Thanks everyone for all the support & help I’ve got from you all over the last month.
One month ago I was oblivious to BC, and today I’ve had my second FEC, how life changes.
My good news is that my bone scan is clear! The relief was huge, and I feel that I finally know exactly what I’m dealing with.
My not so good news, is that my BC has been confirmed as Inflamatory BC, which makes things slightly more difficult, as (from my understanding) it’s more aggressive, more like to reoccur & more likely to metastasize.
The really good news though, is I can beat this!
Rebecca
How do they diagnose your IBC? I had some redness around my tumour area and the dr said I had some inflammation.
Best Wishes
Lee
Hi Lee
The diagnosis came from my core biopsy. My symptoms weren’t typical (no redness or swelling), but the mass grew very large very quickly which is another typical sign I think
Hope that helps, Rebecca
Hi Rebecca
I agree what a month can do in a lifetime, you 're on a new path now but as you say you will beat your cancer. I hope you are not too bad on the old FEC, summer is on its way so you should just about be over the worse by then.
Keep posting
Carol
hi rebecca
good luck with the chemo and treatment.it is good that u r being so positive about it all.
god bless
maria
Hi Rebecca,
Just spotted this post!
I was dx with IBC just over 2 years ago now, well coming towards 2 yrs 6 months actually.
Just want to wish you well with your treatment. A dx of of BC is a scary thing, add in the IBC and you could go a little crazy, no one would blame us!
I did have a local recurrence fairly quickly followed by skin mets along my mast scar line, very common with IBC, but these are currently under control.
I am back at work and have been since September and am doing well.
Take Care,
Jackie xxx
Rebecca
Sorry you have joined me at the IBC Club - I had my 6th chemo today - I cannot believe actually that I am already on my 6th - it has gone incredibly quickly really - I had 4 FEC, 1 Taxol which they have now changed to Taxotere. 2 more to go. I am having a double mastectomy so there is no chance of recurrence (so my Doc tells me!) and then rads. I asked today about the hols thing and in particular about the rads and he said that the rads would be 3 times one week, 2 times the next etc for 6 weeks. Much more intensive than I had thought and it would start 3 or 4 weeks after the op. At least it will all be over though more quickly - 9 weeks after the op I should be a free woman so to speak.
Best of luck and keep in touch
Penn1 xx
Hi rebecca
Just to let you know had op done and back home now.
how have you been.
lot os love
liz xxxxxxxxxxxx
Hi Liz
Glad to hear that you’re home, and hope things are going OK for you in getting over the surgery
I’m having a bit of a tough time at the moment, mainly because it appears the FEC wasn’t working. They’ve changed me to Taxotere, which is making me feel really awful, but hopefully it’ll do the trick
Hope we can meet up for coffee soon, it would be nice to chat properly
Love, Rebecca
Hi Rebecca
Sorry to hear you are having a bit of a tough time at the moment.
Well still very sore underthere and painful but i am putting up with it got to go back on the 21st to see what lies ahead chemo or rads or both of them.
hopefully i will be able to drive by then and we can make arrangements to met up after.
love
liz xxxxxxxxx