The wait is too long

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1

Good morning,

I have been diagnosed of Breast Cancer - IDC, Grade 2, ER8, PR4 Her2 -ive, FNA left axilla - LC5.

The wait in getting the above histology was/is ‘killing’. Biopsy was done in *July * , and the result was given exactly a month after. Repeat biopsies, CT, MRI, and bone scans have been done with no results or treatment plan yet.

This is October, I do not have an idea of the results of the investigations nor the proposed treatment plan. The ANXIETY is draining, and this is telling on my mental health.

Please, I would appreciate a consultation wherein I am told what is going on and what the treatment plan is.

Kindly help!!!

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Hi Topraise,
I absolutely agree with you, it is so stressful all the waiting for results, treatment or whatever.
This is my First post, I’ve been viewing the forums and taking comfort from reading the comments on here so firstly from me…a big Thank you all you fantastic people for your positive comments thoughts and support!!
I was called back to hospital following a routine mammogram in July had all the tests, biopsies etc, long story short…. 9.8 results ( super fast!!), DCIS 22mm intermediate grade 2. 1.9.23 had a lumpectomy and I think (?), some reconstruction but haven’t seen or spoken with consultant since then. Appointment came for 22.9 but was cancelled due to the consultant strike, rescheduled to 22.10. BCN felt that was too far away and it has b/fwd to 4.10…. Great!
Just had a call now to cancel my appointment again due to the strikes this week and I’m absolutely gutted. I hadn’t realised how much stress I must be feeling about getting my results… how do you all manage to function day to day.
I just need to know if they got all the cancer first time so that I can concentrate on moving towards the radiotherapy or if I need to go back in to have more surgery. Everything is overwhelming and scary!
Sorry, just upset by the hospital cancellation again!

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Hello topraise

Thank you for your post. It’s understandable that you’re having a difficult time mentally while you are waiting for a consultation to find out investigation results and your treatment plan. You can feel very anxious and overwhelmed at this time and find it difficult to cope with your diagnosis not knowing what is ahead of you.

I wonder if you have a breast care nurse who you can contact to be able to find out when your next consultation is.

We offer a range of free supportive services for anyone who has had a diagnosis of breast cancer which you may be interested in. They include face to face and online courses and events.

Talking to someone who has had a similar experience can often be helpful. Our Someone Like Me service can match you with a trained volunteer who’s had a similar experience to you. You can be in touch with your volunteer by phone or email for them to answer your questions, offer support or simply listen.

You can ring the Someone Like Me team on 0114 263 6490 or email them at someone.likeme@breastcancernow.org, so they can then match you to your volunteer.

You could also speak to your breast care nurse or GP about talking therapies to help you through this difficult time.

Macmillan cancer support offer counselling sessions for anyone treated with cancer.

You’re welcome to call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen to your concerns, talk things through and signpost you to more support and information. Your call will be confidential, and the number is free from UK landlines and all mobile networks. The number is 0808 800 6000, (Relay UK -prefix 18001).

If you would prefer one of our nurses to call you. To do this, please complete this form ticking the box agreeing to a call back.

Our usual opening hours are Monday to Friday 9am - 4pm and 9am -1pm on Saturday.

Out of hours you can leave a message and we will call you back when we next open.

Best wishes

Rosey

Breast Care Nurse

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