Hi all
Sorry to all those having allergic reactions - I had no idea people did to carboplatin as I’m not given any piriton. Knew was a risk with taxanes hence the piriton we have. I’m sorry Tina that not working with carbo but maybe another one better now for you. I’ve been told capecitabine is next and my Onc has someone on it 18 months so must work for some. Let’s hope for you. Erubilin is knew I think and licensed this year. Is a hair loss one but that’s all I know.
I had reduced carboplatin 3rd one but still as tired. Think tougher than 18 paclitaxol but maybe just me. Got tree up and decorated but then ran out of steam for any more decorations.
Hope you are feeling a bit better Rachel and the chemo doing some good.
Hello to all I’ve missed.
Jo x
Hi All…
Hope / Jo - I reduced my 2nd Carbo and I think you are right - the tiredness after the 18 taxol is extreem. Just pace yourself and as long as the tree looks good Christmas will be fine!
Tina - Oh how horrid and what a shock! It is difficult to understand how you can have a reaction to something you have had before! Limboland is temporary…i hope a plan is in place soon! I know what you mean about missing things the kids are involved in - but sometime its is the little things that are important. I enjoyed waking the kids up this morning, just watched them sleep for a bit and gently woke them! It was lovely. Hope you find a lovely moment in today too. Hugs Xx Xx
Lulu - I use a meopore dressing as I had a skin raction too. Works well, just needs changing after a shower and ive had no reaction and have had my line in for 10 months now - I love it!! Sounds odd - but causes me no hassle and my veins went AWOL very early! Good point about cell death!!!
Hi Wubbly and Sharon and and LavLassie!! Hugs to all! Thx for ‘congrats’ LLassie!!
Hi Sandra - well done with teh Taxol / Avastin, it is hard work - hope the scans are GOOOOOOD!!!
FQ / Rachel - Just sending you hugs, smiles and love! xx xx
Laura - hope your cough is better and the anti biotics are not messing your system arround too much. I know it is a way away yet - but good luch on 28th! Xx Xx
Im doing OK! Getting thihgs ready for Christmas as when I have the next chemo I will not be able to do anything! Christmas is on a Sunday (as im sure you know!!) and im usually not good on a sunday which is a bit of a shame! But will have to just make the best of it.
Love and hugs to everyone and hope your X Factor fav wins!!! Come on Marcus!!!
Sadie Xx Xx
Hi all you TN lasses. just jumped on this thread, i am one year post dx and treatment and as no hormone therapy, i am scared, waiting for results, but reading about the x factor has made me think of something else, I am hoping for Marcus to win!!! love to u all xxx
Hi all hope y all doing ok my cough is no better had a inhaler as well but had to stop taking it as it made my mouth all sore my sons also have a cough which they have had for 8 wks so I’m Hoping it the same and just a virus I’m very panicky for my scan like Tina got twinges every where and pains I’m sure it’s grown but will just have to see putting tree up today so hoping will take my mind off it tc all Marcus to win lol xx
I’m in the little mix camp! But like marcus too so dint mind really who wins.
Shar good luck with your results… Waiting is always a horrible time.
Tina and Laura sending big hugs to you both as I know your both worried about scans and treatment.
Sadie I think it was actually op-site that iv had the reaction to… My neck is quite red under the dressing I have on now and it’s itchy and annoying… But not too bad in the grand scheme of things.
Love to all you lovely ladies xxxx
hi all,just giving you an update went for 2nd chemo friday left home for manchester at 9 am got home at 11 30 pm was so drained , there was a two hour chemo delay then i got to know i have lymphodema in good arm now due to disease in chest wall and breast and underarm on goodside theyeventually decided to go into vein on mx side as that wasnt swollen but are going to put picc line in on friday god knows ihow long i wll be there but they are trying to get me back to my local hospital for future treatments i pray they do ,as i left the hosp on friday there were still patients there my dear brother is my chemo buddy but felt so sorry for him driving…all i seem to want to do is sleep am so weepy inmornings need help dressing cos right hand clawing up now too and numb, didnt get up til 1 30 again today i cry for the woman i was up and about early so xmassy, i havent got a thing yet feel so sad and desperate and its 9 yrs tomorrow since my darling ian passed away …my kids are amazing it just breaks my heart we are all loving moms going through this i may not post often but think of you all and send love your way xxxxam sorry my posts arent upbeat and if i bring you down please say as that is the last thing i want to do xx
Aww fq big hug on the way moan all u want it’s wat we are here for so sorry to hear your news and the long day u had just wat u need I’m sorry your weepy I just wish I knew wat to say to you but all I can offer is a ear for u to moan to and a big hug Hope everyone else is ok still got my bloody cough my little as got a stinking cold so I’m sure that be next just wat I need on top of Xmas putting up tree tonight so might take my mind off feeling rubbish love to u all Laura xx
Rachel sending loving hugs to you sweetie xxxx
Laura enjoy putting you tree up xxx
And Yay!, for little mix.
Hello ladies
Rachel- thinking of u today on this very sad day 4u + ur family 
Im sorry ur having such a touch time it’s just not fair. Will keep everything crossed that the picc is inserted easily + ur next treatments can be given locally. Try not to worry about Xmas it is just another day + I’m sure ur family want you to rest not to be tiring yourself out buying presents etc. Rest up xxx
hi to everyone else hope u all ok xx
tina xx
Hi Rachel / FQ, on this very special but sad day for you i am sending you my love. I do hope you are well enough to read the messages of support from us all nd hope they make a difference to know we are here.
Gentle hugs nd i will light a candle for your loss tonight in memory of Ian.
Sadie Xx Xx
Hi Rachel
I hope you don’t mind me coming on this thread as i am not TN but Rachel i just want to let you know that i am thinking of you on this very sad day for you. When i was first diagnosed you were one of the first ladies to offer me support which meant alot. I wish i could do something for you in return but i don’t know what apart from just letting you know that i am thinking about you as i am sure lots of the other ladies are on this thread.
Melxx
thankyou all so much xxxx
Dear Rachel
Sending you more love and repeating that we can all listen to you without you feeling bad about what you say.
It’s allowed here,
Hygs
Lavender
xx
Hi all
Rachel FQ. Thinking of you, hoping all goes well with the picc line, can’t believe you were sooo long at hospital. Christmas is an added pressure, which we all don’t need, just enjoy the day with your lovely family.
Lulu your new photo is brill, luv it 
Sadie glad yr doing ok,I’m coping ok on just avastin, the paxitaxol was stopped cos of my nails(which look ok at mo, onc thought all my nails wud fall off, but infection stopped half way down, nails growing out now).
Tina thinking of you, 
hugs
Hi to all,
Hugs
Sandra xxxx
Hi ladies
hope everyone is feeling ok. Just a quick update on my situation + I will post properly tomorrow. I’m meeting with my onc tomorrow to find out what my treatment options are. Have been feeling quite anxious in case funding refused on Eribulin/ Avastin but heard back from our private health today + they have agreed to fund either Eribulin or Capecitabine with Avastin, if the NHS won’t. To say we are relieved is an understatement! I know there are no guarantees that these drugs will work but I naturally feel better knowing there are still good options for me. The nodes at my collarbone/ neck defo feel more prominent so I am keen to start a new treatment asap. Still feeling weak + unwell after last weeks treatment + reaction Tho, but I’m hoping it passes soon.
Will letyou know how I get on tomorrow, fingers crossed
love to you all, Tina xxx
Hugs Tina
Glad you have some options and you can get started soon.
Lulu x
Hi,
Tina, good luck for today. Hope all goes well! Hugs.
Hello to everyone else.
Sadie Xx Xx
Hi ALl
Hope you are well enough Rachel to read the messages of support for you. I pray you feel better soon and can feel a bit better to enjoy some of the christmas time with your lovely family. I cant believe how long your treatments take and would exhaust a fit person and take a while to recover so hope you can have local. I hope appt goes well Tina for you. I was offered funding for avastin with the carbo but Onc decided against in end as I had a pulmonary embolism when diagnosed and think contra indicated as clots a se but not a risk particularly I dont think if you havent had. The Onc I saw at the Marsden talked about Eribulin so think a good drug. Capecitabine good too for some and think my next option as some seem to do very well. We just dont know what will suit each of us I guess but am sure they will put you on right one for you.
Glad your nails etc improving sandra and hope Lulu that you are not feeling too wiped out.
Im finding christmas difficult as always find hard as we had our son’s funeral 23 dec and brings back memories 5 years ago and worry about future christmas and if I will be here for the little ones. I try to practice mindfulness living in now but is so hard isn’t it and finding it harder at christmas. I think as everyone else is so excited. Lets just hope the new year brings some new treatment options for us all.
love jo x
Hello everyone-I am not TNB but I’ve been reading up on the news of the new vaccine that that is being developed in America-I’ve just read some geneaalsl infotamtion on the internet and it seems that this vaccine will be for people with dcancers that are non hormonal receptive to tamoxifen and herceptin-it looks like it could be available in 3 yeras time.
This looks like really good news and offers great hope-leats continue to pray it becomes available ASAP.
I dont have any any speciifc web addressess, I just called it up online. Hope this helps.
Just popped on to say good luck for today Tina, I hope you get a plan in place that works for you and works brilliantly.
Jo, I’m still fairly new to the thread so I’m so sorry to read about your son. It certainly puts things into perspective a little for me. I wish you all the very best at what must be such a difficult time for you.
Sending love to everyone. I wish for hope and good health for us all. I love the idea of new treatment options for us all, that would be the best christmas gift ever.
Wendy
xxx