Hi all !
My name is Moira.
I am new to this forum.
I am recently diagnosed lobular (May)secondaries spread to ovaries , peritoneum bowel and bones .
Originally for 1.5 weeks I had Ibrance but my kidneys blocked x 2 operations and I became very unwell so things escalated. Now as a matter of urgency I am on weekly Taxol to shrink all tumours ! Has any one else had good results from Taxol to slow things down and get me some quality time and normality which is proving difficult at the moment ! Thank you for any responses .
Hi Moria, welcome but sorry you have to join us on the secondaries part of the forum, somewhere that none of us want to be.
It seems the current thoughts (or from what I’ve seen over the past year or so since they were first approved by NICE) that most oncologists start off with a ‘gentler’ regime of one of the new inhibitor drugs and a hormone treatment whereas years ago (when I was 1st diagnosed with mets) it could have been chemo or a stand-alone hormone depending on the amount of spread. From what you’ve said about your mets I’d say that you would have probably started on a chemo to hit it hard. Therefore moving onto Taxol now (one of the chemos that would have been used) makes sense. It is a very effective chemo and many ladies with secondaries have had it, although not so many at present (and newly diagnosed because of the current usage of the inhibitor drugs). If you want to find out more about the side effects you can check out the chemotherapy part of the main forum, the SEs are the same for primary as well as secondary BC and lots of primary ladies have Taxol still. Some secondary ladies/gents have had it so you may get some answers on this part of the forum. I’ll try and find an old thread (as I said there’s not so many SBC People on it right now so it’s not very active) and move it up to the front pages of the section it’s in.
Good luck and I hope it works well for you with minimal side effects.
Nicky x
ps I tried to find a long Paclitaxel/Taxolthread with lots of info on it but couldn’t. There’s a few shorter ones which you could look at if you look through the pages of both sections in the Living with Secondary BCpart if this forum.
Hi
I have experience of both docetaxel & palictaxel. Diagnosed Dec 2012 de novo SBC with bone mets & nodal disease. Had docetaxel for 6 cycles in Nov 2014 when I had spread to liver, this treatment eliminated the liver mets. Oct 2016 liver mets returned, had eribulin for 23 cycles then paclitaxel for 28 weeks with no break. Didn’t bother with cold cap as I have a good range of turbans & wigs and quite like changing my look! After paclitaxel I moved on to epirubicin for 3 cycles & then capecitabine for 13 months. Progression in liver this month has found me back on docetaxel-apparently I can revisit it because I had such a good response the first time and wasn’t taken off it because of progression. This will be the 4th time I have lost my hair so getting used to that side effect!! Also I want to mention that I have also had tamoxifen, metronome & exemestane & 18 months on Herceptin & Kadcyla when I was thought to have reverted to HER2 + receptors - I have now gone back to HER2-. All in all, a lot of different treatments in nearly 8 years! I am so grateful to be still here & try & make the most of life albeit in lockdown at the moment.
Take care & I wish you all the best with your treatments.
Helen x