This wait is killing me!

My word i hope they have made the right decision too! :pray:
It’s a real waiting game for you isn’t it! :disappointed:
So sorry!!!
and so i’m due to start 8 rounds of chemo then depending on MRI what surgery and also depending on the Gene testing i have next week! Then Radio.
So it’s a long year ahead as i’ll also be having immunotherapy for a year!
It’s all so overwhelming i don’t know which way to turn or what to do but this weekend me and my husband are going to let my girls know which i am absolutely terrified in doing! x

Ohh I feel for you I really do you’ve certainly a tough time ahead of you but I’m sure you’re gonna be strong & get through this with the amazing support of your family & friends.

I really hope your girls are alright when you tell them your sad news & that they’re of an age where they can understand & realise that great things can be done now for cancer sufferers

My best wishes to you
Stay strong!

Hi @slc1,

I’m so sorry to hear that you’re going through all this and I can hear how much it has been draining you emotionally and physically. I just wanted to say how proud I am of you for staying so strong and holding on despite it all. You’re doing great and I wish for you to have a speedy recovery! Everything will work out for you in the end and I’m sure you will get your life back and win this battle! You got this!

Sending lots of love!

Hi how did you find mastectomy and implant recovery I am having the same, hopefully get a date next week, very nervous about future treatment plan as I know it’s not going to be easy x as you say life as we know it is on hold right now

Hi there slc1, how are things going for you? I really hope telling your children wasn’t too traumatising for everybody

Cancer really is so cruel & telling our children is just the worst it really is.

Sending everybody out there a huge hug 🩷

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Hay
how are you???
So today i felt like i had my first win since this nightmare began!
a second Ultrasound was wanted to clarify a slight bit of swelling seen in my lympths on the MRI so on checking today they all appear clear!!!
i honestly felt like i won the lottery!!
I’ve been very mixed emotions and had quite a few breakdowns as the treatment start day getting closer and more tests requested it’s all felt too much!!
but today brings one positive and i’ve not cried today yayyy!!
And telling my girls was hard but my word they have been amazing and my 10 year has asked a few questions here and there but honestly they are just incredible!
How are u feeling?
how ur neck?
have u seen anyone about it or isit time for your CT?
Sending big hugs also!
xxxx

Hi,

I am feeling your pain, I am 38 and had quite a few cysts over the last 4 years. Went about a month ago thinking nothing of it and it would be another cysts. This time they found a suspicious lodger and took a biopsy via the aspirated needle.
2 weeks of hell waiting then told it’s come back benign but we’d like to see you again in 2 weeks. Went back on Tuesday for the scan, the doctor was extremely thorough and lovely, ended up having 4 biopsies taken and 4 markers put in my boob. Now I’ve got another 2 weeks of hell to wait for these results. Whilst i totally appreciate the doctor being upfront with me by saying although it came back benign he was told to go with what they were seeing on the ultrasound.

He showed me some cysts I have in the same boob which are perfectly round. Then he showed me the lump which is more long and spiked edges. It looks awful and angry.

I know they say don’t feel negative or anything but I’m am feeling more towards something negative just on my experience rather than be completely positive and be floored if it’s not good news.

Spoken to the husband who
Is supportive but there’s only so much you can say isn’t there. The not knowing is horrible I feel like I’m just always sighing of huffing and I’m getting irritated with everything and everyone. I just feel real fed up at the moment. So in short I get you and wish the weeks go quick for
You

Xx

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Hay i’m so sorry ur going through this! I’m only 35 and it’s just shit i really feel for you right now!!
This whole shitty experience was clouded by the worst part being the waiting and not knowing!
scan after scan! waiting after waiting!
and the amount of people who said oh bill be ok stay positive!
It’s very hard to stay positive at this stage!
What you can do is easier said than done but try and just be normal.
I would get very irritated by people and people were just being nice and it just wasn’t greatly received at the time!
but now i’m 2 cycles in i am more positive but i have no choice!
Life dealt me this shity card for a moment and we just have to deal and focus on our purpose!
I really hope you get good news :pray: and it sounds like they’re being very thorough! so that’s a positive!
Hope the next two weeks go as quick as they can and fill ur time and keep busy!
Good luck :kissing_heart: xx

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Oh Im sorry that you’re going through it. It’s rubbish, yeah it will be a week on Tuesday so just counting the days. X

Hi, I too am awaiting surgery and have had my cancerous lump since September. The first agonising wait was for a three week period for a breast cancer appointment. At this appointment they took biopsies, and nicked a blood vessel causing significant bleeding within my breast. In fairness they told me it was very probably cancer at this point. The next appointment a week later, I was told that my surgery would be delayed for a month because of the swelling in my breast, but that they were very sure it was an oestrogen receptor tumour. Then i got a phone call from the breast cancer nurse telling me it was an HER positive tumour. I am completely panic stricken, am losing weight, have lost appetite and can’t stop crying because all I can imagine is these aggressive cells multiplying fast and invading my lymph nodes while I wait for surgery. I totally understand how you are feeling.

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Totally relate to the awful waiting and worrying it’s just awful isn’t it but we will get to the other side x this forum has been so helpful for me to feel less alone x

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Hay and welcome to this group! super poo group to be in but we have all got each other for support!
I’m so sorry you’re now in limbo and having to wait longer and the biopsy issues my word what a nightmare!
So have they told you your plan following surgery treatment wise!
and honestly i completely understand how worries you must be the thought of it being aggressive and quick growing as i was the same! Being told i was triple negative and it’s aggressive and very quick growing it was terrifying and i was also not eating and sleeping! and my fear and i saw from each scan and could feel it was growing quick before i started chemo!
But i promise and i know it’s hard but as soon as u start and things start moving a few weeks in the grand scheme of things apparently really doesn’t matter! I struggled as i could feel it getting bigger and being left in limbo for weeks its torture!
But you have got this!! :muscle:t2: xxx

It’s so nice not that people are obviously going through this but this forum just makes us feel less alone i agree :kissing_heart:
Take care xxx

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Thank you all for your supportive comments. There are things i don’t understand about my treatment to date, I am being managed by a breast surgeon, and don’t know when i get to see an oncologist. So I take letrozole for a month, which I understood to be the standard treatment for ER pos tumours, but now that they have decided i am HER2Pos what good does the Letrozole do? Anybody know? This is so hard and you are all such brave people out there. I am having such difficulty redefining myself as somebody with cancer.

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Hay i’m so sorry i never replied!

i thought i did so i apologise.

How are you feeling now?

and sorry i can’t offer advice RE. letrazole :thinking: but i know the BC nurses are so willing to answer any questions!

I hope you’re ok and starting to navigate things! identifying as a cancer patient is not easy!

I’m currently about to start next week cycle 3 as this week i’ve had a delay as my bloods weren’t right :-1:t2: but i’m cold capping and my hair is hanging in there but but i feel as soon as i do which i pray i don’t :folded_hands: but if i loose it i think thats a big step into having to accept i’m a cancer patient!

Hope you ok and got more answers :folded_hands: xx

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