Thinking of coming of Tamoxifen

Hello, i too am getting realy down with the pain, and i now find it has caused thickening of my womb and stomach pain, as well as the joint pain, and i ache all over non stop…realy want to stop taking the Tamoxifen but been on it now 30 months and to think of having to carry on for the rest of the 5 yrs is realy getting me down…help please…and advice…Dawn.

Hi Dawn

There are ongoing threads talking about Tamoxifen and how people experience it.  If you take a look on that thread, you will probably get lots of answers to your question.

It sounds like you are really having a tough time of it at the moment, I hope your side affects ease and that you are able to get the support you are looking for.

Best wishes
Anna
Digital Community Officer

Hi Dawn, I’ve also been on Tamoxifen about the same amount of time and I’ve decided to stop for the time being due to awful pain in my knees, I’ve recently been diagnosed with the onset of arthritis but I think it’s more than that as both knees are awful and I’m really struggling , I’m going to stop for a month and take it from there, I was originally told I would be on them for 5 years then at my check up in April they said 10! ?? Not sure I’d be walking by then!! Xx Jo