I’ve always been a lurker rather than a poster.
However I took a great deal of comfort from good news stories when I was first diagnosed as my prognosis wasn’t great so thought I would like to share my own journey in the hope it will give someone else a positive message.
I was diagnosed Sept 05, mx Sept 05, 3.5 cm, 8 out of 32 nodes involved, TN.
4 x Epi, 4 x CMF, 20 x rads, reconstruction Jan 07, replace implant and reduction to other breast June 08.
I passed my 5 year milestone in September, NED.
I can honestly say that although every ache and pain brings its own worries I no longer think about cancer every day.
I retired in March and have taken up my art full time and try to live each day to the full, cliche but true.
I hope I have got the abreviations right but really wanted to share something positive, especially at this time of year.
Dear Gayle,
Many thanks for posting. I am delighted for you. Such great news. Reading positive stories is really encouraging, especially to those of us who have just started out on this road.
Sue
Thanks for that reassuring post. I too am TN with 2 lumps 3cm & 1cm plus DCIS & 3/22 nodes - it helps when you hear of someone who has reached that important milestone as it makes you see it can be done & that this isn’t then end
Wonderful to hear your news. I have just passed my two year post diagnosis, 6.5cm lump, 5 out of 19 nodes. TAC chemo bi lateral mx and rads. I didn’t know how much the milestone would mean until I reached it, odds of it not recurring start getting better after two years so ever onward and upward. Isn’t is strange how your whole outlook on life changes after hearing those dread words? Life is wonderful, even if I am freezing cold and snowed in!
Love to all
Nonny
How reassuring it is to hear lovely stories like yours. My diagnosis is pretty much like millykins and i have to say this TN business does scare me a bit but hearing lovely news like yours really does help. Thank you. XX
I’m so pleased that I have been able to post something that will maybe help, I know how desperately I looked for good news to cling to when I was first diagnosed.
I was 45 at diagnosis and my sons were 14 and 16. I’m now 51, my eldest has a degree in forensic computing and my youngest is now in his second year at Imperial studying medicine.
I hope every one of you can post your own good news story in the years to come.
Thank you Gayle,im TN too and its all i keep worrying about and to read this today when im having a bad day has given me the boost i needed,so THANK YOU!!
Thanks Gayle. Your news is just what I need to hear right now. I am TN with 9/10 nodes testing pos. Had lumpectomy and total clearance, 3 fec and 3 tax and will start 3 weeks of rads end of December. Perhaps because my chemo has just finished I find myself thinking about my future in a way that I haven’t before and I feel very scared. Havent heard that info that after 2 clear years your chances improve. Anyway thank you for taking time to reassure us in same boat. Hope you have a good Christmas. Mine will probably be better as result of your thread. Cazza
Thankyou for your post, it is so nice to hear some positive news.
I am 16 months post diagnosis and TN.
Good to hear that chances of reoccurrence lessen after 2 years, only 8 months to go! Where did you find this info by the way?
Good luck to everyone having treatment etc.
Take care, love and hugs. Debbie. xx
Fantastic new Gayle, congratulations, very pleased for you!
Also TN, dx at 34yo and finished chemo at the end of Sept (8 bl**dy rounds!).
I had my surgery at the begin of Nov and 1 week later, I also had some good news…I had a complete response to the chemo and there was no more cancer in my breast or lymph nodes at the time of surgery! I didn’t realize at the time but apparently this is the best result one can expect after chemo.
I also hope to post some good news in 5 years.
BTW, both my onc and surgeon confirmed that it is very good news for TN if no recurrence in the first 3 years.
Good luck to all and lots of love.
its really reassuring to read your post especially as you had epi-cmf which doesnt seem to be given much for TN bc these days now that taxotere seems to be the wonder drug… however i had epi-cmf last year and this has made me feel loads better as i felt i was getting the short straw at the time.
congratulations on reaching this milestone and here’s to many more for you and every one of us.
hi
havent been on here for along time , but just had to post,
i was dx tn two years ago in april 3 nodes infected, lumpectomy and full node clearance
i had 3 fec t and 3 tax and hopfully donig well
my sister was dx 8 years ago with tn, and has lovely long hair now and dosent think of bc every day, in fact before i was dx it was a distant memory for her, but bought it all back when i went through it,
there are other good storys , but thoose people just dont come on sites to let use all know
good luck all
ps luv ya lulu x
Just wanted to say that although i am not Tn, I have many New (& old) friends that are & think it is lovely that you have taken the time to post your success stories as it gives all of us hope for the future not just for ourselves but for new friends too
Would just like to ask, I was diagnosed July 2009 and was told the date of being cancer free work out from diagnosis even though I think that is quite strange. Does that mean that come July 2011 I am two years free? Can someone advise. Thanks.
hi
my onc says its from when i finished active treatment, as enven though i had surgery without chemo the cancer would have spread as it was already present in 18 of my 28 lymph nodes.
