Hi all
I am having such trouble with new site with iPhone and iPad as goes to comment not reply all the time.
I hope you got on ok Laurie today. I hope jane and sadie your mums are
Doing okay. I can’t believe what some families get dealt but
Have given up analysing why ?
I had radiotheapy last week and am going 4 days this week to lower spine and axilla. Exhausted and in so much pain Sunday with back. Stepdaughter was being presented with a bible so had to go to church even though felt awful and could hardly sit, then had to leave to be sick.
Straight home to bed.
Am feeling v anxious that cap didn’t work and tumours growing yet not on chemo. They are testing bloods in another week but radiotheapy lowers counts and am anaemic. I’m having gcsf injections with chemo vinorelbine to try to keep white counts up. Having a real wobble as my Onc says only this and eribilin left.
Sorry sounding miserable as we are all dealing with this beast which seems to have no let up. Hope the trial still going well and epidural helped. If back pain continues I think I’ll ask for one. Lovely to see your photo Laura as you are nothing like I imagined.
Love Jo x
Lovely to hear from you again Jo. Sorry you are having such a tough time. Hope you can get a bit of relief from the pain soon. Will keep you in thoughts and prayers. Big hugs Tara xxx
Hi ladies
Just back from hospital with more questions than answers. I had my pectoral mustle removed and a fair bit of surrounding tissue. I get the impression that the surgeons were concerned about some of the tissue they removed but did a radical job of getting rid of it. Problem is, the chest x-ray they gave me shows fluid in my lungs - they’re not sure whether it’s to do with a secondary or blood/fluid from the operation. I asked them what my options were if it was a secondary but they were reluctant to talk about it until they knew. It was only a few weeks back I got a clear CT scan. It’s torture, this waiting and hoping.
Feeling glum
Moondog xxx
Oh sorry to hear that Moondog. They wouldn’t have operated unless they thought it would do a radical job. So I hope the lung problem resolves. When will you hear more? How are you managing pain wise?
Seen Laurie’s new thread re brain mets. Just mentioning in case some of you didn’t see it.
Hi
I’m having the fluid drained tomorrow and should know more on Wednesday. Pain wise I’m fine thanks Tara, in fact I’m coping prety well without a pectoral muscle!
Thanks for your support
Hugs
Moondog
Awww Jo sorry things are still pant… Hope you can get back onto chemo soon.
Tara your new pic is great and laura i think you do look fab too.
Moondog sorry you dont feel any the wiser, what a worry you now have about your lung… Hoping its not secondaries… What are they planning to do about it? Are you having more scans?
My daughter is going to sign on tomorrow. Bf did his last exam and been offered a place doing history (his passion) at college next year, son has an interview on friday but thinks hes failed higher maths today and my sister has just had her gallbladder out yesterday as an emergency but shes recovering well.
Big hugs to all you ladies and big hugs to everybody else too xxxxxx
Moondog, sorry to hear that you have more worries. My removal of the muscle was very radical too. I hope the appointment on Weds goes ok. Fingers crossed for you. They are always cagey, never want to commit themselves till they have results. It doesnn’t mean it’s bad, just that they need to know. It doesn’t make it any easier for us though, when we are going through it.
Take care of yourself,
love Mo xxx
Jo - SusieV mentioned on another thread that she had Vinorelbine last year. Might be worth a PM to her in case she doesn’t see your new thread. Hugs from me. Tara xx
I think Susie V died last month. She was a real trooper. Sometimes it is so difficult to keep track of who has gone, especially with the forum disruption recently.
Oh so sorry to hear that. I didn’t hear. I agree we are all a bit upside down. So just to say that she did say she had no side effects from Vinorelbine. Which I hope helps a bit Jo. xxx
Thinking of you Laurie and following your brain mets thread xxx
One of your ‘lurkers’ here, wondering if I could ask for some advice? I have been on Vinorelbine since Feb for bone & lung mets, but after a PET scan last week was given the terrible news yesterday that it has now spread to my liver.
I feel devastated & am struggling to come to terms with what now lies ahead. I am being given 3 weeks off chemo to regain some strength & let bloods recover before starting a combination of Gemcitabine & Carboplatin.
I am not TN but think I’ve read on this thread that some of you have been on this regime & I was hoping you might be able to tell me a bit about it.
Laurie - so sorry to read of your latest news. I tried to post on the other thread but couldn’t (grrrrrrrr!), as I just wanted you to know that I’m thinking of you & sending & big hug your way.
Aw Dugsy - sorry to hear your news but you know the drill - Absorb, Accept, Deal and move on! (Sorry - I don’t mean that to sound harsh but I guess it’s shorthand for what we all do…)
Haven’t done the combo you’re talking about but the stuff I hear about Gemzar is that it’s pretty gentle. Think Sadie has been on Carboplatin so maybe she can wade in with some top tips.
So now the really annoying thing I have just noticed is that now I want to skip back to your post to read it again to see what else you’ve said, the only comments I can see above this are those on page 1 grrr!
Any progression is such a toughie isn’t it? Especially if, like me, you feel like you’re whizzing through options like you’re going through the 10 items or less checkout But then suddenly you get one that works and you can breathe a sigh of relief for a while. Hope this one is yours. I think you said you get a couple of weeks off before you start the next one? Enjoy those days, hopefully in the sunshine.
Hugs
Laurie
PS: Hey triplenegs - it seems to me that this is fast becoming the default thread for SBC women as it gets a good bit of ‘traffic’ always appears in the latest posts list and has a great bunch of kick-ass folk in it! Hope you don’t mind all of us wading in! Thanks Lx
PPS: Mods - your not seriously going to disallow kick-ass are you? I’m a serial swearer and I’m trying so hard to find ‘acceptable’ prissy language that will pass the filters LOL!
Laurie of course anybody is welcome to use this thread… We wont throw you out the door for being hormone or Her positive… Im TN and Er pos anyway… Greedy sod that i am!
I think the mods at the mo have more important things to be dealing with than giving out about or language… TBH i think we are all be extremely civil as im sure the forums would be full of effing and blinding were we allowed to say what was really on our minds with regards to cancer and the crappola that is now BCC!
I would say you are def allowed to say bad words this week after your rotten news hunny xxxx
Dugsy cant really help with the gem and carbo combo but i had tax and carbo and of the two i found the carbo quite easy going a bit sicky feeling around day 4-6 when steroids had worn off… Sore mouth, funny taste, indigestion, constipation… But again these could be the tax and not the carbo… Had sore bones and muscles, palpitations, weakness and breathlessness from the tax.
More crappola news from me guys. Malignant cells were found in the fluid they drained from my lungs.
Alesta, I read your post in a different thread about absorbing, accepting and dealing with it. I found that really helpful and plan to do just that, with a healthy dose of la la land.
No treatment plan yet as such. PET scans first then maybe carbo and/or taxodere. Avastin (??) also mentioned as a possible.
Husband amazing but devastated. How on earth do I break this to my daughters, they’re 3 and 7?
Love and tears
Moondog
and my sister has just had her gallbladder out yesterday as an emergency but shes recovering well.
But then suddenly you get one that works and you can breathe a sigh of relief for a while. Hope this one is yours. I think you said you get a couple of weeks off before you start the next one? Enjoy those days, hopefully in the sunshine.