I was initially diagnised Feb 06. Grade 3 Stage 3. Laft Mastectomy. Immediate reconstruction. Left side Ancillary Node clearance. 5 nodes involved. 1 Node in the superclavicle area. So 6 in all.
Reconstruction no good. Failed.
Chemo E-CMF.
Radi - 3 wks.
Herceptin …
Well Started Herceptin Dec 05.
Number 1 and 2 fairly ok. Then apparently started with an allergic reaction to herceptin.
I now take steroids 30mg predislone before I have my infusion daily for one week.
Well I feel so tired I just wondered if anyone can give me some advice as I think my Family think everything is fine now but I think that maybe I feel a little depressed as well . Waiting for the slightest pain I think oh my god its back…
My family have been wonderful and my Husband is usually very supportive I love them all so much but I am fed up of being tired every day. I need a sleep every day in the afternoon…
I think they are fed up.
Has anyone felt tired??
What do you Ladies think as you may understand more than anyone else??
Many thanks
Tracey
I am older than you but I didn’t have such major surgery - I had a WLE and ANC last December - 2 positive nodes. I’ve had chemo and rads and I started Herceptin in May. I’m also on Aromasin. I feel much more tired than I used to and need a little nap every day - usually 20 - 30 minutes in the chair makes me feel better. I think a lot of people on Herceptin feel very tired and considering what you’ve been through it’s not surprising.
I also understand very well about the worry if you get the slightest pain - you’re not alone - I do exactly the same and that sort of worry can make you feel very low. It’s so difficult when family and friends expect us to be back to normal.
Take care
Love Anthi
another Tracey here. After chemo, op and then rads and now on herceptin but got the all clear back in march I am constantly worried about it coming back. I saw the onc last week because i convinced myself that i had a lump, it was breast tissue!!! I’d spent days crying and worrying, even my friend told me it wasnt a lump but everyone of us on this forum is the same and its normal. Im due a yearly scan next week and the onc is sending me for a mri scan so its more thorough, so now im worrying about that and what the results will bring, no family or friends can understand the aftermath of it all, i cant even see my relaxing in five years time, that fear unfort must stay with you forever. I know that it would help me if i knew what caused it as its not in the family, so i sort of blame myself for yo-yo dieting all these years and was it the red meat that caused it when i eat so much of the stuff when on the Atkins diet!!! who knows! Although im ranting on i just wanted to say your not alone.
Its so nice to hear from other Ladies who feel the same as we do. We do tend to worry and its so easy for others who DONT understand to comment and say dont be silly etc. They really don’t understand.
Breast cancer didn’t run in my family either. I was in total shock when I found out. I have a son of 19 and a daughter of 12yrs. My husband as previously stated is normally very supportive. But he thinks I am back to normal now!!! - wishful thinking - Oh if only!!!
Wish i was. I too would love to know what caused it but there again I bet every one of us did and still do.
My onc doesn’t scan unless you present with symptoms. I live in Essex and I am under Mr Trask at southend. Some onc do scan others dn’t. I think I would rather a scan. To put my mind at rest.or would it??
I am under Dr Trask too at Southend for my chemo, but saw him at Basildon as the one I was meant to see was on holiday and we wanted to know my results and waiting for 14 days was getting too much, so they managed to see me at Basildon under Dr Trask. I had all the scans, mri, ct and bone scan, but that was after told had bc, and before moved to Dr Trask.
Unfortunately my scans showed a spread to my liver, hence started chemo last week at Southend.
Why don’t you ask your macmillan nurse or Dr Trask’s secretary. Maybe if you voice your concerns they will help you.
Try not to worry though, easier said than done, I still worry most days if it has spread more, or if when they next say gotta have another scan it shows something else. Only human I think to worry whether you have a spread or not. I am 39 with two children under 4 so can sympathise with you.
hi girls , my name is also tracy (sophie) i had breast cancer back in 2003 i had mast and rads and tango trial ( chemo ) i was gave the all clear in the march 2006 and was diagn with bones mets( in spine) in oct 2006 , i have been on herceptin and bone phos since then , but it has now through out the whole spine ! not just in one place. i was taken off arimidex and zoledex, put on folsadex ! now just waiting to see if working ,i have just got dates through for more scan 30 -08-207 ! i hate the waiting after ! i get really tried too ! i have to have a rest every day so i can sympathise with you all too. i am 42 and i have my birthday in two weeks just glad i am still here for it as i also have 2 children and i am not ready to leave them . so good luck to you all
sophie