hi girls
was looking for more advice yet again, mum is now suffering from a tingling sensation all over her body she describes it as pin and needles, has anyone else had this or has any advice regarding this.
thanks
Hi there,
I’ve just finished chemo a few wks ago: AC and Taxol. The evening after every cycle of chemo i had a tingling sensation in my face and hands, not quite pins and needles, just tingling. it didn;t hurt or anything. it usually only lasted for a few hours and passed. It didn’t give me any trouble beyond this.
However, if it is giving your mum trouble, you should probably get in touch with your oncologist i’d say.
Hope i’ve been of help. All the best for your mum’s treatment, jojo100. x
thank you, mum says she got it a few hours latter after chemo, however she had her last chemo tue and the sensation is still there.
thanks again
jo
xx
Hi - I’ve had 3 FEC and start Taxotere tomorrow. but right from the start of my FEC my right foot has tingled non-stop. I asked the chemo nurse and he said it was a side effect of the chemo and my not go away even when I have finished treatment ! Ah well …
Love Brenda xx
Hi Brenda
I too am starting my taxotere tomorrow after finishing 3 x FEC. Hope you are taking your tablets today ready for tomorrow. Let me know how you get on. I am dreading it I think, as been so good on FEC, that scared of how will react to tax. My appointment is at 2.00pm
Take care
Love
Dawn
xx
Hi Jojo
I finished my treatment a year ago and still get that tingly feeling in my legs and feet.
Hi Dawn - I’m glad you messaged as we “spoke” on here a couple of weeks ago. My appointment is at 10.45 with the oncologist and then chemo. With the usual delays in clinic I won’t be back on here before you go. I hear that you have to stay in clinic for a few hours afterwards to make sure there are no allergic effects from it.
And yes ! taken tabs. I had an alarm on my phone, my friend text me to remind me and my daughter also did! I’m not a great tablet taker so often forget - but these too important to forget aren’t they! Well, after tomorrow we are 4 down, 2 to go. We have to go into this with an open mind don’t we ? and roll with it.
Did you get any tingling with your FEC - I forgot to mention that my lips tingle too !! The foot tingle actually feels like the floor is moving and that’s a horrible sensation and don’t feel safe outside on my own. Soon get very, very tired it out and just want to get home.
Love Brenda xxx
Hi Brenda
No tingling thankfully, although now and again my mouth did feel a little odd.
Didn’t know that had to stay after for a while, my appoint at 2 and the chemo ward shuts at 6pm, so am hoping that will be out and home by 5 to feed Jack, although think Sophie staying at her little friends for dinner too!!!
Well hope it all goes OK for you tomorrow, be here swapping stories on THursday I hope and feeling OK … take care and good luck.
Love
Dawn
xx
And you - I’ve been told that I have to stay for 4 hours afterwards so you’ll just fit it in. I do hope yours goes okay. I am assuming we will be okay tomorrow to start with. I haven’t made any arrangements for the next week and will let my body tell me what it wants me to do !! Will you be having Herceptin? I’ve just posted something on the herceptin thread as I am going to have it, along with 5 weeks of radiotherapy, but nobody explained why I am having it until it dawned on me.
Jojo100 - is your mum having herceptin? How did you feel when your mum told you? I have two girls, agred 23 and 20 and think they are going through it but don’t say a lot. I think it’s easier for us to deal with it that other members of the family.
Lots of love to you all. It’s an awful thing but we’ll get there I’m sure.
Brenda
hi brenda
no mum not to get herceptin, she is triple neg to. i went to the clinic with my mum to get the results of the biopsy, couldn’t believe it when they said it was cancer and that she needed surgery, also went to the clinic after the surgery. i feel really really terrible some days, worrying myself sick, i really wish it was me not my mum,. however this site has given me great support. i also don’t say a lot about it to my mum, hopefully i am providing her with lots of support though. anyway now the treatment has started i feel better.
love to you all
jo
Hi jo
How old are you? I really do worry how my girls are coping and of course my OH. I took my niece with me for my first appointment to screeing clinic. We are more like sisters and have supported each other through a lot of things of her 38 years ! I am 52. But on my second appointment, because I had asked at my first when they did the biopsies was it cancer and the consultant said yes it was. So I told everybody on that day. My girls and hubby and my niece came with me for the second appt and I got the breast nurse to have a chat with my two and she was wonderful. Explained that because of my age and factors it would not likely to be genetic and it was one of things things. I have since spoken to a friend of mine who works in genetics and she has confirmed this. If I was in my 40’s they would do it. So at least it is one less worry for them.
They both live in Manchester, and come home every week to see him and either phone or text to see how I am. I have really kept my sense of humour which you have to but also have my days when I have a damn good cry and then okay til next time. I know when first diagnosed I was choosing my funeral service and hymns. I want to be here for the next 20 odd years and told my 2 I want to be a grandma ! even though no boyfriends on the scene so I will have to be here many years yet !!
It must be harder for families but we seem to accept it and get on with it with all the wonderful support we get from everybody, especially our daughters , keep up the good work.
with love and hugs.
Brenda xxx