Triple negative secondaries/ recurrences

Hey ladies
hope ur all doing ok today :slight_smile: Laura hope ur feeling brighter today xx
Iā€™m nt feelin too great, bit up+ down at the mo. Got sum anti bā€™s for my bad chest today off my onc (saw her whilst having picc flushed). She did all my obs + ran sum bloods, all ok. Iā€™m hoping I start to feel lads better by the w/e as I have a date with peppa pig!! Having a few other worrying symptoms at the mo too, hoping + praying they f*ck right off as I have enough on my plate at the mo. Left eye is giving me jib + has been since Sunday so Iā€™m naturally concerned. Have also felt a tiny bit tingly in left hand on+ off but hopin itā€™s lymphodema-related. Will obviously mention to onc nxt wk if it persists (the eye thing is my main cncern) but i no she will arrange a head scan + so near to Xmas, itā€™s naturally stressing me out (not that thereā€™s ever a ā€˜good timeā€™ for all this crap). Just trying to get on as normal, Xmas shopping, etc. Iā€™m putting tree up tomorrow, changed my colourscheme so bought loads of new gorge stuff + fab Santa + snowmen lights forour window. Canā€™t wait to see dans face when he comes home from nursery :slight_smile:
hopng a miracle/ major drugs breakthru comes our way v.soon ladiesā€¦
Tina xx

Hi Tina!

Hugs and love to you. Your decs sound fab - I can imagine your little Danā€™s face when he sees them. You are one strong lady - as all are on here! Hope Peppa Pig thing goes OK.

Bye from Nighthawk here! - remember that on 'Allo 'Allo? - v.silly programme!

Sarah x

Tina really sorry to hear you have more worrying symptoms hunnyā€¦ Really really hope itā€™s not anything badā€¦ And hope the ABs knock the chest infection on the head.

Iā€™m gonna do my tree at the weekendā€¦ Itā€™s pink and have nice red, pink and purple decs to go with itā€¦ Looking forward to putting it up and feeling all christmassy.

Iā€™m sure dan will be so excited when he sees the tree and hope you both enjoy peppa pig.

And hi to Sarah from a fellow nighthawk
Lulu xx

hi all bloody hell tina am so sorry you have more concerns its all so crap hopefully its nothing to worry about but we still do sending you lots of hugs x am sure dans face will be a picture when he sees decs xxx

Thanks ladies my nerves are shot. Eye was really uncomfortable in bed last btw but has eased a bit today. Vision etc fine. Praying itā€™s nothing donā€™t wana ruin everyoneā€™s Xmas :frowning:
love to all xxx

Hi all
Hope yr doing ok today :wink:
Tina, hope your eye continues to get better this week.thinking of you.
Hope your Xmas decorating has gone smoothly today, your new decs sound lovely, bet yr Danā€™s really excited with them all.
Luv n hugs to all
Sandra xx

Hi to everyone this Thursday evening. Hugs to everyone carrying a black cloud around! Tina nd Rachel nd Laura esp.

Iā€™m really missing the kids tonight. My son met Prince Edward nd talked to him about photography. My daughter doing a marathon flute concert in aid of the Acorns Childrens hospice in memory of her brother. Iā€™m stuck on the couch feeling horrid. I would love to be there! :frowning:

Sadie Xx Xx

Thanks girls Iā€™m feeling a bit frantic- just no itā€™s gona be brain mets. Trying to be positive but 2much going on. no Headach. As such but feelin of pressure on left side of head + headache there everytime I cough (noticed that at w/e). Combined with the eye prob + occasional tingling in left hand, I just no whatā€™s coming :frowning:
Latest concern is that Iā€™ve just been the loo for a no2 (sorry if tmi bt bare with me!). Anyway, loads of bright red blood on 'contents+ liads on tissue: WTF is going on. Meant to be going away at the weekend but Iā€™m tempted to contact the hospital tomorrow. Iā€™m also tempted to say nothing but think that would be foolish.
Sorry for the me-post but this is honestly my most dreaded worst case scenario. Brain mets dx is the stuff of nightmares + the thought of WBR is just too much .
Think Iā€™ll sleep on itā€¦
Love tina xxx

Oh Tina, what a panic. I canā€™t give you any advice but a cyber hug of huge proportions! Maybe you should contact someone tomorrow, the blood sounds very worrying, or may be NOTHING!! Oh goodness, hugs nd more hugs.

Sadie Xx Xx

Hi Tina,
sorry you are suffering and worrying :frowning:
just wanted to say that some of what you are feelinv may well be side effects of chemo. All thd diffrent chemos hit all of us differently. I suffered with both FEC and Tax but in very different ways. Plus i had terrible bowels during chemo, resulting in piles and lots of very bright red blood in my poo (sorry! TMI!!!) and my gp gave me so
e great cream for it which helped.

Take care

x

Hi all thanks for y kind words Iā€™m ok now thanks just need a cry
Tina Iā€™m so sorry u feel unwell i think you shld call the hos and just mention it but also wld like to say Iā€™ve had really bad head pain neck pain had x ray nothing they think itā€™s muscle strange how both been on carb and got sim probs it might be chemo also I do belive the blood in the stools are to do with chemo I had that but call them just to ask big hug on the ways lots of love Laura x

Tina I think maybe you should give the hossie a call itā€™s most like not to be anything too serious but on top of everything else I think you need to get it resolved quickly.

You are obviously so very worried and I really wish I could do something to make your fears go away hunnyā€¦ Sending massive cyberhugs and loads of love xxxx

Laura glad your feeling a it better today xxx

Hi ladies
hanks for your support :slight_smile: Feeling less panic stricken today, thankfully. No blood today when I went the loo- but will mention it to onc next wk as there was lots of blood last night, not just a bit. Eye prob isnā€™t as bad today but left arm+ hand defo feeling a bt weak + tingly (not helped by carrying heavy shopping to the car this morn!). I decided not to contact the hospital, so will wait until weds when I see my onc. Iā€™m certain Iā€™ll have a head scan as she has told me Iā€™m high risk for brain mets being TN. Naturally hoping + praying 4a mracle here ā€¦
Anyway, how is everyone else doing? Any plans 4the w/e? Hope everyone is doing ok, and coping well with treatments + the anxiety this nightmare disease causes :frowning:
wer off down south tmoro, staying overnght + then going to peppa pig world Sunday. Itā€™s a long drive but hubby doesnā€™t mind so Iā€™ll just chill while dan sleeps + watches his DVDs.
Love to everyone on here, love tina xxx

Hi all glad y feeling a little more in control Tina isnā€™t it funny how dif onc say dif things Iā€™ve never been told Iā€™m high risk for anything hope you can enjoy y weekend Iā€™m hoping to try put up some decs at weekend hope everyone else is ok enjoy y weekend love hugs laura

Tina, so sorry to hear of your new worries- hurray that the blood was not there today, I had that frequently with chemo, also headaches and migrainous auras which can cause temporary weakness (I lose vision with mine)so there are other possibilities apart from what you fear.
Is it worth while phoning your BCN or oncā€™s secretary on Monday so that they can look for appointments for scans, could always be cancelled if not needed?
Gentle hugs and have a great time with P pig!
Wishing you all a good weekend, with as little time thinking about TNBC as possible
Lavender

Evening allā€¦

LavLassie, that sounds wonderfulā€¦a weekend without thinking about tnbc would be fab!! Just need to get off the couch first!! Thenā€¦Christmas decorations, meal with parents, x factor and other NORMAL stuff!!!

Sadie Xx Xx

Tina Iā€™m really pleased your feeling more positive about things now your symptoms arent so badā€¦ Def mention them all to your oncā€¦ Like LL I also get neuro migraines and loose vision and sometimes get speech problemsā€¦ Enjoy PP tomorrowā€¦

I was at my breast buddy Christmas night out last night it was great there were 14 of usā€¦ Great company, great food and great wineā€¦ Too much great wine actually and was feeling a bit rough this morning!

Planning to put my lovely pink tree up tomorrow.

Hi All - Everyone has been a bit quiet over the weekend. Hope it was a good one for you all and the trees and decorations went up ok!!

Tina - Hope you got away nd enjoyed it and your worrying issues have gone away!!
LuLu - Glad you had a good night out. Does us all good to let our hair down at times!
Lav Lassie, Laura64 - and everyone else ā€œHiā€

Im ok - really really hard week last week. Feeling horrid! Very tearfull this morning as well. But got my positive head back on again now! Enjoying Christmas - Ive started a Secondaries Christmas thread if anyone interested (Thx for your post laura)

Hugs and Smiles to all

Sadie Xx Xx

Hey ladies :slight_smile:
How is every1 doing?? Hope all is as well as can be x
we had a lovely time at peppa world- super long drive but well worth it. Been planning dans new bedroom + keeping busy since we got home. Went to ikea yesterday+ hoping itā€™ll be started next week (+finished next week, Iā€™m very impatient lol!). Got chemo tomorrow so got lots to do today- cupboards are bare, house a tip, but my tree looks fab :wink:
donā€™t think carbo is working this time- nodes no change+ chest wall actually feels worse in the last week. Eye prob has eased but sore again yesterday. Will defo discuss with onc tomorrow + push for a scan after this cycle not next. Fingers crossedā€¦
Sadie- glad ur feeling a little better. Bet ur decs look fab :slight_smile: x
Rachel- how u feeling? Are u due another chemo this wk? Thanks for the pm x
jo- how are you getting on? Hope the seā€™s have eased + the chemo is still reducing all your symptoms x
lulu- how are you doing? Another chemo this week- halfway mark is in sight :slight_smile: x
laura- how are you feeling? Any scan dates through yet x
wendy- hope the gemcarbo is still kicking butt! You all set for Xmas with ur little man? X
sandra- how are u doing? Hope ur ok x
Sarah- howā€™s u? Hope ur well. U sorted for Xmas? X
hi to anyone Iā€™ve missed x
right better get myself to asda, aldi, matalan, and everywhere else on my to-do list!!
Love to you all xxx

Hi Ladies - me again (sorry!!) but ive just received a letter from the marsden about cyber knife. It is not suitable because ive had such good effect to the chemo - nothing left to ZAP. There are only tiny nodes left thatā€¦wait for itā€¦ā€˜may not even be active disease!!!ā€™. I cant quite believe it! So - hang on in there ladies - chemo and our bodies can do it! I just hope you all respond this way to all your chemos and treatments.

Hugs to all,

Sadie Xx Xx