Tina glad y having a fab time,lulu glad op out the way hope u get home soon, sadie gd luck for mon hope it goes ok hi to everyone else
Hi,
Hi Sarah, i heard about the miners on the tv. So very very sad. A shock for you living so close. Hugs.
Hi Lulu, glad op over with. Well done getting through it. Hope you do get home soon.
Hi Tina, glad Disneyland is fab!! You deserve it!!
Im thinking calm happy thoughts, calm happy thoughts…my results are at 9am tomorrow so will not have to hang round too long, i hope. Spent the morning watching my daughter in County Netball trials. Just waiting for email to see if she has got in. 22/75 get selected. At least is is taking my mind off scanxiety!! Thx so much for all your good wishes.
Hugs nd smiles to all (((((Xx))))))
Sadie Xx Xx
Hi all!
Good luck and good wishes to Sadie for tomorrow. Hope your daughter had good news!
Lulu - glad op.went well and hope you are home. There’s no place like home!
Glad you enjoyed Disney, Tina. Love to little Dan.x
Love, Sarah.
Sadie i will be sending positive vibes your way at 9am good luck hunny… and fingers crossed for your daughter too xx… btw im a 68 baby too ;o)… i have also been having weird/bad dreams think life is getting to me a bit.
got out hosp today and im back home and in my own bed.
Tina cant wait to hear all about disney… so glad you are enjoying your break xxxx
Laura BCN seems a bit harsh… i think for many of us posting on this thread we know that this is likely to be a life limiting illness… maybe she should have asked you what you understood about your prognosis first… nobody can say for sure how long somebody will survive following a TNBC recurrence or secondary diagnosis… and new treatments are being developed all the time too so things are always changing anyway.
sandra how have you found the hickman line?
Hi Ladies - Well…its all a bit mixed 
There is no new disease but my lung mets have started to increase in size. So, the Taxol / Avastin is no longer holding it. I am sad. Onc rememded me we are buying small amounts of time with the chemo - I know this, but hearing it again made it all very real! I dont want to leave the kids! She was very lovely about it - but I wanted it to carry on working! She is looking into Cyberknife but does not hold out much hope. Otherwise I start on Carboplatin next Monday. So - anyone else been on Carboplatin (or Gem - Carb as she has talked about combining it in the past). I know Tina has had Carboplatin - any survival tips? And how was it REALLY!! My ONC said it is often tolerated better than Taxol.
Not feeling great about it all and feeling ive let everyone down when it does not work! Sorry - not a good day!
Hugs to all
Sadie Xx Xx
sadie sending big hugs your way sweetie… sorry it wasnt the news you were hoping for and praying the new chemo halts the progression in your lungs.
much love xxxx
Sadie sorry it’s not the news u wanted I have been on carboplatain with placitaxol I found it not to bad the worse for me was feet hands and bowel probs but I was on 2 maybe one on it’s own might not be so bad I got scanned every 2 cycles so they could check on how well it was doing I’ve got a scan on 27 th and can understand how you feel I’m scared to death about my results my chemo worked very well but only for the first 2 lots then all it done was hold it steady did u not ask about the prostate trial they are looking into for me don’t give up big hugs xx
Sadie, so sorry to hear your news, please stay strong and hope that the new combination works,
Jill xx
Sorry it wasn’t the news you hoped for Sadie - good luck with the new treatment plan.
oh sadie what a crock of s***, i too felt fed up when i knew had bone involment we want so hard to just be stable … my hugs to you have heard good things about carb but when needed i have to have funding so am praying it will do great things for you love rachel xxxx
Hi ladies
Sadie
Sorry that wasn’t the news you were hoping for, ((hugs))’ , it really knocks you, dosent it, but try to stay positive with the new carboplatain. I’m still on avast n taxol, just had 9th, not very good over weekend with high temp. ( between 37.2 n 37.4) had rash too, sore throat too. Feelin bit better this morn.
Hope your feeling ok and not in pain.
Good luck to your daughter with the netball trials 
Lulu
Hicmanline has been fine, able to use it weekly for bloods n chemo. Had DN to redress it a few times, n put antiseptic cream around site too.
Hope your soon feeling better.
Sending you positive vibes Sadie, (((x))).
I’m another 60’s child, too, born in 63
Hi to all. Luv Sandra x
Awful news Sarah about the 4 miners from swansea, shakes the community, when it’s so close.
Hi sadie
Am sorry to hear your lung mets increasing but is GOOD no new disease. I was hoping and praying you could have some time off after achieving 18 paclitaxol. I’m at 15 and exhausted. I was told carboplatin v well tolerated by my Onc but not had. It is horrid when we have these appts as just want to be told is clear. I still pray for that and hope new treatments come out as they are all the time. I am scared to say as want to make you and others feel better not worse but my Onc said to me. Yes you have a black cloud but it’s over there and not above yiou as we have lots more options available. I hope this helps as this was to me with lung and liver mets before bone spine one. Id had EC x 6 and now paclitaxol so think similar chemo history to you. I continue to hope responds to treatment and new ones can come out to add to option list that are not too unpleasant for us all.
I don’t understand drug choice as I was told capecitabine likely for me when paclitaxol finished but need scan first.
Here’s hoping to a good response to carboplatin and hope your daughter selected.
Love jo x
Hi all
Haven’t ever asked before but do any of you do complementary things to try to help. I switched to dairy free vegan diet but eat fish 9 months ago and juice 2-3 times day. Think helps with general well being but still get lots infections from little ones. I take iscador from homeopathic hospital and supplements and just wondered if others do similar. I take kelp, vid D3, fish oil, beta glucan, selenium. I had vit D3 tested and was low. I have started taking metformin, a diabetes drug and had hair tested for deficiencies and zinc and magnesium and iodine came up. Is hard to know what to take.
Acupuncture helped me through chemo. I’ve tried all sorts but interested in any others experiences of helpful complementary therapies. I have reflexology sometimes too.
Jo x
Hi Sadie
I am sorry that you have had such s**t news! It is not what any of us wanted to hear, after all the SEs of chemo it is so much more frustrating and devastating, when it doesn’t work.
Sorry no experience of Gem- Carb, I am currently on xeloda, well supposed to be haven’t had it for over 3 weeks, because my blood count is too low!
You mentioned that your oncologist was lovely when telling you, chemo is only buying small amounts of time! yet that is such a horrible thing to hear. Just hold on to the knowledge that there IS a chemo out there that will buy you LONG amounts of time! It’s just a case of finding it! hopefully Carboplatin will be the one that works for you long term.
Take care and stay strong xx
Hi ladies
just off the eurotunnel+ back on English soil so got straight online to see how u all are…
Sadie I’ve been thinking about you all day- I’m so sorry it wasn’t great news for u today but what is good is that there is no new disease anywhere else. I think you have done brilliantly on this chemo + should be proud of how uv got through 18 gruelling weekly treatments! Sounds like this has been a real knock for u + I’m not surprised ur feeling down. On a positive note, I have to say that carboplatin was an absolute breeze + I’m sure you will find it so much easier to tolerate. Obviously the fatigue is an issue (+ ur shattered b4 u start obviously), but the se’s are minimal I had no nausea etc. There is sum talk of me going back on carbo given I had such a good response to it but I’ll know more this weds. I think gemcarbo is a bit tougher in terms of se’s but can’t give you personal experience. Stay strong sadie you are doing so well + I’m sure you will feel more positive once ur new regime is underway. Big ((((hugs)))) xx
hi to everyone else will catch up with u all tomorrow- another 4hrs on the road now. Hubby is driving but I’m trying to keep dan entertained between DVDs!!
Love to all xxx
Hi Sadie,
I echo the sentiments of the others on here - you seem like such a lovely - and loved- lady and it is so unfair to have disappointing news. Was it Tina who had good results on carbo? I think it is meant to be good for TNs. Plus, you have had good responses to chemo. before, so it is likely that another combo. will work for you. Thinking of you,
Sarah xx
Sadie
Was at crematoriums when received your text scattering ashes so bought more tears to my eyes!
Not been well either today Monday is your Thursday! Will email u tomorrow & try arrange something
Many many hugs thinking of you
Brum cardio-thoracic team refused to op on me - keep on smiling I just look for that pink blouse & wonderful smile.
Try and get some sleep
Jo (((())))
Hi Sadie
I know I’d disappeared for a while (just needed a break from everything) and now that I’ve logged on I read your disappointing news. I really do understand your upset. You may remember that I only got to week 13 of taxol and avastin and things started to increase in size again - I too was gutted.
I’ve had rads to my neck over the last few weeks and having a scan tomorrow, but like you my Onc has suggested I might start on Carboplatin or Xeloda - so we both have to believe the next one might be the one for us! He says both of these are ‘easier/kinder’ chemos.
Love and hugs to you
Linda
x
Sorry forgot to add
Hope everyone else on this thread is doing Ok. I will read all your comments tomorrow and have a catch up!
Linda
ps I’m also a 60’s baby (1963) - although some days I feel like a 20 year old (invariably alcohol induced) and then other days a 90 year old
xx
Sadie, so sorry to read the results of your scan mean you need to change treatment. It’s so difficult when you get used to something and understand how your body deals with, you to have to start all over again.
I’m starting GemCarbo on Wednesday, so I’ll let you know how it goes. Here’s hoping it’s just the chemo you’ve been waiting for, treats you kindly and achieves the results we’re all after. Why not eh, anything is possible!
Thinking of you.
Wendy
xxx
(I’m a '68 baby too!)