It certainly has been one of those days, just can’t stop crying and have not been like this at all on FEC. I’ve been having a heart to heart with my OH and he has just said to accept that I’m going to be like this for the next few weeks and stop trying to do everything. I’ve just been so used to having the treatment being a bit yukk for a couple of days and then just getting on as normal. To have to accept that I’m going to feel like this nearly the whole 3 weeks is really hard but I am going to get myself to the doctor’s on Mon if I don’t feel better as I am probably depressed - don’t know why I’ve suddenly just thought this but have honestly not felt it so far have just been dealing with it all.
A big cyber hug to you Dilys too and to everyone who is feeling sad today.
Am so sorry to hear that you are feeling so down and upset. I am still on FEC, 3rd one coming up Wednesday and then onto Tax after that. Reading all your posts has let me know what I can expect, and am dreading it. So you will all be sick of me soon, after 10 Oct when I start to join in.
Hope all you other ladies are doing OK and everything enjoying their weekends as best they can. Mine is OK, cept took my 3 yr old to a new dance/singing/drama thing this morning, sposed to be every Saturday, for 3 hours, and everytime I tried to leave she screamed the place down. So now got thumping headache, and when got home, my 10 month old had refused to eat anything for Grandad so had to feed him too. Thankfully he is now asleep and she is doing something noisey while I am on here!!
I did another post entitled ‘I need to talk to someone and everywhere is shut’ which really explains how I’m feeling today. It’s good to know that you have got a 3 year old as well (mine is 3 on 30th Sept and I’ve been upset that I’m going to be feeling terrible on his birthday as it co-incides with chemo no 6 treatment). How are you coping with a 10 month old as well - I don’t know how you can do it. I can hardly pick my son up he is so heavy and I’ve got no strength! We went to a local fete this morning and he had his face painted and looked so cute but then I got all horribly anxious about everyone looking at me with my scarf on and lack of eyebrows/eyelashes which spoilt it a bit!
Anyway I’ve told my hubby to get some ben & jerry’s or something nice to cheer us up as I think he is feeling down as well.
I am v.v.v.worried, having read all the posts about Taxotere…my Onc says ‘Oh - no worries you’ll be fine’ but I am sh*tting myself. I have done 3x FEC, not nice - was v.sick with 2nd one. Start 3 x Tax this friday. I guess I knew where I was with FEC - 4/5 days of feeling cr*p then alright for a couple of weeks. Don’t think Tax will be so forgiving somehow…
Jude - sorry you are feeling rubbish, hope it improves soon for you. It’s tough with kids I know - I have a 5 yr old and an 18mth old - def giving me the run around at the moment.
Dawn - will let you know how Tax is for me - you’re just behind me babe, can only hope as you were OK with FEC this will also be fine…
Yeah let me know how it goes. Got my 3rd FEC on Wednesday and then after that tax, so in 3 weeks time really.
Jude and Ali, I also understand how tough it is with kids, mine are slightly younger than Ali’s, as my daughter will be 4 in December and my little boy is 1 in November, they certainly keep me busy and never have moments peace, although Sophie is preschool every morning now and Jack sleeping!!! Hope you are feeling better today Jude, it is tough and sometimes it seems never ending all this crap we have to go through.
Hope Tax is OK for you Ali, will be keeping fingers crossed for us both. I have not suffered at all on FEC, although some have said that if you are good on one, you are bad on the other, so doesn’t bode well for me. But as everyone different, I am hoping will be OK.
If it helps the pains do seem to wear off after a while - it is the vile taste in the mouth that goes on and on. Goodness knows how those of you with young kids manage! I now have a snivelling cold, nothing to do with chemo, which is a right pain!
It’s 6.45 in the morning and I’m on here! Things have improved greatly - diazepan is a wonderful drug it relaxes you, gets rid of the anxiety and makes you talk non stop! I realise that I can’t take it all the time as it is addictive but I’ve got another prescription from the doctor so that I’ve got it as a back up if this happens again. I’m also arranging some counselling through my local FORCE centre which I am looking forward to. I’m also sleeping much better, although I did wake up ridiculously early this morning 5ish but I was asleep by 11 so that’s ok.
Ali/Dawn - this site can make you a bit worried when you read the posts on taxotere and I was absolutely sh**ting myself too. It won’t be easy but all the yukky things do pass, my horrible mouth only lasted about 3-4 days and I got through it. The tiredness is hard but you have to just go with it, just accept that you will have to lie on the couch/bed and do nothing - watch tv, go on the computer if you can manage it. Make arrangements so that someone else looks after your kids as you probably won’t be able to. For my next chemo I’ve arranged for my in-law to stay at a nearby hotel (can’t cope with them staying with me - too much) and they have agreed to take my son out both days on the weekend just to give us a break.
Thanks for advice Jude, although got Grandad staying, but he has been here now probably 6 out of 8 weeks since dx with liver mets, and it is now getting too much for me and I want my house back. He is at sissys right now, been there 2 nights, but back tonight. Want him to go home after tomorrows chemo session, last FEC, and then we will play it by ear for Tax on 10th Oct. Hubby gonna take 5 days off after first Tax and then see how we go. But my friends will help with my daughter after preschool (finishes at 11.30), so hopefully only have Jack to sort out really.
Am always tired anyway, think mixture of chemo, worry and obviously the little ones. So don’t think that will change too much.
Dilys I got a snivelling nose too, as have both my kids, so not much can do about that … hopefully won’t affect bloods and be ok for tomorrow.
Ali - hope you are OK and good luck for Friday with your first Tax (I think it is this week). Let me know how you get on.
I am due for my 3rd FEC tomorrow - if my bloods are okay as delayed a week. Then I am having 3 tax and 5 weeks radiotherapy and then Herceptin. It’s good to get your comments on how you feel as it gets you prepared for the side effects. I have been okay-ish on the FEC with side effects but not major one just feel yuk for few days with really bad indigestion and heartburn, metal mouth. Usually okay by day 8. I am worried how I will feel on the tax and dreading it.
As Friday’s Taxotere looms I am getting increasingly worried…i kind of knew where i was with FEC and now feel like I did before I had my first one - going into the unknown…also now worrying about hair loss again…I know most of you ladies already done this, but I have been having the cold cap with FEC and amazingly it has worked (sorry!!! not trying to rub it in honest) but now thinking I won’t be that lucky a second time…anyway my major worry is this tiredness/aching joints that everyone is talking about. I am rubbish at being ‘ill’ but do manage to stay out of the way for a day or two after the FEC. Does the tiredness/fatigue really last for the whole 3 weeks? That’s what is worrying me, that I will be out of action from now 'til end Nov…
I have my 3rd FEC tomorrow too - so good luck and be thinking about you. Hope we are both OK, I have been really lucky up to now, and starting to worry about the old tax, as read some horrid reports.
Good luck Ali for Friday, hopefully you will be fine.
Yet again I’m on here really early, keep waking at 6!
Ali/everyone else - the tiredness doesn’t last the whole 3 weeks, mine had started to ease a bit by about 2nd weekend afterwards (I had it on a Tue) and now 2 weeks later I am pretty much normal as regards being able to do stuff, I try not to overdo it but otherwise it’s ok. So try not to panic, I’ve not had achy limbs at all so not everyone gets that. The yukky mouth thing is hard to deal with but it is temporary (only lasted a few days with me from day 5). For me the worst thing of all of it was the total meltdown at the weekend - emotionally but again I’m feeling so much better now so that was only temporary too.