Today feels like a tough day, I was diagonised two weeks tomorrow, and I had targets, they wanted me to get the Manogram with contrast and MRI with contrast done last week with the aim of discussing my case at their weekly meeting yesterday. In my head thats what I had prepared for and then get my treatment plan tomorrow. But instead I heard today that the Radioligist hasnt gone through my MRI scans so it hasnt been decided if i need more biopsis, so i wasnt discussed yesterday, which means i now have to wait atleast another week, but if i need biopsis then that’ll be 2-3 weeks.
I like love having plans and im quite controlling of my life so it just feels like another moment of losing control. The waiting is just tough and the staring at the phone waiting for a call or an emailed appointment just puts me so on edge!
Everyone is right this bit is the hardest. I just want to have my full diagonises and treatment plan and know what the next step is to get this cancer out of my body!!
Hi . I totally agree its like your not in control of your life . Im waiting for radiotherapy appointments now an its more waiting. I totally know what you mean checking your phone and feeling on edge its worse than the treatment. Hope it helps knowing your not alone
Hi @tessie86 my diagnosis falls at the exact time as you. I had the dreaded MRI with dye two days ago and than had my treatment planning with the consultant earlier today. I think the reason they saw me so soon was because the MRI scan showed no new areas and the consultant has booked me in for a lumpectomy in two weeks time to be followed through with some radiotherapy.
Now that all this has happened it feels like everything’s moving so fast, to think that I was in the same place as you not so long ago it maybe premature for me to say this but I wish I stopped the worrying, I wish I bc could switch off right now! This illness takes life away from us and the moments we want to enjoy and live.
Please reassure yourself that the treatment plan will come sooner than you think, this is your time to connect with yourself. Be kind to yourself. Write your feelings down. Visit a friend. Bake that cake/dessert you wanted to try. It’s easy for me to say this, truth be told I say these things to life my own spirits. I’m going away to Paris tomorrow for a weekend break. I pushed myself to do this, am I as excited as I would have been pre BC diagnosis deffo no but am I doing this because I wnat to live the life I have deffo yes.
It all comes down to perspectives. I’m still working on that part myself, given our diagnosis timings were so close all I can say is no amount of worrying changes anything.
I hope you get that call soon, I hope it’s news you would like to hear, but most importantly I hope you do not let this diagnosis takeaway from you anymore than it already has done so.
We are all in this together. I’m sorry I a newbie so don’t have great advise to give but as a newcomer I’m always here.
Hi @tessie86 completely agree the waiting is the hardest.
I’m at such a similar stage- had my MRI last week after mammogram and original biopsies. Had an appointment today where thought would get the plan and in my head I can then organise life around treatment/surgery for myself and my young children, but instead was told needed further biopsies based on MRI results.
So another 2-3 weeks of waiting which is horrible but I keep reminding myself that they need to get all the right info to be able to treat this and have the best possible outcome.
I hope you get your results soon and can move forward- keep positive x
it does help knowing I am not alone, but also so sad that so many people are going through this. I am getting my treatment plan on Friday 3rd October and it is becoming a lot more real now!
Did they at the treatment plan have the date for your surgery there? No idea what to expect from it. Although feeling very nervous. I really hope I don’t need chemo but they hadn’t had a full result for the Her 2 Positive test so will be getting that result on Friday too.
Really sorry you are having to go through this too! Send hugs your way too ready for your surgery next week! xx
I am so sorry that you had to go in to be told that they still didn’t have answers for you, that sounds even more frustrating than me not having the appointment. I hope the next tests are taken quickly and the results are rushed through. I have got my appointment this Friday 3rd October, shall see what I am told, but feeling even more nervous that I thought I would. I guess this determines the next few months of my life and how it will affect it.
Sending lots of positive thoughts your way! xx
@tessie86 the waiting is just awful isn’t it! I had initial clinic appointment 15/08, then MRI then another follow up from that all spaced out with a couple of weeks in between which has been so hard! I finally have surgery date of 07/10 for single mastectomy and node clearance but still have no treatment plan following that, it’s really hard not knowing what the next months will bring! Xx
God, the waiting is torture. I was diagnosed with Stage 1 IDC ++ Her 2 - on September 24th. I feel it will be a date to never be forgotten.
The almost 3 weeks between diagnosis and surgery were tough. Then, on surgery week an MRI showed something in my right breast. So, there was talk of surgery being postponed. Not sure how I would have coped with another wait. On review, and an ultrasound, it was decided to go ahead with the lumpectomy, as most likely whatever was in the right would turn out benign (I still don’t have results on this, so am trying hard to not let it subsume my mental bandwidth!).
I almost skipped into hospital on surgery day. I just wanted the parasital alien out of me! So, now back to more waiting. I will have my post-op follow-up on November 5th, and am crossing everything (even my errant breasts!) that histology confirms rather than changes initial findings. Then, onto more waiting for a meeting with the oncologist.
I am a very keen runner, and am counting down the days to get back to it. I naughtily trotted up a hill yesterday, with no ill-effects and no discomfort. Walking back down it was a different story! Perhaps a tip for the runners here who are tentative on their first few runs back (find a long hill, jog up and walk down). In the meantime, I am spinning like a fiend.
