they are yellow looking.
On a positive note there is no nausea or sickness.
Not everyone suffers from these se’s and I have read comments that some ladies got through tax better than fec. It is perfectly do-able just take plenty of rest and accept help when offered.
Take care ladies and wishing you all a speedy recovery and hope ses are minimal.
Wyn x
Thanks Wyn much appreciated
Hi alI, i am also on April monthly chemo with books and wine. I have one more FEC next Thur then go onto tax also. Will be interesting to know what the inevitable will be! I spoke to a girl last wkend & her experience with tax was that she felt fine for the first few days then it hit her & she said it felt like she had flu. No sickness or nausea. Pins & needles in fingers so hard to do things up & lost her lashes & brows.
Books and wine - the cream you mentioned is good. My mum found it out for me & I got some from a health food shop a few wks ago. The one I have is called Moogoo skin milk udder cream - sounds funny I know! It was 8 pounds & is an all rounder (was recommended by the man in the shop as there are lots of other types for different skin conditions & there is a scalp one also but was told this one will do everything!). It does hydrate the skin really well & ive always suffered with really dry,cracked hands which bleed so will defo keep on top of it with this stuff! Xxx
Hi being a little bit daft, what is fec?
I am 35 had 4 FEC and waiting for T on 22nd May, think we should try not to worry too much just look advice and get stocks of good creams etc to be as prepared as possible I have managed to work 1.5 in every 3 on FEC but if we need to rest more we just need to listen to our bodies, onc told me should not feel so sick on T but that’s all they have said until pre assessment Tuesday take care lindsey ?
Lets not focus on the sledgehammer part lol, I’m in south west at taunton hospital where are you?
There seems to be conflicting advice about using dark nail polish to protect nails on TAX. In my hospital one chemo nurse said absolutely not and I should even use clear. Another volunteered that her patients who had used it finished up with better nails. But when asked said there was no hospital policy on this. Can anyone else help on this. In particular does anyone know of any research.
Me again no the search continues I will see my BCN next week will ask and main oncologist slso. Might try the breastcare help line
I plan to keep hands cold frozen gloves and at this stage dark nails. C
Hi Ladies,
I hope all of you will get thru this as easy as possible. My mom just had Tax on Wendsday , the following days she was great, than on Saturday and Sunday she left very weak and muscle pain all over. She can barely stand/ walk , her back hurts, her feet are red. Can someone please tell me , how long will this muscle pain last on her, her next chemo is in 2 weeks. Will this last only for couple a days or longer.
How can i make her feel better, can i message her? Please if any of you could guide me somehow, its very hard to see her suffer that way. Right now shes sleeping , i am praying that tomorrow she will feel better.
I will appreciate any of your adivice,
Best of luck to all of you.
Hi Ninathedaughter
Patients’ experiences of chemotherapy are very wide-ranging so unfortunately it will be impossible for anyone to advise on how long your mother’s side-effects might last.
Hopefully she will feel better very very soon.
Wishing you and you mother all the best.
Hello everyone and good luck to you all. I’m new to contributing to the forum but have been reading different threads for some while now. I’m on my 2nd TAX (following 3 FECs) and wondered if anyone has come across what I’ve been suffering from for over 4 days now sine having chemo a week ago - excruciating abdominal pain that seems to come on overnight and at least once during the day? It lasts for about 30 mins until I take paracetamol and hold a hot water bottle. I’ve also got the most disgusting taste in my mouth (much worse than before) which is having an effect on eating. I’ve currently lost 3 stone since treatment started in February, so don’t think I should be losing any more. I am trying to stay positive but it seems to be getting harder as each chemo goes past. Sorry if I sound like the voice of doom but it would be lovely to hear from someone else who’s going through the same as this is such an isolating experience.
Pinkypie at this stage I can’t relate as I start tax in June but I wanted to let you know I empathise Take care
I had my first Tax Thursday (15th May) and I felt fine up until Sunday night, then I started to feel really bloated and constipated and uncomfortable - bit more achey than normal too (Had 3 lots of FEC before this) - I did take a constipation tablet Monday night to try and help and since then I’ve not been able to keep anything in me! I did relent and have an Immodium last night (weds) but I didn’t really want to in case it gets “blocked up” again. Also got that vile taste in my mouth, to me it tastes like old milk, and it feels like I have a light white coating all over my tounge along with ulcers - but I have some mouthwash from the Dr which I use, although it doesn’t seem to make a huge deal of difference anymore.
Also noticed my fingernails feel quite “tight” and they ache as well, I’ve got them painted dark as per my oncologists recomendation and also just bought some Udderly Smooth for my hands as they feel as though they’re burnt in the joint between my thumb and forefinger, and on my wrist.
All in all, my experience of Tax so far is really not good, still got 2 more to go as well, which I’m not looking forward to!!
Betty Just to say ouch you have really been hit each way with tax. I hope your starting to feel better now. My first is 3. June. All the best to you
Debs hope your well and tax is ok for you mine is Tuesday
Hi
I had my 1st of 3 Tax last Thursday and at first thought wow this isn’t as bad as the FEC. However by Sunday evening I started to ache all over including my finger nails. I have had to take regular parecetamol and for a couple of hours get a bit of relief from it all. With pain in my finger nails it is difficult to carry out simple tasks like getting the parecetamol out of the blister packs. Also as a diabetic checking my blood glucose just adds to the discomfort in my fingers. Hope this isn’t going to last for too long.
New to this forum so hello to all. I am just going to start treatment for triple negative after surgery. Going to have FEC and Taxol every week for 9 weeks is this the correct thread to read through?