Need some advice, going to my Doctors tomorrow(Tuesday) to get dressings removed. I haven’t yet provided work with any Notes etc. My op was 1st July - next results 12 July, if all well rads and then drugs. Question: Should I ask my doctor for a note for until the end of August? or should I just go month by month? Or do they have their own restrictions, should I perhaps ask the hospital?
Georgina.
Hi Pollyanne, I’m in the same position as you are - had mx, two nodes infected so had ANC from which I am recovering - more slowly. Had been hoping to avoid chemo originally, but no chance now and have had CT and bone scans already. I go for the results of all tests and what they found in the rest of the nodes tomorrow, then I’m expecting a referral to the Oncology department.
More waiting then…still, I keep thinking two hurdles over, only another two to go then five years on hormone tablets. Just hope I emerge at the end still recognizable as me - and I don’t mean physically!
Annie x
Hi to all in cyber space, off to hospital this afternoon to get results of SNB. Have played every scenario in my head, have warned OH. Anxiety levels extremely high, tears have dried up. I don’t want to do this, its just not fair.
Need to get some porridge in me, perhaps that will make me less light headed and more able to face the day
Didn’t get the results I wanted - I am deeper in the hole. Need advice ladies, as I am planning my funeral.
Grade 1 ER+ 10mm tumour removed - tick
SNB - three nodes cancerous 1 okay. - bad even BC surgeon surprised!!!
ANC op 24 July - what does this really mean, have I got cancer elsewhere?. CT scan is being booked but more than likely after op?
hi Georgina, so sorry results wasn’t what we all wanted to hear , but please don’t get too down, grade 1 is lowest slow growing so could be a lot worse, I had 2 nodes affected and grade 2 . Went on to to have ANC. Won’t lie that wasn’t pleasant but once drain is out if feels a hell of a lot better . I’m 3 weeks on , now have full movement and feel fine . Your bound to feel very low at mo but trust me you will feel better soon. next step for me idreaded chemo which starts on the 22nd, sending you big hugs and keep strong x
Hi Maseo…really not quite sure how to respond but didn’t want to read and run as you sound distraught. As you will see on this site most of us had similar feelings and meltdowns at diagnosis; however my diagnosis was very different to yours, so not a comparison. All I can offer is that 10mm is a relatively small tumour, Grade 1 are cells that are most like non-cancerous cells, and if cancerous cells were found in your lymph nodes it means they have being doing their job! You will get treatment that is personal to you and you WILL get through it. However you are feeling now, you will be amazed at your resilience. Easy to say, really hard to do, but attempt, with the love and support of your family, to live in the moment…try to drag your thoughts back from the ‘what ifs’…you take care x
Dear Pollyanne and Maryland
Your words are helpful and hopeful. Will try to bring it back from the edge. OH and I are going to have something to eat now. So this is a good sign.
Will put off arranging funeral for now. No seriously thank you so much - friends are family are good but you guys no exactly where I coming from.
Georgina.
Hi Maseo,
I was dx DCIS and invasive ductal cancer in the same boob, on 7th march had full mastectomy and node clearance on the 25th march my lump was 38mm grade 2 ER+ only 1 out of 16 nodes affected.
i have had chemo and out the other side have appt on thurs to sort out my radiotherapy.
The ER+ means it is oestrogen receptive so means I have to have tamoxifen for 5years or similar tablet.
it is a lot to take in but we are here to help each other we are all going through it any questions just ask.
keep yourself positive. Sending hugs {{{{{}}}}}
Marie
Hi Marie
Really concerned as to how many more affected nodes they find? CT scans booked and really scared as to what that will reveal. I hate being here, I feel all my strength has drained away. Massive headache as well! Life is just not fair.
Thanks for your kind words and hugs.
Georgina.
Hi Georgina, I was in a similar position in that the surgeon was surprised that it was in the nodes! They will do the full clearance to find out how many nodes involved (i ended up with 11/28) I was off work 2 weeks after the op, same as for wle, and like Pollyanna says worst part was the drain. I then had ct and bone scans to check for spread, which were both clear, and started chemo 6 weeks after the op, just had my 4th and it is hard but not as bad as I thought it might be. Try not to worry too much, grade 1 and 10mm means you have caught it early and being in the nodes doesn’t mean it has def spread, it means they are doing their job and catching the cells and to stop them spreading. Good luck xx
Georgina: I planned my funeral a few years ago when I lost a dear friend. I found her funeral was really great because she had chosen the readings and prayers and hymns herself. I did get it out and revamp my plan a few months ago when the first rush of emotion and despair about my dx had washed over me. I’ve come to the conclusion is the best time to do this job is on a sunny day with the temp approaching 25 degrees and a while after your diagnosis. In this case, you have what the weather forecasters seem to think is another 2-3 weeks to do this piece of work under these conditions!
BTW I think your dx would have sounded scary to me if it had been me in your shoes. But now I’ve been through a different journey I am learning to live with the hope. And the sense of humour you can pick up in these threads…hope you noticed. gentle cyber (((hug)))