I’ve dropped you a PM Lainy xxx
Hi Ladies,
Diagnosed March 2017 with TNBC.
Had FEC-T Chemo but on 4th cycle had local spread so Carbo was added in.
Had Mastectomy Sept 2017.
15 rads November 2017.
Risk Reducing mastectomy Feb 2018.
Routine oncology appointment resulted in a CT, MRI’s to my brain, neck, spine, liver.
April 2018 diagnosed stage 4 with mets to liver, spine and lungs.
Done 3 cycles of Capecitabine.
CT scan last week shows lungs and spine stabiliased but a new lesion has appeared in my liver.
Tomorrow i start Halaven/Eribulen.
Looking for positive reports on this chemo drug, especially for the liver.
Thank you x
Hi Moomin,
I don’t have any experience of that drug, just wanted to say hi and wish you well. I’m in a somewhat similar situation, tnbc diagnosed may 2017, had fec-t and mastectomy, but in January they found secondaries in mediastinal lymph nodes, now also in lungs and other nodes. I had 5 cycles of capecitabine but it failed, so now I’ve started on carboplatin and gemcitabine.
I haven’t really found anyone on here on these particular drugs, I think the same might happen to you as there’s not so many of us!
You may already know, there’s a very active and supportive Facebook group for triple negative, where you might find the info you need. If you’re interested I can send you the link.
Hi Sherie, welcome to the club nobody wants to join! I only started gemcarbo two weeks ago but I am sure it’s already helped as the pain has subsided a lot. I’m not expecting miracles but I’ll take that!
Hi I just been told got secondery in nodes after triple negative no other spreas hat all scans nodes very small one under arm other side of original masectomy and 2 bottom of neck same side as masectomy bue to start gem carbo Friday
Hi Oinkaboo, it sounds like it’s not as bad as it might have been, although nobody wants any secondaries at all! Will be thinking of you as you start gemcarbo, I’ve got a dose on Fri too provided my bloods are ok. It’s not as bad as some other chemos, at least I can say that! All the best.xx
Oh the horrible phone turned Pinkaboo into Oinkaboo, sorry! Why would it even do that?!
Hie Pinkabioo69 I know what you are going through we are in the same boat. I was diagnosed with TNBC in 2016 had surgery, FECT and radiotherapy, less than 2 years later in June this year it was back??, lymph nodes mets. I started Carboplatin today I feel rough.
Hi I have had carbo b4 and I was ok just hope I can do the combo just hope it does the job dam you nodes x
I hope so too. All the best for Friday Pinkaboo69 drink plenty before. We can do this x
Got told I won’t lose my hair now been told I could help x
Well had my first gemcarbo feel ok little tired but that could be being there most of the day
Hi Ru had my cemo all ok a little tired but feel great hope it zaps these nodes and stops them in there tracks how you doing xx
Hi having my second cemo tomoz gem only how long does this take x felt a little tired after 1st lot but not to bad is there anyone out there that have the same and how long you had them just nodes all other scans clear xx
Cemo going ok anyone out there finished there cemo for secondary to nodes triple negative worried bat after treatment is there anything for us or can you stay on cemo
How long you had it in nodes hun at least we got it no where else fingers x
Just finished my second cycle of gemcarbo and fingers crossed only a tiny bit of hair loss putting my bloods through it this cemo but this last cycle as been spot on with bloods as anyone been on this combo long term
Hi Pinkaboo, I’m on my fourth cycle of gemcarbo so I’m not far ahead of you. Only slight hair thinning, which is a great relief! I’ve had several delays due to low blood counts, but now they’ve reduced my dose a bit so hopefully this will get the balance right! Recent scan result was stable, which is good. Hope your blood holds up well, but if you do get delays, don’t worry,it seems it’s very common with this combo and they just work around it.
Hi unable to have gem on Saturday due to immune being low rang secratery and told her I didn’t want to miss is so now got to go and see my onc tomoz for review is this normal
Hi Pinkaboo, it sounds like you are doing well on gemcarbo, fingers crossed it is working for you! I’m on my sixth cycle,they only said six, I had a scan last week and get the results on 7 Nov, then we’ll see what happens. This time, my haemoglobin was very low but they gave me the gemcarbo anyway, and a blood transfusion a few days later, which did the trick. But my neuts were still too low to have the gem on day 8, so that’s been delayed by a week. It’s been one delay after another and I’m down to 70% of the original dose. But I am living my life in between times. Going to see my mum in the care home today, it’s her 96th birthday, not that she knows, sadly! This evening we’re going to some old friends for dinner, lovely people rearranged it at a moment’s notice because of the change to my chemo day. Really looking forward to some nice food and a good gossip! Hope you are having a good weekend.xxx