My goodness @hope3 you have had so much to deal with. I am sorry the TNBC has returned and I really hope the treatment and recovery goes smoothly for you.
Thank you for sharing these invaluable tips. I’ll definitely be putting mints in my chemo bag, and will look into the Icelandic water. My weight fluctuates a lot, and I know it’s something to watch. Stress is a bitch. It’s hard to avoid sometimes, but there is so much help out there. Personally, I meditate, which is really helping me calm my mind, being off work is also helping.
Wishing you all the very best, and sending lots of love xx
Hi, I was diagnosed with TNBC in May 2024 and had a similar treatment plan. I documented my cancer journey on instagram. If you are on instagram check out my page, it has loads on there to help. My inbox is always open. My page is called @triple_negatitty
Hope it helps.
Hello. I am currently undergoing the exact same treatment as you for TNBC. I have completed the 12 weekly sessions to be honest I think I was quite lucky side effect wise. I had fatigue which grew each week but I was still able to do things like take my 6 year old to school and cook and clean etc I just needed to sit and rest after each activity. Other things were manageable and any issues I had I spoke to the team and they gave me stuff straight away to rectify it. (Eg I get a rash on my face which is apparently the immunotherapy so they gave me cream). As for your grandchildren I was still able to take my daughter to the park etc so hopefully you have the same experience. I’ve had two cycles of the EC so far. Much more tired and the nausea has come to me with this one. I find the first week I’m wiped but then the next two are fine. Everyone’s experience is different and again I think I am lucky as after reading some people’s posts on these forums I was absolutely myself for starting the second lot of treatment. Where are you having treatment? I’m at the Christie in Manchester. X
Hello i have TNBC. Chemo carbplain & Paclitaxel 1xweekly for 12 weeks. Followed by epirubicin & cyclophosphamide 1 every 21 days for 4 cycles in combination with pembrolizumab every 3 weeks for 8 x doses. Followed by pembrolizumab monotherapy every 6 weeks for 5 doses. Ive been signed off 6 mont… also having cold cap as i was told you cant ask for it after treatment starts.
I have had two separate BC diagnoses and can only relate my own experience with chemo. I was first diagnosed in November 2007 with TNBC at age 49 and had 8 three weekly cycles which properly knocked me about. But I survived.
Fast forward to December 2024 when I was diagnosed with a ER + cancer, totally separate to my previous one. For this one I had weekly chemo for 12 sessions. I can honestly say that I did not feel nearly as bad with weekly sessions as compared to three-weekly sessions first time around. The weekly sessions are obviously reduced dosage, and apart from a wobbly day or two each time I was able to cope and function much better. Hope this reassures you
Hi I was diagnosed with tnbc stage 3 tumour was 7cm and I had one lymph node behind chest muscle and 2 under arm cancerous I done 3 sessions of red devil and another chemo every three weeks then 12 sessions of pacitaxel and carboplatin I refused immunotherapy my while getting chemo towards the end I got another lymph node with cancer in it I had double masectomy with implants and 8 lymph nodes removed pathology report came back cancer completely gone except that one lymph node I was told I was cancer free finished last chemo end of October had surgery end of November and I am only starting radiotherapy now because wounds not healing
Hi @littlejoe16@littlejoe16. Thank you sorry sharing your experience.
I’m 2 weeks in now and the side effects haven’t been too bad. The gcsf injections are probably giving me more than the immunotherapy and chemo, as it seems to make my bones ache, but other than that, touch wood, so far it’s been manageable.
I wish you every success with your treatment. Lots of love xx
Hi @lil56@lil56. I have to take 3 gcsf injections, these are taken on days 3, 4 and 5 after treatment for me, and I do them myself. They did ask if I needed a district nurse to help, but once you’ve done it once, it’s really easy and doesn’t hurt. One tip is to keep it out of the fridge 30 minutes before use, as this can prevent any stinging from the coldness. I hope it goes well for you. Lots of love xxx
Hi all, thank you so, so much for your wonderful and helpful replies. It is very much appreciated.
I’ve since been told there is a second tumour in the same breast, so I’ll be having a mastectomy after treatment, followed by a further 6 months of immunotherapy.
Everyone I have met and spoken with has been overwhelmingly kind, positive and encouraging.
It’s like joining a club you never wanted to be a part of, but now I’m in, I’m overwhelmed at how much kindness there is in the world. I wouldn’t change that, as it’s been so inspiring.
Thank you all. Sending you all love and healing. Xxxxx
Also just to add one tip… I’ve started drinking sparkling water as it’s really helping to shift trapped wind. Just thought I’d share this in case it helps anyone with a similar problem xxx
I have had trouble getting access to the forum but now fixed. Thank you for the sparkling water I might give that a go. I have been massaging my stomach on top with a face massager round moving slowly. Take Care xxx
Hope you are doing well, I have my 4th chemo today with all three immunopthearpy as well. Last week i took anthisantime made me sleepy so looking for a non drowsy one. Thank you for the tip I took out of the fridge 30 minutes before.
Take care big hugs xxx.
Hi, I just want to add that since my last post, I’m finding taking the GCSF injections in the evening is working better for me, rather than the day time, as I sleep through what would be the worst of the bone pain. Hope this helps someone xx
Good morning @mouse701 … I am exactly the same in that from the very beginning (March), I have always taken the Filgrastim injections about 9pm with an antihistamine, I still do! Luckily, I have never suffered with bone pain … I’m not sure if that’s the antihistamine or just one of those things
Hi Big, thanks for sharing that. I don’t get as much bone ache with taking it at night, but I still get it. I’ve not thought of taking an antihistamine with it. I’m going to meet the oncologist today, so I’ll check with her first and if ok I’ll try that too. Thank you.
myself for starting the second lot of treatment. Where are you having treatment? I’m at the Christie in Manchester. X
… I am exactly the same in that from the very beginning (March), I have always taken the Filgrastim injections about 9pm with an antihistamine, I still do! Luckily, I have never suffered with bone pain … I’m not sure if that’s the antihistamine or just one of those things 