Hi all,
I have been reading this forum since 25th Feb when I was diagnosed with DCIS and IDC in right breast. At the time I was advised treatment plan was lumpectomy with SNB, followed by radio then hormone drug and chemo unlikely. Thats not so bad I thought, I can do that…silly me.
Op was planned for 13th March but had to be postponed to 20th because I came down with tummy bug the day before.
Op went ahead on 20th and surgeon advised 20% of women may need another operation if margins not clear. Thats farily low I thought, everything should be ok…silly me again.
SNB was positive so in same operation had axillary clearance. The first turn in the ‘journey’
Recovered well, did all the exercises and have good movement back in arm.
Follow up was yesterday and because of the positive SNB realised and accepted that this may change the unlikely need for chemo at the diagnoses to a possibility now.
I was half expecting another turn with the chemo but not the other turn that came up and hit me from behind…yes silly me again.
My margin was not clear and there were numerous little spots of DCIS throughout the margin and right to the edges. What was 11mm became 40mm.
With the extra turns treatment plan has now changed to mastectomy in a few weeks time (thats what hit me from behind), followed by 6 months of chemo, followed by radio and hormone, oh and a CT scan at some point.
Whilst I had half expected the chemo It never entered my head that a mastectomy would be on the cards.
I can accept the new treatment plan as I know that everything is being done to get me through this and reading this forum has certainly helped, having read numerous posts from many wonderful people.
Spent most of yesterday in shock and have cried a little this morning. I spoke to my boss at work who is very understanding and though I should be back at work from Monday he wants me to stay home because most people have colds at the moment. Though to be honest I dont know what to do. Part of me wants to go back to work because I miss everyone and part of me thinks I will just be a weepy wreck if I do.
Sorry its a long first post, just needed to get it all out.
Flutte