I really resonate with everything you’ve said here.The slow and steady approach is the way that is certainly working best for me, although admittedly I’m not always good at it at all times 
Have a lovely day yourself @big. x
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I know what you mean @mssteel 
.. I’ve learnt a lot about myself since my diagnosis, of which I’ve found interesting considering that I’m 51 and thought that I knew myself pretty well!!! 
… I’m so aware that there’s a lot that can’t be controlled by myself with this, particularly TN … so, I’m controlling what I can and that’s looking after myself physically and mentally the best I can 
…. right, I best get ready for the day ahead …. thank you @mssteel - ‘speak’ soon xx
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Hello i have recently been diagnosed with TNBC and was called today by my oncologist. I have to have chemo and immunotherapy with that horrible drug everyone is mentioning. I was slightly confused to have many sessions of chemo i was having. My first session is the 5th June with 2 chemo drugs and one Immunotherapy drug. Was informed i need 8 cycles but not sure how many sessions that is? Any help would be appreciated.
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Hi @khw14
Sounds like you’re on a similar regime to me and my schedule looked very complex at first. I managed to break it down into something easier to understand by looking at the schedule for each drug separately.
I’m having the immunotherapy drug Pembrolizumab every 3 weeks for 7 cycles, which is 21 weeks in total. For the first 12 weeks of that, I have Paclitaxel every week and Carboplatin every 3 weeks also. And then for the remaining 9 weeks after that, I’ll have 3 cycles of EC with the Pembro every 3 weeks.
I had a round of EC in April as my treatment plan was different then and had my first round of the Pembro/Pac/Carbo last week so if you have any questions at all, please feel free to fire away and I’ll do my best to help.
All the best. x
Hello
I found lump Feb 2026. Told tnbc . I waited scans etc. I asked the question re will it grow bigger before treatment they said no. Nhs have a 62 days pathway.
Im on 12 weeks weekly like you and three weeks immunotherapy. This week my 5th week. I have already noticed it has melted alot. Before could feel and like you thought it was getting bigger I kept feeling sitting,laying down. i had hard skin around it but that has gone. I wasnt one to always moisturise but my lump location was lower breast where your bra lays have not worn wired for years. But have lymphnodes that are hot. Big Hugs xxx
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Hi @big
Well done on getting through the paclitaxel. I hope EC is being kind to you. If you have read this thread you will know that you can’t predict what it will be like. All you can do is count down the rounds and keep managing day by day until you get to run into the light at the end of the tunnel !.
I hope all those going through treatment are doing ok in this heat. Not really what you need when times are already tough enough.
I am sending a big hug to you all. Xx Anna
Hiya @anna_x51 
….. on countdown to Cycle 2 on Thursday, bloods tomorrow so fingers crossed 
Feeling fine now … I definitely had a pattern after that first cycle and I love a good pattern … I like to know exactly where I am so-to-speak!!!
Weirdly, 4-weeks after finishing Paclitaxel, I’ve started to get nail issues!!! 
… I never had any whilst going through the 12-weeks of weekly doses! Apparently, this is quite common and normal …
Anyway, I’m going to try and settle down to sleep in this heat!!! 
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Hey @big
I’ve heard of delayed effects like this from Pac. Just when you think you got away with it! I have quite strong fingernails in general so I’m hoping they can take it but I’ve never been good at toenails. I’ve actually been pretty neglectful of my feet in general, probably because they spend much of their time hidden in footwear, but I’ve started showing them some love recently and have let them in on my daily moisturising routine. It would have never have occurred to me to moisturise my feet before all this!
Hope cycle 2 isn’t too rough on you and you manage to dodge dealing with any side effects in the heat! x
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Hi everyone, I thought I would introduce myself. Diagnosed with stage 3, grade 3 TNBC early April. Massive shock. Multiple tumours and lymph node involvement., 2 tumours over 104mm and 98mm.
Have managed 9 rounds of Pacliataxcel and Carboplatin with Keytruda. However now have colitis so being forced to take 2 week break to get that under control.
Obviously with TNBC that worries me greatly as it clearly thrives when unchecked. Plan is to wait for steroid dose to get to 10mg, from current dose of 60mg a day and start Keytruda again. Finish cycle 4 and move straight onto EC before surgery and radiation therapy.
Anyone else had to take a break and did it change the overall plan for you?
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