Thoughts on skipping hormone therapy

I am grateful of this discussion & feel somewhat less alone in my thoughts & feelings regarding hormone therapy - the team seem incredibly unwilling to discuss this with me.

I have felt absolutely horrendous since my treatment path & so much in my body has changed. I also have endometriosis & from everything I have read - tamoxifen has the potential to cause more problems here. X

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Dear countrysideaddict - I could have written your post exactly word for word!! I had a break for 8 weeks as, like you, the side effects of Letrozole were becoming unbearable. I tried the others and felt no better. Having decided better the devil you know, I went back onto Letrozole and second time around it really hasn’t been half so bad. I pinned my oncologist to the desk and asked what were my chances if I stopped altogether. The simplest way he said he could describe it was that if 20 people had the same cancer, stopped the letrozole, then in 5 years 3 of you would be dead. I don’t know if these comments help but please give it another go. I said if the symptoms are as bad again, I will stop and take my chances. Best hugs to you xx

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Hi Benji,

That scenario sounds like a much higher benefit for taking it for your situation - 15% increase in survival over 5 years - and probably would be worth trying again :thinking: Of course this doesn’t apply to everyone..

:pink_heart:

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Hi wizzer! Thank you for responding to my comment. You are absolutely right, we all respond to treatments in different ways. I should have said that the oncologist’s comment was specific to me. I would still encourage people to have a second bite if the cherry as I did and as I then found out, my body reacted in a totally different, and better, way. Had it not, I would have quit the AIs! Hugs to you. Gx

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@benji That’s great to know :blush:

Good luck with everything :heart:

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Hi benji - thank you so much for letting me know how it went for you. It is encouraging to hear! I have a telephone appointment with my oncologist at the end of the month and will bear in mind what you have said - I agree a lot with better the devil you know as the others offer different side effects to get used to. It will be 11 weeks before I have the appointment so they are completely out of my system and I feel great but apprehensive as I am not on the preventative!! It’s such a quandary but I will see what the oncologist says - when I did the Predict the result was only 2% but I just want to clarify this with the oncologist and I will post my decision and why - so hopefully it will help others, as has your post. Thank you and good luck with everything :slight_smile:

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