Dearest Rachel / FQ - I am so very very touched by your situation and wish you all the strength and send you all the love in the world! Surround yourself with your babies and rest. Live in the moment and listen to, look at, eat and smell wonderfull things today and all your todays! Xx Xx
Hugs to all
Sadie Xx Xx
Dear Rachel,
I read your post with my heart in my mouth, goodness knows what you felt like during that consultation.
Sadie has got it right, surround yourself with your babies and love every moment that you can and give the old TNBC the gem/carbo elbow.
Make up a sentence for your family/minders to give to all well wishers (FairyQueen thanks her friends and family for all their prayers and positive thoughts and will be in touch as soon as she feels better, don’t suffer one negative visit)
Gentle hugs and warm clouds of best wishes
Old Auntie Lavender
Oh Rachel, I am so very sorry to read what you have been through again this week 
I am thinking of you often and was worried by your absence. I cant imagine how you are feeling at the moment especially after that consultation. Please remember that there is always hope. Always. This is a chemo you havent tried before and hopefully it will work its magic. Well done you for wanting to continue the fight- your life is worth fighting for and hopefully the gemcarbo wont be too hard on you in terms of se’s. Please god let it stop the fluid building back up- that sounds just awful
Yes you are right to want to just be around your nearest and dearest. I too cannot be bothered seeing anyone outside of my close circle and have decided that this is my perogative!
You get plenty of rest and dont feel guilty about doing absolutely nothing! Your body needs to rest and use all its resources to recover from this ordeal. We are all thinking of you and rooting for you, Lots of love Tina xxxxxxxxx
dear rachel im so sorry to hear your news kp fighting kiss its bum rest as much as you can will be thinking of you big hugs laura xx
oh Rachel what utterly horrible news for you and your family… such a blow especially so close to christmas… i really dont know what to say except that im so so sorry to hear your news and agree with the others spend your time making lots of happy memories for your lovely family.
your in my thoughts and prays xxxxx
Rachel, just to say how sad I am to read about your latest consultation, no wonder you were floored.
Gemcarbo has sort of been put to me as my last chance really, it’s a terrifying place to find yourself after living and breathing hope for so long.
I’ve just had my first scan on gemcarbo and should hear my results on Monday, I’ll let you know what they say. BUT I feel better, I’m breathing better, I’m hoping better most importantly.
It seems everything I’ve tried before has failed me, this time, just maybe, gemcarbo is helping me. I hope with all my heart it works for you and you start to believe again.
Lots of love
Wendy
xxx
Hi Rachel,
I agree with everyone else on here - surround yourself with loved ones and try and have happy times. Yes!- as Tina says, very wisely, there is always hope and I hope the treatment will give you that. Love and prayers from me,
Sarah xxx
Wendy, just wanted to wish you lots of luck for your scan results appt tomorrow. Sounds promising that your symptoms have lessened on the gemcarbo so fingers crossed xx
hope everyone else is feeling ok today. Special hugs to Rachel, hope the chemo se’s treat you kindly xx
love tina xx
…I second that Tina. Good vibes Wendy and hugs to Rachel.
I love this site, thank you friends!!
Got my scans Monday nd Thursday so can feel scanxiety already, but I know I’m not alone. Hugs to us all…
Sadie Xx Xx
Good luck to you this wk too sadie 
How are you feeling on the carbo? I know u don’t have symptoms of ur lung mets but do u have anything to go on? I’m checking my nodes daily but in fairness, it’s way too early to feel an improvement! Hope ur results are good + u don’t hav2 wait 2long for results xxx
Thx Tina. I’ve got no external symptoms of disease, all in my lungs, so nothing to go on. I do get a bit breathless but think this is down to low blood count. My platlets are really suffering!! Week one of the cycle is v tough! Can’t really do anything, but week 2 nd 3 are ok!! How are you finding it?
Hugs to all
Ps Must be nearly christmas, Home Alone on the tv!!!
Sadie Xx Xx
Glad ur feeling ok + no worrying symptoms. That’s gota be a good sign eh? I’m feeling ok thanks, trying to take as few meds as possible (ie steroids+ anti sickness) as I find I get more se’s from them than anything! Totally bunged up despite this but functioning well thank god. Breathing pretty wheezy at times, worse when lying down but at least we can mnitor these symptoms over the coming weeks I guess.
Going to see rihanna in Manchester tmoro (finally sorted some tickets!). Not great timing but will rest tomorrow day + take my spare steroids I think!
Yes Christmas is coming, I’m praying things will be ok + we can enjoy it to the max. Going to put tree up early + taking dan bak2 peppa world in a fortnight 4all the christmassy festivities
keep us posted on your scans sadie- best of luck
tina xxx
Glad you’re feeling OK on this new chemo., Tina. Enjoy the Rhianna concert! Love to Wendy and Sadie too. My Dan was 13 on Thurs. Had a lovely party with firework candles which were fab!
Love to all on here, Sarah x
Gd luck everyone having scans this wk and anyone getting results Tina sadie glad y getting on ok with chemo yes sadie I found the first wk hard on chemo
Thanks laura+ Sarah Ah happy belated 13th birthday to dan, Sarah. So glad it was a lovely day 4u all xx
I’ve got some sleeping tabs for tonight from my auntie so hopeful of a few hrs at least. Have barely slept a wink since chemo + couldn’t get a repeat prescription til tomorrow so have missed my zopiclone!!
Anyone else addicted to xfactor + xtra factor? Highlight of my week
love to all on here
tina xxx
…oh yes!! And ‘I’m a celeb get me out of here’!!! Who’s going to win??
I had a run in with my Reg over steroids (suprise suprise!!!). She was prescribing them some cycles and not others!!! So, now I have the iv steroids with the chemo, but then not the tablets for few days following. This helps with the sleeping!! Tina, you may want to ask if you really need the steroids?? Hope you get some sleep soon!!
Hugs and ‘Happy Monday’ to you all!!
Sadie Xx Xx
Hi everyone, I’ve been for my scan results today and I’ve only got and had bleeding response ladies!
Some shrinkage to lung mets and lymph mets, no change to liver mets - it’s the first scan I’ve had in 18 months where things haven’t got worse.
I knew I felt better since starting the gemcarbo, but I never want to get carried away, I’ve become accustomed to bad news. I feel dazed, like it hasn’t really sunk in yet.
They have found a clot in a vein where they’ve had to remove my line due to infection, so it means tummy injections for 3 months but I can do that. They’re not worried about it breaking away or anything.
Thank you to everyone for the good vibes, look what you’ve done! Sending love and hope to everyone.
Wendy
xxx
Hi wendy Wondeefull news I am so happy + relieved 4u!! You must be thrilled! Long may you continue to respond to this chemo + may ur symptoms continue to improve. Enjoy some extra special celebratory cuddles with your little man today. Xx
sadie hope the scans have gone well xx
Rachel thinking of you lots xx
lulu- how are you feeling after last wks chemo? Ok I hope xx
loveto everyone else on here xxx
Hiya All
Have been away for the weekend, n just checked in,
FQ Rachel , so sorry to hear your news, you rest up, surround yourself by your lovely family, keep strong.
Thinking of you, sending you hugs n prayers. Xxx
Wendy, great news for you n hope continues too. X
Hi Tina, Sadie, lulu, Laura, Jo , n everybody else too, hope your feeling ok today.
I have had infection around hicman site last week, n was on AB s. Chemo/ avastin again Thursday this week.
Thinking of you all
Hugs. Sandra. Xxx
Ps I’m enjoying strictly come dancing, x factor, n I’m a celebrity… Too
Hi Wendy - That is fantastic news for you nd others on similar treatment!! Woop woop!! Delighted.
My scans went well - I’m getting them well trained up there!! 6 days till results…you know what it is like!! Very chilled out nd relaxed about it all (ha ha ha!!!)
Sadie Xx Xx