Hi girls. sailed through my herceptin and docetaxel yesterday but these flaming steroids are a nightmare. I am having weird dreams and almost got up at 4am to see if anyone else was up!!
I have no appetite on steroids which I guess is a good thing???
I got a bit of a telling off from the chemo nurse for not taking omeprazole 40mgs 1st thing in the morning. apparently you have to take this all the way through your chemo to protect your digestive track.
i love my bald head now and have been going commando most of the time with my bohemian jewelery and a bit of eye makeup which i never ever did before.
Really really sorry to hear most of you are crook but the good days will be back soon. I’ve gone into hibernation and not going near anyone. I such a big scaredy cat that they infect me even though it’s probably me that will infect me!!
Ade xxxxxxx and some extra xxxxxxxx’s for the poorly ones.
Came to bed at 10.30 pm sooooo tired. Eyes kept closing whilst reading. Good sign - lights out. So - why am I now wide awake!? :(. Oh well, catch up on some more reading and try again.
Hope you’ve had good sleeps & have awoken feeling a little more refreshed. Fingers crossed for an SE free day!
The sun is shining here so going to make the best of it. Kitchen already cleaned & so no more chores today. Off to watch youngest nephew play football then a trip out for some fresh air & then later there’s a Macmillan fundraiser at our local so me thinks a glass of wine & some cake is on the cards ? ? ?
We are all over the place at the minute, so pleased you are feeling better Bev, i think i may have come down to earth with a bump this weekend, and the lack of hair is freaking me out.
We did go out for some dinner last night, but i feel so self conscious in my wig, i am convinced every one is staring.
I dont want to become a recluse, but i am going to have to work hard to make myself go out and face the world. I hope i get to the same stage as you Eileen, but i am struggling to look in the mirror at the minute.
I am most comfortable walking around the house in my beanie.
The sun is shining, time to get some washing on the line
Hi Nicki. I felt exactly the same and still do sometimes. But you do get used to it. In fact I am so reliant onmy wig now that I am worrying it won’t last until I have enough re growth. So I try not to wear it too much.
Has anybody any tips on how to look after wigs other than the leaflet provided by the hospital! I haven’t plucked up the courage to wash it yet in case anything goes wrong.
Sunshine here so looking forward to a good day
Ex mother in law visiting for coffee ( yes I know that’s weird but I have always been fond if her and divorce hasn’t changed that) :). My new hubby is very understanding!
Then a friend round for lunch.
Day 11 - cycle 2. 25% of the way there!
Have a great day everyone. Hope you are a able to enjoy the sunshine.
Morning all … Feeling a bit better today and hoping to get out for a walk! The chemo Brain is kicking in big style … Have to keep apologising for forgetting stuff or repeating myself ??
Lynnann my wig lady supplied me with some shampoo for wigs which I suppose you could get off internet ??? Or maybe baby shampoo ?? She says to only wash In cold water stroke downwards then swish around then rinse well , but never rub like you would own hair … Then make mild solution of fabric conditioner ?? in cold water and leave for 5 mins and rinse well, then pat dry between a towel again no rubbing … She advised to allow to dry naturally on a unturned vase not the polly head to avoid stretching when wet … When dry turn upside down and shake … And it’s good to go … I was terrified first time but it looked just the same ! And no messing around with styling ??
Better get moving while the sun is out ?
Hope you all have a better SE free Sunday
Love m xx
Thank you ladies. I’m very pleased to have this place to drop in and support each other.
Still not feeling great but gradually improving. Drinking lots and no sudden movements are helping.
I keep looking at my hair wondering what I will look like without it. My wig arrives on Wednesday so that’s good.
Sending love to you all and strength to get through this time. Sorry I can’t reply individually at the movement. Hope you are all having a day with some good bits.
Hi just joined this forum, am hopeless with technology so all a bit confusing, but thought it would be great to chat with people in similar situations and try and use my seemingly ever fading brain cells!
I am posting in this thread as started my chemo 6th August and hope to have 3rd FEC this Wed if blood ok tomorrow, sadly (and I never thought I would be sad about not having chemo!) it was delayed from last wed as low white blood cell count and have been on antibiotics. Anyhow feel fine now and just want to get on with it.
Do I need to do anything to join the August thread? Has anyone else had chemo delayed due to blood tests, any tips on avoiding again? Can’t really avoid the germs coming back from school with my lovely children!
Have read some of your messages and they all prompted me to join as so encouraging. Hope you all have enjoyed some of the lovely sun this weekend.
Had a lovely day but now feeling as if I have a cold coming on ? I just hope I can dose myself up & sleep it off. Am wrapped up toastie but feel chilly & throat is sore.
Just when I thought I was over the SE’s now this! Am fed up…should have flown to Portugal yesterday & with my 3rd FEC due on my birthday reality of this has kicked back in.
Off to bed…hopefully will raise my game again tomorrow.
Morning ladies
Welcome sorbet … You will find loads of support on here as we are all in this together ?
Well I am still In bed after having the worst day yesterday … Even on emergency sickness meds ? going to attempt to get up soon and see if I am less wobbly … Day of water and ginger biscuits in think !
Hope you dont get a full on cold Bevster ??that’s not what you need on top of everything else ? sendings hugs
Eileen so sorry you have more surgery to go through … But i am sure it’s best to do anything we can to get rid of this beast !!!
Ladies as I have already had the pleasure of radiotherapy please feel free to ask any questions etc
Sending hugs from bed
M
Bali, so sorry you are struggling, well done Eileen for getting out and about, and you are so positive about the road ahead, Bev, the cancelled holidays, i keep thinking about the honeymoon we will not be taking this year, never mind it will wait for another day xxx Kate just the thought of you going for a run makes me feel tired.
Welcome Sorbet, we are all in this together, feel free to **bleep**, moan, shout, laugh, cry or all of the above, this has become my lifeline, my reality check to make sure i am not losing the plot.
I contacted my hairdresser today to see if she can trim my wig a bit for me, just waiting to see if she can help.
When i look in the mirror now, i see the cancer patient and i cannot seem to get past this, although it is day 5 after round 2, so still feeling a bit on the groggy side which is not helping. I am doing a bit of work from home today, which helps me feel a bit normal, although i think it may be time for a little snooze soon, cannot believe i can be so tired.
Think we need to hold onto the fact that this horrible time will pass and the hair /wigs and treatments will
All be behind us sooner than we think …, last time I never thought I would get back to normal but I did… We travelled loads … Even a camping Safari and learnt to bodyboard at 50!
There will be normal again … Still looking forward to the ritz girls … We have to do it !! ???
M xxx
Well done Bali, you are absolutely right, there are good times ahead, and they will taste so much sweeter after all this.
Mel i hate the cold weather, but actually the thought of a nice snuggly woolly hat sounds very appealing! I am normally a bit bad humbug when it comes to christmas, but all the adverts and stuff on the tv, make it feel quite near, which hopefully mean the end of chemo is not far away either.
Mel, bacon and sausage sandwich, yummie, i could live quite happily on fish fingers and new potatoes, with a big dollop of tomatoe sauce!!!
I will contact the Ritz this week and see if we can get something booked, shall i pick the first Saturday in August or September, i am happy either way?
Beginning of August better for me for the ritz as will hope to be doing something nice for hubbie birthday end of August… But will try to fit with everyone else…?
I have to inject myself with immune boosting goodies every day for the first 7 days. I worked on the theory that this meant 42 injections from the start, so decided to do them myself … another first in this journey, i line mine up then look away, i always look away when the nurses do it, so this is nothing new. If by doing this, it helps with my immunity, bring it on is what i say xxx
Kate - please do not feel bad, so pleased you can have a run, perhaps next time, do a few more steps for me.
I try and go out for a walk each day, the fresh air certainly makes you feel better, and keeps cabin fever at bay.
I self-administer the injections but was very nervous about it. Day1 the community nurse did it. Day2 the nurse still came hit I did it myself, it helped having her there for support. Day3 on my own but I had a phone miner to ring in case of any problems. I did ring because the injection didn’t make the click that I heard on the previous occasions and it was good to get reassurance that everything was ok. Now I hardly think about it. Good luck, I’m sure you’ll be fine.
Lx
Just saying a quick Hello as sea sickness feeling is still around but getting better slowly.
I’ve just managed to spend a bit of time with my kids after school and now I’m off to sleep again. I can’t believe that this time last week I was out running. Can hardly walk now!
Love to you all. Look after yourselves. J xx
Feeling much better today, day 6 seems to be my low point, very cold, cannot stay awake, tearful …
Kate and Sorbet, you certainly have your hands full with your young ones. Mine are 17 and 20, one of each, both very caring and loving and really quite useful and willing to help when i need it!
Bali i am so sorry you are feeling so rough, hopefully you will start feeling better soon, sending you massive virtual hugs xxx
I am working from home today, very aware there are lots of bugs in my office and up until day 10 i need to stay away from these bugs, all set up with my laptop and mobile phone, so nearly as good as bring there, except for being included in the tea round!
Hope you all have a good day, going to give the wig an outing this afternoon, need to do some chores around town, including banking my honeymoon insurance refund, which is not good, i would rather be having the honeymoon, shall put this away until we can re-book.
then a trip out for some fresh air & then later there’s a Macmillan fundraiser at our local so me thinks a glass of wine & some cake is on the cards ? ? ? 