Terminal breast cancer survival jumps......'

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Hi all

Interesting little piece on the Times website today:

timesonline.co.uk/tol/life_and_style/health/article6843044.ece

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Hi S! Oh that’s interesting as it wasn’t the protocol to remove the primary tumour when I was diagnosed stage 4 in 2003. Might mention this to my Onc although part of me is thinking I’m doing well at the moment, nearly 6 years on so would it be wise to now press for op…? I do think if I was newly diagnosed stage 4 I would. Take Care…xx

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Thanks for posting the link.

I was dx’ed with bc and bone mets all in one hit just before last Xmas. My onc considered a mastectomy for me but then decided that my bone mets were too extensive. However, I had a really good response to chemo, huge shrinkage, and now I’m having five weeks of radiotherapy to the breast and nodes - she says to try and get rid of the whole primary tumour. This is the hope anyway but I have great faith in her so we’ll see …

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Hi – I’ve done a quick whiz around cyberspace to see if there’s more info – most of the papers have picked this up today, and here’s a link to a video of a press conference about the research: ecancermedicalscience.com/tv/?play=240&cid=0&scid=0&q=

Will try to find a link to the research paper itself.

Marilyn x

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Hi again – the abstract for this research, presented at the Joint ECCO 15 - 34TH ESMO Multidisciplinary Congress in Berlin today, is listed on ex2.excerptamedica.com/CIW-09ecco/index.cfm?fuseaction=CIS2002&hoofdnav=Search&content=zk.results_abs – it’s Abstract O-5005 towards the bottom of the page, but the site is busy and won’t open the page at the moment – will try later.
M x

p.s. lots of other papers about treatments for BC mets have been presented at this Congress

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Hi LesleyLP,

Do you mind me asking what chemotherapy you were on?
I was on Taxotere and Cyclophosphamide, initally it worked great, tumour shrank to practically nothing, but unfortunately it grew again when i Completed the 6th session. I’m so annoyed and now just want to have surgery, but i think my consultant wants to try more chemo, I’m so afraid in case it doesn’t work either!!

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I’ve also asked my onc about this study, and please bear in mind it is a small study. He says there are views either wasy at the moment, and he is not currently convinced. At the moment I am on Herceptin and it seems to be maintaining me at NED, which is great, so I hope at least I will have more time for there to be more convincing studies.

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Hi Nordy

My chemo was EC - Epirubicin and Cyclophosphamide - I’ve since had five weeks of rads which have hopefully shrunk the primary even more - my oncologist hopes it has gone completely, but I won’t know that for a while, have to let things settle for a few weeks before they can take an ultrasound of it.

Hope your next chemo works for you - there’s lots of different options out there to try

Lesley xx

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Bump for Snoogle

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