Hi
Been looking through and it sums up how I feel, I do feel someone to help with organising care would be great as I feel I know most of the clinic’s messages and music as your put on hold once again! I was at the event on the 24th I was shocked to hear how many people had similar problems with accessing support and fighting for treatment, I thought I had been unlucky in this and was the exception to the rule rather the norm. I was the Scottish girl who asked the first question. Sorry this a bit of a muddle. Hope to try to go to other events and try to meet more people.
Izzysea