Tn lung mets

Hi
having finished all treatment end of march started with a cough mid may, had scan which confirms nodes in right lung bottom. My oncologist is starting me on xeloda from Monday 4 500g morning and 4 500g night. Two weeks on one week off. Can anyone advise how this works for them, re side effects, when they start, can you continue your daily routines, work etc. My last chemo fec.t all followed a similar pattern, just no idea about this one’
lola54

Dear Lollie54

I am sure fellow forum members will soon be along with some support for you.

I have attached a link to some information about our services available :

breastcancercare.org.uk/secondaries?utm_source=Homepage&%3B%3Butm_medium=help_you&%3B%3Butm_campaign=secondaries

You may also be interested in joining our Secondary Live Chat session which runs on Tuesday evenings from 8.30 to 9.30. I’ve attached a link with more information:

breastcancercare.org.uk/community/chat

Very best wishes

Janet

BCC Moderator

sent you a post and just lost the lot!

I’ll try again
I am on Xeloda as many of the secondary ladies are, there are a lot of threads about Xeloda on the forum.
I’ve been on Xeloda twice and had a great response from it, I was treated with it for the sec in the lymph in the lungs, its called Lymphangitis.
Side effects are different for everyone, mine have been diarrhea, stomach cramps and cracked heals. Its can be quite a dehydrating drug so its important to keep hands and feet well moisturised.
I had my drug reduced from 2300mg twice a day to 2000mg twice a day and the stomach cramps and diarrhea are much better.
Good luck with the drug, I hope it works well for you.
Love Sue

Thanks Sue, starting tomorrow.
just worried as triple negative and cant seem to find too many about.

xx

Hi SueCheshire.

I’m not TNBC I’m ER+ but I also have recently been diagnosed witj lymphangitiis and have struggled to find anyone else with it. I was on Xeloda before developing lung mets and founf it generally easy to tolerate. I’ve been struggling to breathe as also have pleural effusions on both lungs. I’m now on weekly taxol but onc has also kept me on letrozole, just think it might take too long to work.