Top tips going through chemo!!!!

Ah Leesha,

sound like you’re suffering from that phenomenon commonly known as ‘chemo brain’!!! Many experts would protest that it doesn’t exist, but my fellow forum users will no doubt say different!! I had terrible chemo brain whilst on E-CMF from May to Oct last year. Honestly, sometimes I struggled to remember my own name. I would frequently walk into a room, only to completely forget what it was I wanted!! I’ve known others on here to put their car keys in the freezer thanks to chemo brain!!

Take care,

Kelly
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Hi all you ladies out there. Have just spent the last hour or so reading from the first tip from Princess18 - Kelly - and have found the comments so very very useful. Have made a shopping list - and taken on board all tips and advice re ice lollies, pineapple etc. Am seeing onc next week (Ihope) and so will know what cocktail oif drugs I will be prescribed. I echo all of the comments about how informative this site is - it really does help to make some kind of sense about whta we are going through. Invaluable!!!

Pammy
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bump

Hope all goes well pammy,

Kelly
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Hi pammy
when do you see yor onc. I have appt 9.30 wed for treatment plan

Love

Bridie

just read all some very good tips well done kelly for starting this thread…

and all the other ladies for there in put to…

i have bought a few thing’s but will be dwn town this week to get a few more as i start my chem on the 1st july.

scared but got to be done

sal x

this thread brill - have passed it onto others who going through treatment- pammy chemo-brain is def the word- couldnt work last week after 2pm cos couldnt string a coherent sentance together. Am good now tho until next time

Hi Kelly - thanks for the humour and advice - keep your post going to the top of list - waiting to meet oncologists to find out what treats are in store and thanks to you can plan ahead - my waffly details are on post - “didn’t know chemo was on the cards” - just about sums it up - ho hum…I am the world’s worst at waiting for the unknown! thanks again x

Hi Kelly and Bridie - am frustrated as I haven’t heard anything from the onc. Am going to phone the hospital and find out what’s the matter! Had a very bad weekend - pain of wound - especially under arm and around back - so bad. Phoned NHS direct for some advice - they said it was ok to double up the dose of codeine prescribed by the doc from 30 to 60 mgs - did that - but pain still biting through. Can’t seem to get comfortable anywhere! What a moan I am today! I need to have a good talking to myself!! And to top it all - can’t seem to poo with all of the medication - haven’t been for a week! Any suggestions???

Pammy

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Pammy: Find the “Go Cake” receipe - understand it works a treat - I’ve just gone the all bran and prunes route. (it’s the codeine that stops you going!!)

Good luck.

Julia

Another bump! Best wishes to all who are about to start chemo,

Kelly
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as for needing to go may I add getting a tin of figs if you like figs. 1 or 2 figs MAXIMUM, honest and see what happens a few hours later.

Mum told me it’s good for post anaesthesia when you’re a bit consitapted too, and if you don’t feel like eating just sipping the syrup from the tin can help.

Always thought my Mum was a know it all… turns out she is… woohoo :slight_smile: Love you mum.

Angie

Hi Julia & Angie

Have managed to get some ‘movitol’ well named isn’t it - for lack of poo situation from doc. Where will I find the recipe for the ‘go-cake’ Julia?

I will try the figs as well - I like figs - but don’t really tend to buy them.

The bcn has said to get some - Gabapentin - the pain under my arm and down the back of it is not good - I phoned the doc and my OH has just gone to get the prescription - it is usually given to elileptic patients - something to do with the nerve endings. Have to take 1 today, 2 tomorrow and 3 Thursday onwards. Hopefully they will do the trick - I am not a fan of any kind of medication and have avoided it - but needs must - and I know that lots of other medication will follow once I start the chemo etc. I have bought a pre-paid prescription cert - well worth it at £27.85 - valid for 3 months.

Take care all

Pammy

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Oh - forgot to say Bridie - going to see the onc this Friday - Oh the things we ‘look forward’ to eh!!!

Pammy

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pammy

just wondering how your arm is …

i cant straighten mine out compleatly seems tight and if there is a cord that pulls when i try to …

should i go and see doc or will it eas…

sal

sal speak to your bcn… it sounds like cording which they have some excersices for I think, it pretty common. search the forums for cording.

HTH Angie

Hi Sal

I agree with Angie - get in touch with your bcn - they are a wealth of info. Arm is a bit stiff - but am still doing the exercises - the pain - it’s not really pain as such - the doc was saying it’s like nuralga - which is true - hate having any clothes on it at mo - seems to be really sensitive to any kind of touch - but will start the tablets tonight and hope that they kick-in really quickly.

Take care

Pam

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Ok thanks for that will ring them on wed… and see what is going on with the arm …gets you down ,when you cant do the things that were so easy to do .like even trying to get out the bath is a drama…and like you pam its so sensitive to any kind of touch…
and what tablets are you taking ???

sal x

gabapentin ,got it just read your post at top off page …so pam is that the tabs for your arm ???

its ok im a bit slow some days …lol…

sal

Bumping the top tips