Hi Sara - Welcome!! Im sorry you are here - but nice to meet you! I do not have experience of the chemos you mentioned, but I know others do - nd Im sure they will be along soon! Changing from one to another is such a big thing to do! Have you thought about getting a second oppinion? I went to the Marsden following sec diagnosis - you are entitled to this under the NHS, so does not cost anything. May be worth thinking about if it is all getting complicated.
Hugs
Sadie Xx Xx
Nice to meet you too Sadie!
I actually paid for a private consultation at Chrisites after my secondary diagnosois as there was such a long wait (and time is precious) but had to travel two and a half hours to get there. the next nearest hospital is about two hours away. We live in the middle of nowhere! I would consider it if i had more time but i must decide by tomorrow when they are going to start me on capecitibine. I think im going to have to stand up for myself tomorrow and ask for a sacn although i know my onc is against scanning too oftenIm a bit of a nodder when it comes to appointments im afraid!!xx
Hello All
Tina so pleased you’ve decided to take the plunge and go to Dubai, I say why the hell not, if you fell well enough go for it!! I look forward to hearing all about it when you get home.
Well I don’t feel any different breathlessness is still a hassle but I taking my tablets and hoping for the best, at least the sun has been shining and I’ve managed to soak up some much needed vit D in the garden.
Love and strong thoughts to all.
XX
hi sara sorry you have to join our gang but welcome, i too have had recurrences while on fec/d chemo then rads then more recurrence and lumps in other breast(had mx sept on primary breast))so am currently on capecitabine , just started 2nd round felt shrinkage during first round but am just going day at atime,also scan on 12 july showed spot on hip and pleural effusion so am really worried about next scans !!!hope capecitabine kicks in for you pm me anytime if you want to hugs rachelxxx
ps as you can see ladies on here are great for advice and support xxx
hi team TN, just a quickie to give an update and ask how everyone is doing.had trouble finding our thread was so far down on posts so lets bring it back up for tina to add to when shes home !!!i am into 2nd week of round 2 capecitabine, not too bad but very tired,slight nausea and headachey,exterior lumps still getting smaller but of course cant see whats going on inside so next scans i will be a wreck !but i am being dragged to bingo tonight not been for 3 yrs (not an avid player) my daughter only has 4 weeks to go til my grandchild comes so hope she doesnt get too excited while playing!!wish me luck , love and fairy hugs to all xxx
Hi ‘Team TN’ (I do like the name FQueen!!)
Hope everyone is ok! I have just had the most fantastic week. A week off chemo and packed SOOOOO much into it! Wedding Anniv (18 years), Birthday (44 yrs!!), and a MASSIVE party to celebrate being ALIVE!! We had a marquee in the garden and it looked wonderful. 150 friends and family filled it with laughter, smailes, chat, friendship and memories! It was fantastic. My daughter and two friends stunned us with their singing (you could have heard a pin drop!), we raised £504 for Cancer Research and then had a Silent Disco!! (Head phones with different music on two chanels - mad dancing and singing!!)I was the last to go to bed at 3am and LOVED IT!! I forgot about the C***** and enjoyed it so much!
Back to chemo tomorrow - but off on holiday on Friday (extra week off chemo). Going on a boat in France! So, just need to get there which I am a bit worried about as Friday is a bad day for me! But will be worth it!
Love hugs smiles and support to you all!!
Love Sadie Xx Xx
wow sadie what a fantastic week, congrats on your wedding anniversary and birthday, so glad you had a brilliant time, hope you have a lovely holiday too ,why is friday a bad day ?if you dont mind me asking xxx
Hi girls sadie glad u had a gd wk it so nice to forget about the c and chemo for a while had my scan thur get my results wed next chemo for me not looking forward to it but num 5 so only one more to go which will be delayed as I’m going away glad y both ok we have thunder and pouring hard here u wldnt belive it summer any way catch up sn have gd hol and hope chemo goes ok tc Laura x
Hi!
Fqueen, Friday is bad for SEs. Chemo monday nd struggle wed to sat!! Booked a wheel chair for the airport. May jump some ques!!
Laura - fingers nd toes crossed for good results! Scanxiety is horrid!! Hugs.
Goodnight
Sadie Xx Xx
hi All
Good luck this week Laura for results - I hate waiting but yours was good news last time so this time lets pray more of the same.
rachel - did your Onc agree to metformin ? I am going to see GP about it to see if will prescribe.
Sadie - Hope you have a lovely holiday and travel is good. Is Friday day 2 for you of chemo ? I am on 11th taxol tomorrow so getting there - 7 to go - just need nodes to start responding !
Hope Tina having a great time
Ive had lovely week taking one or other of little ones out each day but cannot really manage day outs very well. Heart is there but after lunch flag suddenly so just enjoy shorter outings and have a fun time with those. Went in sea for first time in years and was lovely.
love to all
jo
SADIE… oh i understand now about friday, hope you soon pick up and have lovely break xxx
LAURA…all the best for result day i get in such a state,hope you have even better news than last one xxx
JO…left my onc with printout of info about metformin and see him wed so will see good luck with gp for it xxx
hugs to all rachel xxx
Hi all!
Sadie - it was lovely reading about your party! I am so glad you had a great time and have a super hols in France! Hope you feel alright when there.
All the best to Laura for your scan results on Thurs. Love too to Jo and Rachel - I love the sea too, but haven’t been in for a couple of years due to this and that - weather and PICC lines! And we only live 15-20 miles away from the Gower Peninsula, with its many gorgeous beaches. ( I sound like the Swansea tourist board here!) I have very fond memories of going down there every week when my son was a toddler - it’s kind of my “happy place” - sounds corny, I know. I am well, but my lympho. arm is giving me gip - pain and limited movement, especially when reaching round the back, if you get my drift! TMI! I bet Tina is having a great time away from rainy old Britain! Lovely to have a new grandchild, Rachel - have you got others? PS - love to Claire and Welcome to Sara.xx
Anyway, all the best, Sarah x
hi sarah … sorry your arm is playing up hope it eases for you…this will be my first grandchild just 4 weeks to go cant wait just so wish the damn bc cloud wasnt over us but am sure this baby will blow it away…take care love rachel xxx
HellO ladies 
Hubby has purchased 24hrs of wifi so I can briefly indulge in the forums now dans asleep ! Have been thinking of you all + hoping all is well with my tn friends.
Were havin a fab time in Dubai. Ridiculously hot here- was 46degrees today! Literally soaked with sweat within minutes! But pool is cool for dan so yes been fine with lots of factor 50! We are in Atlantis on the palm til Thursday when we head home. It’s an unbelievable hotel never seen anything quite like it. Pricey too- £4 for a can of coke, £9 for a pint of heineken! Dan helped himself to small bag of maltesters from the minibar today + we neatly had a heart attack when we looked at the price lust + saw they were a fiver!! Been to meet dolphins today but dan scared so wouldn’t touch them after paying a fortune! It’s been lovely though we have really enjoyed this family time. Healthwise I’m very concerned as the swelling at my collarbone is quite pronounced now. It’s defo a node I can feel the little f*cker + it’s quite firm now too. The local disease is bad too. Feels like skin ready to burst the whole area is rock hard, lumpy + very tight. I’ve tried my hardest not to let it ruin my hol. My onc is on leave until the week after next + won’t book me in 4a scan until she has seen me. So potentially it could be another few wks b4 I’m scanned. I’m thinking of going to see my surgical team as soon as I get home thOugh Asimov reluctant to wait that long. Scary as I’ve been off chemotherapy since late may just hoping the problems haven’t spread to organs…
Will be on Thursday night to catch up properly with everyone. In the meantime, Laura really hope your scan results are GOOD, and sadie have a lovely break away x x
Love to everyone on here
Speak soon ladies x x x
Hi all got my ct results no more shrinkage but they sd that would prob happen bit disappointed as feel done 2 for nothing just having my 5 one she did say because I’ve a very amount of cancer in my body she didn’t no if having the 6th wkd make all the difference unsure what to do any comments wkd be grateful very hard to know what to do hope y all ok Tina so glad y having great time sorry to hear about chest probs hope u can escape chemo for a bit tc all be on when i feel up to it hugs laura xx
hi laura,am sorry you didnt get results you hoped for, but just be pleased there was no progression either but i know we just want NED moments,was really hoping youd be having more shrinkage so unfair ,how do you feel about taking the 6th round?i dont really know what i would do, but it may make a difference no one can know for sure, take care love rachel xxx
hi tina, glad you having great time,my goodness the prices,sorry you have worries i really hope they get onto it as soon as they can what s*** though,stay in the shade what a scorcher take care enjoy the rest of your hols love rachel xxx
Hi ladies
hope everyone is feeling as well as can be at the mo? Back home tonight had a lovely time bt feeling a bit down + anxious about my lumps + bumps 
collarbone swelling pretty bad, chest wall awful etc but my onc is on leave + next clinic isn’t until 24th augst. She wouldn’t arrange a scan for me despite my concerns, until she has seen + examined me first. I’m naturally worried about doing nothing for another few weeks- I’ve already put things off for a few weeks. Not sure what to do?? Might contact my gp tomorrow- maybe she could request an urgent scan? Any advice welcome… I’ve even developed a vert sore + swollen foot+ am wondering if it could be bc related (bone mets??). Perhaps a bit paranoid but it’s been bad for a month now+ is getting worse. Least of my worries tho I guess…
Laura, sorry you are disappointed with ur latest results but after such a fantastic response to the 1st few treatments, stable is a god result. I would complete the course since it is still working- if it wasn’t you would have progression. My situation was similar on the carbo- brill response after 3 then static. I would stick with a treatment that is working for as long as poss. I wanted to do a few more carbos but my onc only allowed 6. Within 2months Ive had physical symptoms that it’s active again. Big hugs xx
will catch up with everyone tomorrow heading off to bed now- expecting dan to be awake around 5am due to jet lag…!
Love tina xx
Hi Tina glad u had gd hol sorry it’s still no better can’t the bcn do anything for u otherwise u will have to wait longer for scan soz can’t help more as mine in organs yes I know what u mean about having all 6 onc sd it depends on my se as my feet hands are bad I’m also on taxol so I’m having 2 chemos but get extra wk off this time going to Cornwall for few days end aug hope u get somewhere with your doc let us no
Hi to everyone else hope y doing ok Laura xx
Hi All!!
Tina, i think i would see my gp nd explain. You cant wait till onc back. You will be climbing the walls!! My gps surgery has a specialist bc gp. You could ask if yours does. Or there must be another onc who is not on hol? Maybe time to become demanding nd say you HAVE to see them!! Take care nd transport yourself back to dolphin world!!!
Laura, stable is good, but i know you wanted more. Keep at it nd enjoy cornwall.
Im off to france. Flying this eve. Cant think straight at mo, mondays se! So, no idea what Im packing nd kids have had to pack themselves. Could be intetesting. Got a wheelchair for the airport nd my Son promised me power slides!! We are spending the week on a boat on the canals. No internet!!! So, hugs to ALL!! I will try nd send you some sunshine.
Hugs nd smiles,
Sadie Xx Xx
Good Morning Ladies, may I join you please:-)
Diagnosed IBC, TNeg, end of January, finished 3 x Tax, 3 x FEC, in June, poor response, Mastectomy and ANC June 22nd, 19cm Tumour removed oh happy days! and 11 lymph nodes all infected. Due to stsrt Radiotherapy Monday of this week but referred to surgeon with rash. Just been back for results of Biopsy and confirmed as Skin Mets.
I am of course scared but although not too frequent a poster I do follow all you lovely ladies and share your trials and tribulations.
Sadie have a fantastic holiday!
Tina, whether it be your GP or another ONC, you deserve and need to see someone today, they need to make it happen. The very best of luck to you.
xxxxxx
Scrapper.